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fibromyalgia sympoms

Posted , 13 users are following.

kyroar
kyroar

I've had symptoms of fibromyalgia for about 18mths but didn't know what it was till recently, had all kinds of tests and was told im a 'medical mystery' but the more i read about fibromyalgia the more I'm convinced thats my problem. I really want to go back to the Dr's but don't wanna get fobbed off again!! and really don't kno' what else to do..I can't sleep cos of pain, i ache all the time due to stiffness, i have restless legs, spasms, sensitive to pain, slowed speech and painful periods..i get emotional when i try to talk about the symptoms cos im so frustrated!! 

3 likes, 25 replies

25 Replies

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  • grahammolyneux
    grahammolyneux kyroar

    Posted

    You need to be referred to either a reumitoligist or to a pain clinic.

    They will be able to diagnose you fully and give you guidance to try and get control of your pain.

    I am now under the wing of the Walton Centre Liverpool pain management team who I am hoping that they can get to grips with my pain issues.

    Best of luck

    • kyroar
      kyroar grahammolyneux

      Posted

      im just bothered about being fobbed off again by my Dr...i feel like the she thinks im making it up..she i see a different Dr? you see im so tired i get upset easily an find it difficult to talk with out crying, which makes me feel even worse!!  :-(
    • kathleen1958
      kathleen1958 kyroar

      Posted

      Can you take someone to docs with you or falling that write everything down and let them read it. Good luck 
  • shirley99502
    shirley99502 kyroar

    Posted

    I would get a second appinyone hun you need to get yourself sorted. I know how you feel i have all the exsact same simptoms you have to persivere with the doctors hun     give it a nother go and good luck
  • JulieBadger
    JulieBadger kyroar

    Posted

    I would recommend definately seeing a different doctor.  I phoned up my doctors and asked if there was a doctor who has specialised in Fibromyalgia, then asked to see that doctor (it is a specialism). Take a print out with you of Fibromyalgia symtoms which you have found on the interent and put a star against the symptoms you feel you suffer.  Then you can say I've been doing some looking on the internet as the other doctor said I'm a 'medical mystery'.  I've found Fibromyalgia symptoms and feel I have the ones I've put a star against.  Do you think it could be fibromyalgia or something else?  Some of Fibro symptoms are very similar to other conditions ie, ME/CFS and Autoimmune diseases.  Not sure I've heard of painful periods connected to Fibro but it might just be that I don't suffer that way.  Good Luck and take a hankyx  
    • Karry
      Karry JulieBadger

      Posted

      I never mention the Internet to my G/P. it makes him grind his teeth. 
    • tiswas24537
      tiswas24537 Karry

      Posted

      iv got one of those gps. dont think they like the fact that alot of people are taking there health in there own hands and searching for advice and information and not relying on them .

      see another doctor if you can .

  • tiswas24537
    tiswas24537 kyroar

    Posted

    go back to your gp and tell them you think you have fibromialgia  thats what i did he then said i think you proberly have , and did the pain point test .by pressing on the percivic points on the body .

    • JulieBadger
      JulieBadger tiswas24537

      Posted

      They do very much go on the pain points which are described on the internet.  Not sure if it might be 11 out of the 18 to be considered to have Fibro - something like that.
  • Flowerlady
    Flowerlady kyroar

    Posted

    I agree with everyone on here, go back to your dr and ask to be refered to see  a Rheumatologist. They will help you..Good Luck..Anne...
  • nitropilot
    nitropilot kyroar

    Posted

    Not much I can add. Everyone has covered it.

    You deserve a doctor who treats you well. That is huge, and you need a specialist. The Gupta program helps you manage tour anxiety/stress which is SO part of fibro, unfortunately.

    I can say that light stretching and some calming teas and/or herbs will do you wonders. I know you feel tired so thinking of something to calm you more sounds odd. Your body is exhausted from the stress & pain. It needs a break. 

  • alig39
    alig39 kyroar

    Posted

    Hiya. It took my docs almost 3 years to diagnose me. I was sent to a rheumataologist

    who said what it was. I've had it with my gp, a couple of weeks ago she put me on Amitriptyline and a week after the pains were sooooooo bad I had to stop taking them. Now I can't even get to see her til the middle of November. I've lost all trust in them and when people say to me go see your doc this is why I don't. I'm so with you on the emotional side of things as well. Just thinking about it makes me well up and I can't really confused and muddled up as well. Demand your doctor send you to a professional who can give you some more help. All the best Hun. X

  • anne90395
    anne90395 kyroar

    Posted

    Hello Kyroar,

    What a difficult position you find yourself in. But there is lots of good advice on here. You need to get yorself referred to a rheumotoligt in the first instance. Your Doctor needs to look at this site, and if not willing change your Doctor. Very important that you have a doctor that is interested in this condition.

     Good luck, and let us know how you get on.

    Take care, Anne

    • kyroar
      kyroar anne90395

      Posted

      I haven't yet plucked up the courage to go back to Dr's yet so i have put pen to paper and wrote to my Gp instead, i got everything down and explained that im too upset to go and speak to her in person and exactly what my sympoms are and hope she either emails me or rings me...its in the post so soon as she gets it i will hear back from her (fingers crossed) x
    • tiswas24537
      tiswas24537 kyroar

      Posted

      thats if it gets past the receptionest most mail is opened by them .mad

      but its a good idea . razz

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