Fiery hot sweats
Posted , 9 users are following.
hello
I have experienced a number of night sweats over the past 3 months since becoming unwell (no not the menopause before you ask lol )
I have noticed that since I started on 'pred' last Tuesday these seem to have increased in intensity and frequency ..... Waking dripping from the shoulders upwards !!!! Pillow ,sheet wet !!!!!!!
Is this a symptom others have also experienced ?
i had noticed over the past couple of weeks through out the day I also find that I appear to be really flushed feel very temperaturary on and off ...... it's like a burning furnace out of control .....
Helene
the more I reflect the more I am becoming aware that I have had subtle symptoms for a very long time until my body decided to crash ! We often are kinder to others than recognising that we also need to be kind and take much more care of our selves ....
0 likes, 27 replies
Juno-Irl-Dub helenemiles
Posted
helenemiles Juno-Irl-Dub
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thank you for your comments , been rough for a number of months now and PMR is now being ????? Vit d defieciecy detected lots of other symptoms that have been going on for some time . Have not been right in my self for well over a year I don't think ... Looking back .Assessed in hospital last week due to deterioration in pain ,mobility etc , lots of x Rays taken urgent rheumatologist apt to follow as he was not available on my admission . Few other tests pending . Popped on 'pred'allowed home on agreement to see as out patient . Seeing GP in the morning .
helene
ptolemy helenemiles
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helenemiles ptolemy
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helene
ptolemy helenemiles
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EileenH ptolemy
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However - since I've been on beta-blockers for atrial fibrillation the sense of my own personal central heating has gone. Much to the husband's delight as now I am even colder than him...
helenemiles EileenH
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i only sleep with a quilt and pj's , tend to just throw it all off until the fire ceases !! Thank goodness I sleep alone ... No one to disturb and soak lol
janet08828 helenemiles
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Yes unfortunately this is something I recognise only too well !!
I can only offer sympathy and understanding - and if you are anything like me - the only advice I can give is - you get used to it.
I get so overheated - sweat literally pours off me - pretty revolting really!! - no rhyme or reason - just heat, day or night.
I have been on pred for over 2 years - I had just got over the hot flushes of menopause when this illness took over - lucky me!
Why are you on pred? I have GCA and it is taking its own sweet time in burning out - still I am gradually getting the pred dose down and am optimistic that this furnace inside will also disappear.
Good luck with it - sorry if I am the bearer of bad tidings -
Janet
I don't know of any relief for this - be wonderful if someone had a tip.
helenemiles janet08828
Posted
Think I possibly have PMR diagnosed severe vit d defieciecy ... Symptoms have gone from bad to worse over the past 3 months which led to frequent trips to G P then hospital acute assessment lady week .
Symptoms :
severe pain started hips .. Elbows, left thumb, then shoulders , eventually into my back
have never felt so rough mobility rubbish , balance poor , brain foggy at times ... Words just don't come out when I want them too. Severe hot flushes .
lost lots of weight about a year ago , that's when my hips started giving me Jip!
Knew it wasn't the menopause as I went through this early St the age of 45 now 49 .
Whilst in they took lots of x Rays as rheumatologist was not on site !! Popped me on steroids and am awaiting urgent out patient appointment .
the pain in my back and shoulders did ease 48 hours following taking pred but I am exhausted an have found that just doing little things hurt and arrivals everything again .... But not to the extent to the state I was in last week .
I have experienced awful temple headaches and pain in the back of my neck . The pain seems to shift ...
I am a novice if this is PMR and really appreciate everyone's stories as hopefully this will help me manage my symptoms a little better .
thank you again for taking the time to reply , I really appreciate it .
helene
janet08828 helenemiles
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Confusion and worry, going from being an "ordinary" mobile, energetic person who just gets on with life to being a totally different person, tired and disinterested and in pain. Yeah - not a nice situation, especially the not knowing what is going on - it really isn't nice at all.
That's why I found this forum to be such a godsend - people understand and you can get answers to some questions - even questions that you didn't know you had - there are quite a few "oh yes" moments.
Some of your symptoms do sound as if GCA could be on the cards, I hope that you get into the right treatment for you soon so that you can begin on the road back to some sort of normality.
As for the internal furnace - reading the responses you have recieved it does sound as if most people have experienced a shorter time of the sweats - maybe I am just unlucky - but then again I am having a hard time getting down to a maintenance dose of pred.
Hope that you feel better soon
helenemiles janet08828
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the forum has brought be comfort despite feeling totally miserable and as if I now poses some one else's body !!!
Lets hoping I and everyone else out there who is struggling at the moment feels a little better soon .
helene
EileenH helenemiles
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MrsO-UK_Surrey helenemiles
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The good news is that for most of us the sweats reduce as the inflammation gets under control and the steroid dose is reduced.
Meanwhile, avoiding coffee, chocolate and all caffeinated drinks may help, especially later in the day. Even a small glass of wine used to set mine off.
helenemiles MrsO-UK_Surrey
Posted
I really appreciate your comments . I will take on board your advice and see if this helps .
many thanks .
Ps
My hips and elbows are easing a little but my head and neck seem to be getting worse ... Does this also sound familiar ?
I thought I would be running around again by now ... But sadly not , feeling very sorry for my self right now lol
MrsO-UK_Surrey helenemiles
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helenemiles MrsO-UK_Surrey
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they did mention ? Arteritis /vasculitis when in hospital on Tuesday and were wanting to look at another angiogram (had a small stenosis in the back of my leg 5 years ago , do have peripheral vascular disease ) they popped me on 20 mgs .
Think I will be seen asap following my admission hence why they wanted to do the full body x Rays prior to my appointment so that he has them available to hand .I will certainly discuss with her in the morning .
Thank you got your support , will keep you posted .
And there's me being very optimistic telling my boss ' sure if I have a dose of steroids I will be feeling great ' !!!! May be a little too optimistic .....
Dont think work is on the cards at all at the moment 😞
helene
bronwyn97278 helenemiles
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bronwyn97278 MrsO-UK_Surrey
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MrsO-UK_Surrey helenemiles
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I do hope you get a definitive diagnosis soon and the correct treatment started to get you back on the road to recovery - good luck.
MrsO-UK_Surrey bronwyn97278
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There is no answer unfortunately, other than to avoid all caffeinated drinks, and alcohol if you are affected, and wear just cotton clothing, including undies. Cotton sheets will be better than polyester mixtures. With cotton clothing, the perspiration is allowed to escape whereas with any other material it will just get trapped leading to more discomfort.
Strangely, although my sweats improved immensely as I lowered the steroid dose, I always seemed to experience an episode immediately following a reduction in dose and whilst eating or immediately following a meal.
EileenH bronwyn97278
Posted
It would be nice to know WHY - but as I say, mine all but disappeared once my atrial fibrillation and intermittent high BP was sorted out.