Finally found the cause of my Prostatitis
Posted , 68 users are following.
After my 2nd test of just providing a semen sample, Staphylococcus was found to be my problem causing prostatitis. This is good news to me since I have been dealing with this for 7 months and on and off for years. I was on 2 weeks of Cipro and since it did not work and I am allergic to shell fish so Bactrim will not work, the doctor would like to administer the antibiotics via poss IV ABX, every day for 28 days. The clinic is close by me thank God and will be in an out in an hour each day. Does anyone have experience with this procedure for Bacterial Prostatitis?
5 likes, 212 replies
gav1n michael82149
Edited
Hi, I have been suffering for 30 years and during all that time I was told I had the none bacterial form, in shear desperation I took my own semen samples into the lab at work, I work in microbiology. I got the same organism on multiple tests and also tested for an appropriate anti biotic, this worked out well however the organisms always came back between doses not immediately but I could literally monitor them reappearing on agar over the space of about three months. I have now gone the turp route and at three months out it is no picnic. I would implore anyone who has been fobbed off with poor microbiology or simple urine tests to get their sperm checked at a reputable lab, it is all bacterial in my mind prostadynia is just a cop out.
michael82149 gav1n
Posted
Hi,
Yes, semen and EPS fluid tests are best done under a PCR (Next Gen Sequencing NDA). I am also feeling great relief while on ABX (fosfomycin) but suspect it will all come back when I go off. Many people are getting relief with Phage therapy and will use this if my test come back positive after taking abx for 3 months. Good Luck!
Mike
bookwiz123 gav1n
Posted
What species of pathogen did your culture provide? Was any considered "normal semen flora".. Did you do a sensativity? What ABX did you treat it with? I have done several semen cultures with standard micro, and the returned negative results...just "normal bacterial flora"...I didn't think there was normal flora in semen. Thanks for your reply
michael82149 bookwiz123
Posted
I did 3 tests. Urine, urine with eps fluid and semen with eps fluid. They all detected Enterococcus Faecalis. Urine had a low bacteria load, urine with eps had a medium bacteria load and eps w/Semen had a high load so I am confident I have a bacterial issue in my prostate since the close the samples got to my prostate the higher the bacteria load got. My Uro prescribed me Levo since the is what's FDA approved as a first line abx for bacterial prostatitis. But... I have an Infectious Disease friend who prescribed me Fosfomycin with great insurance. I am planning on taking fosfo for 3 months every other day and then will retest again the same way I did before (3 different testes). If the bacteria is still found I am moving to mail order Phage therapy.
bookwiz123 michael82149
Posted
Thank you Michael. I was also asking gav1n but your reply is helpful. I was prescribed Fosfo for 30 days, but symptoms have been subsiding over time, so I've been reluctant to take it until my results from next @USF,Nearly pain free and diminished cpps. My PSA went from 5.1 to 4.1. Thinking my own immunity is beating E.Fascalis but still may take the Fosfo if still present in EPS or urine. Hot soaks 3-4 times/week and Quercetin/Bromalein is my only therapy. As mentioned before, 2 Mo.ABX included Doxy, Cephelexin, Levaquin but none seemed to curtail symptoms. Don't know what "normal flora" is in semen or the urinary tract. I thought the prostate was sterile. Could be passed from the normal flora of the vagina (my sex partner)
michael82149 bookwiz123
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I feel the key is the bacterial load, not so much what is found. If the bacterial load is high or even medium it's worth addressing. I am also getting Prudendal nerve block on Thursday to rule out any nerve related causes. I firmly believe I have a nerve issue because my symptoms have come and gone over 12x over the last 10 years without abx. Time will tell but the fosofo has helped reduce allot of my symptoms but this is a well document, abx may be acting as an anti inflammatory drug. It's also important to note that my lower back is killing me and has been since this flair-up started 2 years ago. My xray's and MRI's of my lower back and pelvis are negative. I had SI Joint injections done and they help allot for a few days so I may have a SI Joint/pelvis issues disrupting the Prudendal nerve. This along with the flair-ups going away without abx has me totally confused as to if I have bacterial or non bacterial prostatitis because of the positive Micro test....
gav1n michael82149
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Sorry forgot to mention the biopsy of prostatic tissue revealed infection.
gav1n michael82149
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The bacteria I isolated were both enteric, klebsiella oxytoca and citrobacter freundii. I think the kleb must have come in on a catheter at some stage, I also got Coagolase Negative Staphylococci as commensals, all by API. As for sensitivity using gram neg mast rings, the only ones displaying really good zones were all the intravenous ones howevever tetracycline displayed a reasonable zone, I have not tried cipro as I think I burned that out years ago I could Isolate the same two pathogens week in week out. While I am here I should mention That my father suffered from this for 20 years, he had a turp 27 years ago and apart from one or two early flare ups round the op he has been pain free, however he still gets up at night. I am hoping I am following the same route but its early days and he took 1 to 2 years to fully heal. The main reason I have opted for turp is It had come to the stage where care givers coud not get the very finest of catheters to pass through my prostate and I had a very high bladder neck so it was pretty inevitable, I am 49 by the way.
bookwiz123 gav1n
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Thanks for your reply. Did you try any other ABX like vancomyacin, Fosfomyacin, or Lizenolid? Have you looked into physical therapy for CPPS. There are a few in my area of Florida. it helped me, along with hot soaks and massage. Also you may want to google "headache in the Pelvis" if you haven't already
gav1n michael82149
Posted
Hi, I have not tried fosfomycin but I have read on it, I am just sticking with what I know works until which time it stops working due to resistance or I get better with the turp. Physical exercise may help in order to get blood flowing to the area but the way I look at it you are only treating the connective tissues, stretching muscles is not affective as the nerves supplying the muscles are still firing due to tissue damage in your prostate, when an area of your body is damaged all the surrounding musculature tightens in order to protect the damaged tissue and this tightening in itself may cause pain so there are two ways of looking at this I may try the protocol but if it were a magic bullet surely more people would be attesting to it, I will look into it a little further. Has any one else tried wise anderson on here.
bookwiz123 gav1n
Posted
From what I've read, only certain ABX concentrate in the prostate, due to it's vascularity. Best that are not IV include fosfomyacin, Lizenolid, amoxicillan, and Levaquin. The quinolones have tons of side effects and should only be used as a last resort. I have allergy to penicillan, and sulfa, so I'm pretty much running out of options. I followed some of the Wise-Anderson protocols. They were hgelpful. I think so of their prognosis in negative, but I've been lucky so far after 10 months dealing with prosititus...just hoping not to develop cancer
ryan98661 michael82149
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After several failed attempts with antibiotics ordered by the urologists (cipro, levauin, doxy, ect.) over about a year, a new urologist in the next state over (who is such an amazing doctor) decided to bring in Infectious Disease for console (who also were amazing) because they are experts on antibiotics and oversee/order IV. I had Enterococcus in my semen and it kept coming back time and time again (yes a doctor can order a semen culture). For me, the IV process was rough but well worth it. I did IV Zosyn (via a PICC line) which I took for 3 weeks. I did it from home with Option Care, which was kind of a pain but you learn pretty quick. (If you are close to a clinic, I think it would be easier to just go there.)... We then discovered that I'm allergic to Zosyn and it eventually caused a fever and nausea (came on after 3 weeks); that eventually sent me to the hospital and we switched to Zyvox. Zyvox was administered IV while inpatient at the hospital and then at discharge we switched to Zyvox orally and they removed the PICC line. I then took Zyvox for a few weeks orally. --- Although very aggressive (Zosyn follwed by Zyvox), it did finally did work - I made a full recovery. I still have a few symptoms but it has been 9 months since all of that and I am doing really well, no antibiotics. The prostate even feels normal now, according to the urologist a few weeks ago. -- Everyone is different, if your antibiotics aren't working and the cultures keep indicating something, ask your Urologist or Primary Care for a referral to Infectious Disease (ID practices almost always require a referral.) And if your Urologist's treatment is ineffective, even if they are highly regarded, leave him/her and find someone better. It took me 3 Urologists to find one able to treat it successfully. Also, I'm 26 if you all are interested... I hope you all get better soon, hang in there!!!
bookwiz123 ryan98661
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Glad to hear your success Ryan. Did you have Enterococcus fascalis diagnosed through an EPS swab or semen sample submitted to a lab? Some here have contemplated the presence of E. Fascalis as normal flora of the urinary tract. Please keep informed if it comes back. Thanks!
marco62126 michael82149
Posted
Has anyone else experienced severe intestinal/stomach issues with their prostatitis similar to irritable bowel syndrome? I noticed when i was on a 6 week course of levofloxacin it actually helped with my issues somewhat but they've returned along with prostatitis and slight urethral discharge. Urine tests and colonoscopy still showed nothing. only test I've had showing anything was from NextGen labs back in June and that was for the urine. Infectious Disease doctor didn't want to treat based off that test because he felt it is an unreliable test -_-
sukhdeep75203 michael82149
Posted
hello plz help me ?
everything started with testicle pain. doctor found ecoli in urine culture and put me on ciprofloxin and nitrofurantoin for 40 days. testicle pain was gone. after finishing course of antibiotics i have spasm in pelvic & urine leaking. its mild type & not serve pain. recently i done urine culture and semen culture. both came negative & no puss in urine. urine is rarely burning. but sometimes i have heaviness in pelvic & thigh. which is gone after few serving of noni juice. and come back after few months. can someone tell me what's that. is it chronic bacterial prostitatis? sometimes I have burning semen?