Flare Management
Posted , 10 users are following.
Hi all,
Advise needed please, my last posted question was when is to much toooo much.
I was very grateful for all the encouragement.
However, having felt well through pacing definitely have done tooo much.
Planning a vintage type garden then making the Apple crates to go in it, was nothing short of stupidity., I have been in and out bed all week and in a lot of pain.
I am on 10mg pred and have been for a few months, would anyone advise me to increase this for a few days.
Fatigue so bad I haven't walked my pup, thankfully have large garden, need to get up and at it as they say.
I hope you are as well as you can be.
Julia
0 likes, 36 replies
Dirk_St._Clare julia85224
Posted
Hi, I am new to this discussion only found the site today. I would certainly increase the pred. For a few days then slowly cut down there is no rush to cut back, my doctor told me take more if needed don't be in pain, enjoy life and don't do to much at once and take a rest when needed.
julia85224 Dirk_St._Clare
Posted
Hi,
Thank you for you're prompt reply.
Welcome, fab site and a wealth of knowledge.
I was reluctant to increase as I have three attempts at reducing to 9mg, and feel stuck on 10mg.
Rheumatologist I saw in April 16 was annoyed I had only reduced from 15mg to 11 in under twelve months.
Needless to say I haven't seen him since.
Drs at my surgery are supportive but I dont feel like I am making any progress and recently been diagnosed with osteoporosis.
Apart from that, just need to get "vertical".
Hope you are well.
Julia
Michdonn julia85224
Posted
julia85224 Michdonn
Posted
Hi,
I am seeing an " osteoporosis nurse" in a couple of weeks, my Dr wasn't that helpful when I asked the best way to manage the condition, following the the results of the scan.
Hips not good and back worse, leafy veg when I asked about Vit k, which I have seen mentioned on this forum and the osteoporosis one, he said I didn't need that.
Wait and see what the nurse says.
Falling apart, ha, not really.
Take care
Julia
Michdonn julia85224
Posted
julia85224, calcium, magnesium, vitamin D3, K2, MSM and walking are all a help. Just another bump in our bumpy journey.
Don't know if I can send this to you, it might help you. Good luck on the rest of your journey. 🙂
Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.
http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts
http://patient.uservoice.com/knowledgebase/articles/398331-private-messages
Michdonn julia85224
Posted
julia85224, tapering from 17.5 to 15 bad morning feel PMR pain, up Pred to 20 Slack off on activities a bit, hopefully, I feel better in a couple of days and can continue my tapering.
Good luck 🙂
julia85224 Michdonn
Posted
I hope you feel better soon.
Take care.
Julia
Michdonn julia85224
Posted
Dirk_St._Clare julia85224
Posted
good luck
Michdonn Dirk_St._Clare
Posted
I agree, my Rheumy controls my Phed supply, we disagree, but to some point I must follow her directions. I am not happy about it! No other Rheumy in the area, I have checked and asked! But still kicking! 🙂
sandy65909 Dirk_St._Clare
Posted
I have been tapering from 25 mg to 24 mg. Alternated dose 25one day 24 the next for a week then 24 mg.(14 mg at 5:00 am and 10 mg at 3:30 pm). I have slightly more pain in arms but it's bearable. I thought I would do this for another week...making it 2 weeks before lowering another 1 mg. Do you think this is too ambitious? I am in no rush. I thought I would use the 26 day DSNS method around 15 or 10 mg. Suggestions please.
Michdonn sandy65909
Posted
sandy65909, I am doing modified DSNS under 20 mg. Will do full 52 day DSNS under 10 mg, think positive with a smile on my face. 🙂
sandy65909 Michdonn
Posted
Michdonn sandy65909
Posted
sandy65, I am using a 3-1, but you can use 4-1, 5-1; DSNS is 6-1.
1 day new dose, 3 days old dose
1 day new dose, 2 days old dose
1 day new dose, 1 day old dose
1 day old dose , 2 days new dose
1 day old dose, 3 days new dose
16 days see how you feel. Today I did not feel good, and increased will reduce when no PMR pain again hopefully in a couple of days, I will drop back into the cycle again, thinking positive! 🙂
sandy65909 Michdonn
Posted
My sleep is now disturbed. I wake up after sleeping about 2 hours, eat oatmeal, take Advil PM, watch TV and go back to sleep until 5:00 am dose. Stay up all day.
Michdonn sandy65909
Posted
sandy65909, yes I started at 22.5 mg to 20, 20 to 17.5, 17.5 to 15, minor flare bump up to 20 again, will see how I feel in 3 days on 20, if good will reduce down to 15 again and continue on. I did not stay extra days between reductions. I wanted to reduce by 2 mg, but Rheumy wanted 2.5 every other day, so I am doing 2.5 but on DSNS. Hope that explains what I am trying to do. Good luck on your journey, think positive and keep smiling, 🙂