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Flare Management

Posted , 10 users are following.

julia85224
julia85224

Hi all,

Advise needed please, my last posted question was when is to much toooo much.

I was very grateful for all the encouragement.

However, having felt well through pacing definitely have done tooo much.

Planning a vintage type garden then making the Apple crates to go in it, was nothing short of stupidity., I have been in and out bed all week and in a lot of pain.

I am on 10mg pred and have been for a few months, would anyone advise me to increase this for a few days.

Fatigue so bad I haven't walked my pup, thankfully have large garden, need to get up and at it as they say.

I hope you are as well as you can be.

Julia

0 likes, 36 replies

36 Replies

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  • ViktoriaH
    ViktoriaH julia85224

    Posted

    Hi Julia, it sounds as though you've been doing a lot of physical and mental activity because you've been feeling good - uh uh, PMR is not happy with this and is telling you to definitely slow down, rest, and perhaps go up a couple of mg to get the inflammation back under control.  If you only increase for a few days you can go straight back to your 10mg.dose ... BUT, big but, be gentle with yourself and don't overdo it .. we've all been there, thinking oh great, I feel really good, I'll just do this, that and the other.  There's always a complaint from the PMR department frown  Take it easy and hope you feel better very soon, vertically after horizontally for a bit!

    • julia85224
      julia85224 ViktoriaH

      Posted

      Hi,

      Thank you for you're prompt reply.

      You are so right, I was thinking the other day how well I had been feeling and the jobs I had completed, mainly adding twelve foot onto a large garden by taking out a hedge, utter madness, then making things for the front garden too.

      I have always been lucky and had a lot of stamina, Hmn, not anymore.

      I appreciate you're kind words.

      Hope you are well.

      Julia

  • margaret89358
    margaret89358 julia85224

    Posted

    Hi Julia I started on 20mg of prednisolone in March for three weeks then went down to 15mg i am now reducing 1mg each calendar month. I have taken a lot of advise from this forum, reading what is happening with other PMR sufferes, I do get days when I have over done it but I rest and then take it easy for a couple of  days which enables me to still take 11mg which I have been taking since August 1. I am trying to,be sensible and listen to my body, so taking it easy having a good book to read takes my

    mind off all the things, I wish I was doing but I know by taking it easy I will be able to

    achieve those goals. I love Michdonn's advise keep smiling😀 Which is what I try to

    do.

    Take care Julia keep smiling we will all beat this together.

     

    • julia85224
      julia85224 margaret89358

      Posted

      Hi,

      Thank you for you're kind words,

      we will beat this and keep smiling.

      I as always need to sensible for more than a day.

      Tut tut, I am still in denial after 18 months.

       Take care,

      Julia

    • margaret89358
      margaret89358 Michdonn

      Posted

      Hi Michfonn

      I love your attitude  to how you feel with PMR. I have adopted it, I will not let it Control  my life.  And I will keep smiling. 😀😀😀

    • Michdonn
      Michdonn margaret89358

      Posted

      margaret89358, a few words to live by (It take courage not to be discourged. Ben Ferenca) . Worked as a ski instructor all last winter and thinking positive for the up coming season. With a smile on my face. 🙂

  • nick67069
    nick67069 julia85224

    Posted

    HI Julia, we have all done it... when we feel good, just like energizer bunny, we do too much. I usually rest, increase dose for one to two days to clear accumulated inflammation and then go back to previous dose.  I would increase at least to where were you one level before ( I am guessing 12.5).  As long as the increase is less then one week, it is OK to go right back to 10mg.  Hope that helps.
  • EileenH
    EileenH julia85224

    Posted

    Increasing the pred will not deal with DOMS, delayed onset muscle soreness. It will help with PMR stiffness and soreness due to inflammation. DOMS is different - it is the response of your muscles to being asked to do too much - the pred doesn't change the disease process, it continues to chug along in the background and makes your muscles intolerant of acute exercise and also unable to tell you that you are doing too much. You have to learn to recognise your limits and keep within them to avoid the problem.

    There are things you can do, there will things you can't do without making yourself ill. It is your choice and no-one can make it for you. Everyone has been there - when you are new to PMR you don't really know your limits and some people don't make the connection between the good and bad days: you have a good day, you do too much and then you have a bad day. On the bad day your rest more - and so you have a good day. 

    But that list of tasks in that time span would make me quail when healthy - you need about 10 times as long with PMR and you also have to insert rest days between the active days!!!!

    • Dirk_St._Clare
      Dirk_St._Clare EileenH

      Posted

      I am a 70 year old man started taking pred. 2 years ago started at15mg now down to 6mg I have split mine up 2 1mg in the morning because I am moving around all day & 4  1mg at teatime that way I wake up in the morning feeling ok otherwise I can't move when I wake up. You have a life enjoy it don't let stop you doing what you want to do. Good luck

    • EileenH
      EileenH Dirk_St._Clare

      Posted

      If this reply was aimed at me - there is not a lot you can tell me about managing PMR! I first had symptoms 13 years ago at the age of 51 and managed it without pred for 5 years - before finally being given pred which I have been taking now for 8 years. I have a life - a very good life and do pretty much everything I want to. Skiing went - but other factors were also involved. I am on a form of prednisone you take at night - so have no morning problems at all.
    • julia85224
      julia85224 EileenH

      Posted

      Hi Eileen,

      Thank you for you're reply,

      I have been really silly and paid for it, I have felt  really ill.

      You are so right 're, good days, just get cracking which is what I have always done.

      Sensible would be to do one "small" project one day and rest the next.

      I am sure all would agree, nothing worse than the "mind willing and body weak".

      Hope you are well.

      Julia

    • Michdonn
      Michdonn Dirk_St._Clare

      Posted

      Dirk, I in 8 days I will be 80, last winter worked 4 to 6 days a week as ski instructor, skied 5-7 days a week, plan to do the same this winter. I am having some problems with my balance so I have not been riding my bicycle, but normally walking 15,000 step a day, first 5,000 swing 5 lb weights. I work every day trying to get better and stronger. Some days I over do it, like the other day, backed off increased Pred and only walked 10K steps with no weights. Today going out with my weights and see how I do with a smile on my face. 🙂

      Life is good!

    • Michdonn
      Michdonn sandy65909

      Posted

      Thanks sandy65909, sorry to tell you I am a guy. Keep smiling 🙂

    • sandy65909
      sandy65909 Michdonn

      Posted

      No need to be sorry! You still rock! Thanks. For making me smile.
    • Michdonn
      Michdonn sandy65909

      Posted

      We got to keep smiling in this crazy world. Plus stay positive that we will finish this PMR journey. SMILING 🙂

    • sandy65909
      sandy65909 Michdonn

      Posted

      I'm smiling laying on my bed. Just ran out of gas. Have a great weekend. I'm going to the theatre tomorrow (New York City) to see Bronx Tale. Not used to such a long busy afternoon. Going out to lunch then the show. I'll rest in the morning.

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