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FND

Posted , 17 users are following.

Essexgirlinpain
Essexgirlinpain

Just been diagnosed with fnd (functional neurological disorder) and finding information difficult

I'm awaiting mri scan to rule out ms but if it's all clear this is my diagnosis.

Has anyone else been given this diagnosis?

A similar condition is conversion disorder, apparently.

Beginning to feel like I've been given this result as they can't be bothered to look for anything else, and as far as I can tell many medical persons think it's 'alll in your head' and therefore not real 😕

2 likes, 19 replies

19 Replies

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  • scott6672
    scott6672 Essexgirlinpain

    Posted

    From what I am seeing it is an umbrella term.   It's kind of like saying someone has "a bug" which could mean anything from a cold to flu to pneumonia.  I have a diagnosis of myalgia which means muscle pain.  Until they find the cause that is what they are going with.
    • kim2713
      kim2713 scott6672

      Posted

      You have to love the vague diagnoses they provide when they aren't sure..
  • Rockers
    Rockers Essexgirlinpain

    Posted

    From my experience the most popular diagnoses you get in this kind of case is anxiety or depression. Once a doctor send me to a specialist for Autoimmune Disease. Well the specialsit could not fit my symtoms into any of his drawers and was complaining why I was refered to him.
  • kimfndaction
    kimfndaction Essexgirlinpain

    Posted

    If you haven't done so already please find our support groups on Facebook and have a look at our website fndhope.org. It is a real diagnosis with neurological symptoms and with awareness doctors are slowly moving away from the it's all in your head outdated theory, in the same way many health conditions have. Hope that helps 
  • Heather2612
    Heather2612 Essexgirlinpain

    Posted

    Hi.

    I was misdiagnosed as having FND but turned out to be vitamin b12 and vitamin d deficiency.

    My b12 level was 140 but it was initially dismissed. B12 is not a routine test. Ask for the test and ensure you receive a printout of your results.

  • Essexgirlinpain
    Essexgirlinpain

    Posted

    Hi sorry been away from the forum, symptoms are and have been:

    Tremors in arm shoulder leg and hands,

    Dragging my right foot

    Let weakness and arm weakness and both hands

    Sight issues. Blurry and cross eyes and kids of left eye vision in waking during the night

    Dizziness

    Forgetting words in speech and writing

    Tingling and kind and needles

    Facial painful caps

    Burning feet

    Crawling skin

    Overheating

    Insomnia

    Let pain

    Back pain severely

    Think that's it lol

    • yvonne15472
      yvonne15472 Essexgirlinpain

      Posted

      Are you under alot of stress or have you had an accident of any kind leading to all the symptoms? You look such a young woman to be experiencing all this trauma. I'm trying to be helpful but only you know what your own situation is as regards the relationships you have with family and friends, are they reasonably ok? I know lots of psychological causes can be at the route of what is really wrong. Question yourself as to what you truly believe is wrong with you. Do you have any gut feeling or is there any medical history in the family which might point to what is causing all your symptoms? I think there's usually a message you get yourself if you look into your own soul as to what is at the route of your problems. Do you believe they are purely physical or do you think they are partly emotional and tied up with your past? I ask this because I think we're all victims and products of our past to some extent and the body reacts according to our coping strategies. We're all unique human beings, but I think listening to your own intuition may be the secret to all of this. I am just going by my own bad health issues. I've have always found that whenever I have had them they have always been when I am going through too much stress related stuff. Did you have a happy childhood and a good start in life or am I barking up the wrong tree? If I am forgive me me for my take on all of this, but I just welcome the day when we all take more responsibility for our own wellbeing. I just believe that it's the only way forward now and in time perhaps that's the way it will become instead of the NHS being expected to wave a magic wand to cure us of everything we suffer. They are not magicians after all. I hope you get to the route of what's causing all your physical symptoms anyhow and I trust it won't be anything life-threatening. It could be a genetic illness when it's diagnosed properly.
  • tammy58456
    tammy58456 Essexgirlinpain

    Posted

    My husband collapled in January and left him unable to walk or stand then last night while sat on the bed his legs just wouldnt move at all for a good few hours has any one else had this
  • Bubblelicious23
    Bubblelicious23 Essexgirlinpain

    Posted

    I have the same issue. They diagnosed me with fdn on wednesday. They were able to rule out MS, Parkisonns and a brain tumor, which is awesome, but i still don't understand what the hell is going on with me. It is very fustrating. They told me to go and see a nuerophyscologist which i can not see until sept. 20th.  All I want to know is how to deal with this and if there is a better explanation of what is going on instead of them telling me ot ignore it and it will go away. I have had tremors in my right arm, slurred speech and now i limp when i walk.

    • Essexgirlinpain
      Essexgirlinpain Bubblelicious23

      Posted

      Hi Bubblelelicious23

      My fnd diagnosis i think is wrong .

      I've since been given a different diagnosis by someone else which seems totally

      All I can say is keep asking for answers. Find a gp that will send you for more tests

    • sandra64276
      sandra64276 Bubblelicious23

      Posted

      Hi

      I have the same symptoms. Nothing shows up on ct scan or mri. The problem is where your brain is normal but functions incorrectly. Its usualy caused through a stroke, anxiety or high level of stress ofset from a severe migrain. Its called Functional Nurological Symptom Disorder. U will will need an anti depressant and go see that physiologists as they can diagnose and treat u. You will need to do rehabilitated testing to help u. Hope that helps.

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