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FND

Posted , 17 users are following.

Essexgirlinpain
Essexgirlinpain

Just been diagnosed with fnd (functional neurological disorder) and finding information difficult

I'm awaiting mri scan to rule out ms but if it's all clear this is my diagnosis.

Has anyone else been given this diagnosis?

A similar condition is conversion disorder, apparently.

Beginning to feel like I've been given this result as they can't be bothered to look for anything else, and as far as I can tell many medical persons think it's 'alll in your head' and therefore not real 😕

2 likes, 19 replies

19 Replies

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  • amy01943
    amy01943 Essexgirlinpain

    Posted

    Hey! I don't know when this discussion was, but I hope you have found some help.

    I started two Facebook support groups for people suffering from this condition; one geared more towards younger audiences but if you feel young at heart, or are a parent or carer of a younger sufferer of it or a friend of someone with it then it may be of benefit. It's called Younger FND Fighters. In the group we support one another, discuss symptoms, top tips, share advice and have cool events specific to the group smile

    I also created another group, more geared towards Nordic patients with FND or patients who live there with it, as it is not so well-known there. I study there and wanted to spread the word that we can all support one another and that people are not alone. This group is called Funktionella Symptom- Nordiska Gruppen.

    An admin from the younger group has also just created her own website which is a fantastic mixture of informed advice and is thoroughly researched. It's a great source of information and top tips, along with comprehensive guidance, scenarios, fun ideas and personal accounts, struggles and achievements. I would highly recommend it for people with chronic illnesses and especially FND, but also a great read for their families, friends and anyone trying to gain a deeper insight into this often challenging world. The website is called www.fndlifewithoutlimits.com

    Hope this help in some way, and that you are doing as well as possible. 

    Take care! 

  • sandra64276
    sandra64276 Essexgirlinpain

    Posted

    Hi, I have to say I have the same symptoms as you and I also getting a ringing in the ears, tire quickly and get fatigued. I had a stoke and since then I have all of the above symptoms as u. Regularly I have a non epileptic symptom. U feel very weak quickly, slured speech, weaknes in the left arm and leg. Migrains u wouldnt normsly get and when its all over I sleep for up too 3 hours. Stroke like symptoms. Drs say its Functional Nurological Symptom Disorder. Google it and look under Wilkapedia. I have been told if treated early u can recover. Its been 9 months now and still no treatment. They dont say what time frame is early and my symptoms are getting worse. Hope this helps.
  • alexa_31296
    alexa_31296 Essexgirlinpain

    Posted

    You are right on that one , FND is actually extremeyl rare Id suggest flying to mayo or filling out a form 
  • diane73605
    diane73605 Essexgirlinpain

    Posted

    same here been suffing with headache over sweating then cold crawling or something up my legs i get jaw pain brain not feeling there i cant stand for long numbness in fingers & hands legs also shake sometimes & no energy always tired & no mood no happy hormones

    always feel like i've got flu 24/7

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