Food help

Thankyou linda been to docs this morning doesnt seem cocerned so need to do everything i can to get rid of this chest pain 😣

when mine is really bad I take 30mg Lanzoprazole twice a day and the other thing my GP suggested was Buscopan as it relaxes the gut I wasn't sure it would help but it did.

L.

I take lansoprazole 30 mg once a day been on them for years as endoscopy said gastritis but this is first time ive ever had this sore chest and lump in throat . Told today thyroid fine and all other bloods still scared though x

Plus the fact im scared , worried and constantly looking in net is probably making things worse . Im my own worst enemy xx

Don't be scared Carole, I was too, but the stress just makes it worse, like you Just recently I had the chest pain right through to my back right up into my right shoulder  the pain was awful, many of the people on this Forum have experienced the same, Did your doc tell you to up the Lanzoprazole I did until it settled down.

Try not to worry, here for you if you just want to talk.

L.x

 

Thank you its much appreaciated x

OMG had that pain, like heart attack. I take diazepam to relax it. It's dreadful. Have MS so take baclofen and that helps too. xx

Thanks karen ill try that . Do you ever get a lump feeling in throat x

Yes every time my reflux plays up xx

Thanks for that info Karen I will give that a try, often the simple things work the best.(if you know about them)

L.

Tonight the pain in my chezt been really bad and spitting up white foamy spit . Is this normal for reflux . Everything i put in is a sign of oesophegal cancer 😭

Yes darl it's all part of reflux especially if it's a flare up. I have suffered 20 years now with it, it's awful. Had had loads of bloods done last week to reassure me cause I throught I had stomach cancer all come back care. Peptic liquid is also very good and eat little and often. I was also told by dr not to eat after 7 on a night xx

Thankyou x

Hi Linda I came across it on a site I have done a lot of research into reflux as I have had it over 20 years. Anxiety and stress are the worst things to set reflux off. Also drinking pomegranate juice helps xx

Your more than welcome xx

I also get white foamy spit when in a flare up, try to stop worrying Carole I know its not easy when you in so much discomfort, but if your going to google try looking for the positive things like can  reflux cause!!!!, rather than looking at the cancer sites, your among friends on here and we have all been there keep your chin up mate.

L x

Thanks linda im just going to ask on this site and not google anymore as your right its making things worse . Im away out to buy a cabbage x

Hi Carol, Linda is right try to stop googling things. I know it's hard but my dr told me off for doing it and I stopped. Think positive darl. We are all here to help each other xxxx

Thanks karen my doc told me at 44 its highly unlikley to be anything more serious . Im eating cabbage but dont think my chest pain just as bad as yesterday. Keeping fingers crossed . This is my first time with this as normaly its gastritis i suffer from but i take my hat of to each and every one of you who has this . Thanks for being here its good to let it out 😊

wow, thanks for that, must try as I've had this for years with little or no relief. 

Hi Carole it takes time but it will work. I'm 50 and going through menapause to which makes my stomach 10 times worse xx

Cabbage is horrible but will carry on . Pomegrate juice nice though . Do pro biotic yogurts work

mine started as gastritis about 20 years ago and has over time developed into oesophagitis/ acid reflux when it is really bad I can feel what I am eating passing a sore point right in the middle of my chest, but like most of you i have other things going on with my immune sysytem RA, Fibromyalgia and Sjogrens Syndrome  all of which can affect your gut, I know once I got my diagnosis of all of the above I made my mind up then that non of it was going to take over my life and as best I coud I would be in control of it not it control of me. mostly it works.

L x

Hi Carole yes pro biotics do work and also natural yogurt does. Half on a morning and half on a night. Mines just flared back up today, my own fault through, ate a sweet chilli wrap as I'm on holiday lol xx

Thanks karen hope your not too ill and it doesnt spoil your hols . Im feeling slightly better .Been watching what i eat and eating cabbage and drinking promegranate juice but have women this morning with kinds ulcer at back of throat . Panic set in but then thought my body been through the mill last few days so prob just run down . Im learning ha ha . Enjoy your hols x

Hey karen hope you enjoyed your hols . Just a wee update pain in chest gone and feel fine except for 2 things my lump feeling in throat is still there and my rib cage kinda aches but only now and again hiw long does it take for the throat part to go away . Sorry for all the questions this is all new to me x

Hi Carole glad your feeling abit better. I can have the throat feeling for up to 2 weeks at a time. Try to ignore it and drink plenty of water that does help. Your rib cage is anxiety to it will go. I enjoyed my holiday thank you for asking. Ask any question you want darl I don't mind xx

Thankyou . You may regret saying that 😉

lol I don't mind trying to help anybody, we're all in the same situation. Just nice to talk to other people xx

Forgot to mention my dr as just told me to start drinking KEFIR smoothies for my stomach she as them and says they really help. Got some yesterday and they taste lovely xx

Ok ive never herd of them does it come made up or is it milk and you make your own xx

You buy them made up darl xx

Katen i have looked everywhere and cant find they smoothes where do u get them x

Hi Carole I get mine from Sainsbury's xx

Thanks karen . There is not one around here but ill see what i can do . Was out last night and just drank cold water ( very cold ) the pain in my chest was terrible had to come home can colx water irritate it 😨

Yes freezing cold water does irritate I love it but keep it out of fridge to warm up abit. Have you tried remagel tablets, there good xx

No i havent im a bit gutted as thought last week i was on tbe mend and wham im back to square 1 . Going to try aloevera and manuka honey they say its good x ? Thanks Karen its good to have someone to talk to . Hope your well x

I've managed to keep my stomach settled now for about 3 weeks, so eating quite well again, thank god cause was starting to loose weight with it. Yes I well thank you. I'm always here to talk to if you need to xxx

Hi Both, sorry to hear you are suffering again Carole, I meant to say the other day when we were talking the Gastroenterologist I have been under for years always reccommended that I only took Lansoperazole when I was in a flare up, and to stop them when it settled down, and to avoid the things I know can trigger it one of which is chocolate within hour of eating  I am in agony HIs theory seems to be the longer you take something the less effect it becomes over time as your body gets used to it, he used to say its a bit like talkng a pain killer in case you get a headache you wouldn't do that. so don't do it with the PPI

L xx

Ive been on them for years as when i tried to come of them within a couple of weeks my gastritis came back . Problem is i dont know what my triggers are as first time ive ever felt this way . Ive lost over a stone in last 2 weeks as trying to stay on bland low fat food . I dont have heartburn just get pain behind breast bone .im scared to try food incase it comes back worse x

Hi Carole,

I am sorry to hear how much you are suffering but can relate to what you are saying I went into a really bad flare up a couple of months ago and also cut out things I thought were making it worse,because like you I was really worried, I also have lost about a Half a stone in weight that I can ill afford to loose as I am already as skinny as a rake, my pain is behind breast bone right through to my back and up into my right shoulder, you need to try and get something into you have you tried High Calorie drinks, your chemist may be able to advise you

Good luck  L x.

 

Thanks linda . To be honest the weight loss is the only good point out of this . ( few more stone would be good ) . I feel much better and lump in throat not as bad but every now and again i get a slight pain behind breast bone and think oh no here we go again but never comes to anything . Its the first thing i think about when i wake up so maybe im making things seem worse because im worrying about it . Plus my hubby keeps saying im going to cause more acid as im not eating enough and feeling hungry . Its like a vicious circle lol x

Had bad day lump in throat really bad and spitting up white foam dont really know how it got worse again as sticking to bland diet . Can i just ask how long do these flare ups last and does this mean ill never be able to enjoy a meal out again or take my kids to mc donalds . I know that sounds silly but cant seem to see a light at end of tunnel .......feeling down 😢

Hi Carole sorry to hear you had a bad day. When I get flare ups they can last from a day to upto 5 weeks, it's awful, I've lost weight with it and have to be so careful what I eat. I just eat children's portions now xx

Hi Carole,

sorry to hear that, I too had a bad day yesterday after being ok for a couple of weeks, like you went through what I had to eat and drink but nothing I could put my finger on, hope it clears up soon.

L xx

Thanks hope this ends soon really getting me down x hope u feel better soon x

But when it clears up can you go back to eating normal food or do you have to stay on this bland diet x

Hey Karen . Im freaking out . Lump is slightly better and pain in chest better but have this weird sensation that there is gunge / mucus in my chest . Still feel something making food stick . I keep telling myself if it was C ...then i wouldnt feel better but i cant get it out of my head . Docs not concerned are sending me to an ent because of lump feeling . Said i shouldnt have acid reflux as im on meds to stop it so whats wrong with me then . I cant sleep its on my mind 24/7 . 😢

Hi Carole I'm on meds for acid reflux and still get it really bad when my anxiety kicks in, same with the lump feeling to. Honestly darl you have nothing to worry about I feel my chest is full of mucus but when I cough there's nothing there xx

Thankyou karen . Its good to talk to someone . I just need to stop overthinking . Thanks again . Xx

Hi Carole,

Karen is right try not to worr y, I am also on meds for acid relflux and whenI was still getting stuff sticking and lots of mucous I was convinced that the clinicians had missed something and got myself into a right state, so you are not alone, try not to worrry.

L x

Thanks linda . Ive been here before worrying over something and it made symptoms worse you would think i would know better by now . Its great to have you and karen to ask stuff xx thankyou im settled a bit more now x

Your welcome darl, here anytime you want to talk xx

that's what we are here for to help and support each other.

Take care

L x

To be honest dont know what id do without you and karen this last few weeks . Could do with getting another endoscopy at leat that way i would know and could put my mind at rest but takes 12 weeks to get app . Hopefully will be on mend soon xx

Awwww darl we will always help, that's what we're all on here for. Like I said you honestly don't have anything to worry about. Mine as lasted up to 6 weeks before. I drink plenty of waster now and it does seem to help xx

New symptoms today . Have a really dry cough and a wheeze in my chest . Why is things carrying on im taking lansoprazole ajusted my diet raised my bed but still feel rubbish .

Double your medication darl it won't hurt you. When mine plays up it can last upto 8 weeks. Stress plays a magor part of stomach problems. The worse you feel the worse your stomach will be xx

Oh Dear Carole,

If its any consolation I also have the wheeze and dry cough especially at night I know that Acid reflux can affect your sinuses and mucous runs down the back of your throat when you lay down making you cough, the only other thing I can think is maybe its weather realated and probably something to do with the high pollen count and not related  to our reflux we tend to blame everything on that. how many times a day do you take Lansoprazole are you having gaviscon before you go to bed?

L x

 

I take it once a day and sometimes gavisgon before bed but not always . Xx

Thanks . Think my throat clearing is making my hubby go mad . 😁

I know it's annoying isn't it. I don't know I'm doing it half the time xx

Back at doc today ( different one ) wanted to ask about endoscope but he said everything i said was acid reflux and no need for scope . That he wasnt worried and i shouldnt be either . Guess they should know what they ate talking about . So onwards and upwards going to try not to stress anymore and maybe that might help to clear this up . .........hopefully xx

Hi Carole they wouldn't do me the camara cause they said they weren't worried. And I trust my dr one hundred per cent darl. I've lost abit of weight cause if this but I've cut back on my plate sizes I've stopped eating chocolate, crisps and crap and touch wood it's helping, plus I'm not stressing about it anymore. You will get there love. Always here to talk xx

Yeah ive lost weight too but like you ive been cutting out all the rubbish and trying not to eat high fat foods . Only good thing to come out of this xx

Hi Carole,

Ditto to what Karen has said, know it isn't easy but do try to stop fretting, I have been there and it definitley makes it worse, your gut controls so many things in your body, one of which is the Vagal nerve that controls your gut heart and lungs and apparently when you get up tight it reacts in a way that upsets the gut flora.

Here for you  L x

You will do fine darl with help and support from here. Just learn to de stress darl xx

Yer Linda my dr told me the first thing that gets upset when your stressed is your stomach and by god it's right. I'm doing ok at moment been settled about 5 weeks now xx

Glad your doing ok my pain all away just still lump and mucus feeling but i live in hope xx

It will clear darl xx

Hope so karen got up today took lansoprazole and feel as though it got stuck . Its always same bit right behind breast bone think thats why i worry but surley if it was anything serious it would get worse and pain away apart from this heavy feeling in chest . Im confused every day something new . Actually felt better yezterday now feel rubbish again .plus burping like crazy xxx

Hi Carole yes that's were it gets me behind the breast bone sometimes I have to take my bra off cause it hurts that much. But it will clear I know I keep saying it but try to ignore it darl xx

I'm such a worried and I'm scared . I don't feel doctors taking me seriously . I know I'm probably making things worse for myself . It's just the fear of the unknown x sorry I'm such a pain xx

Your not a pain at all you sound just like me darl lol. I know it's worrying but please be reasurred you having nothing to worry about. I've had it over 20 years I think I would be dead now if it was something serious. I'm worrying at moment about weight loss but I know it's cause I've cut all the crap food out but still can't help worrying so your not on your own xx

Hello ladies I'm so sorry to jump in on your discussion but I'm desperate to find someone else who might understand my symptoms. So much of what you both mention is exactly what I have but the doctor won't take it seriously! The trouble is that I get days when I feel fairly good and the others like today ( worst ever) where I just don't know what to do with myself. It's scary and debilitating. I have the pains you describe and the lump in my throat. Food getting stuck etc but it's the feeling of a volcano in my tummy that's unbearable. It's jumping and lurching and bubbling and then triggers my ectopic heart beats. I'm breathless and cough constantly. I'm scared to move or eat or not eat. Have you experienced this horrible feeling in your stomach almost like a hot spring gurgling? I just want it to stop and I'm scared 😔

Hi Raffa 

acid reflux is the most scary thing because it effects so many parts of our body. 

Why your heart is beating rapidly is because when the oesophagus is inflamed it touches nerves in our chest area,  only way I can discribe it is like tree branches and it feels like a heart attack. That causes anxiety and that causes us to produce more gas, hence the tummy issue. this went on for a year which caused me health anxiety and other stresses in my life thought I was going nuts with it all. I took my self of the lansoprozol which had stopped working after 5 years, i wanted my body and mind to have a break so I asked my gp for antidepressants so I'm on 25mg of sertraline and it's the best iv felt in a year, acid reflux iv got under control with just gaviscon when needed and  avoiding trigger foods.

anxiety was definitely the cause of my reflux, I still have the odd days but I'm coping at the mo.

i also have a teaspoon of manuka honey before I go to bed it coats the oesophagus soothing it. But make it the last thing you have.

hope my story helps. 

Hi Raffa,

you are not alone when in a flare up even those of us that have lived with it for years get scared it is a horrible condition,I get what you describe in your stomach,and its not nice, as you say you know you need to eat but are afraid to for fear of making it worse.

I also get palpitation with mine as I have Paroxymal Atrial Fibrillation,

there is a nerve called the Vagus Nerve that controls our gut heart and lungs and when that is not working properly it causes all the things we experience, you need to find your triggers and try to avoid them but you must eat, I have to steer clear of chocolate cream and full cream milk and cheese all sets mine off.

Try not to stress out as Julie says it makes it worse,the people on this forum are great and here to help.

Good luck 

L.

Hi raffa yes it's a awful feeling. When I get a flare up I could pull my stomach out, it's that bad. You need to watch what your eating and try not to stress about it cause that makes it worse xx

Hi Julie I'm genuinely so grateful you have all taken the time to reply and although I'm so sad for everyone on here that suffers so badly, it is reassuring to know I'm not alone. I honestly feel I'm going mad sometimes as well. I'm so sorry you have had these problems for so long but it sounds like you've found a way to cope at the moment. I'm yet to find my triggers but definitely stress is the main one for me as it sounds to be for you. I will definitely try the manuka. Thanks again 

Thanks so much for replying. It's so comforting to know I'm not alone or going mad. It does help to hear other people's stories but it's so sad too as it really does affect your life. Why isn't there better treatment? People just think it's indigestion but it's so much worse than that. I've heard about the vagus nerve and that would make sense as my ectopics are definitely much worse when my stomach is bad. I've been taking omeprazol for years but just started lansoprazol but it does make me feel a bit sick and bloated.  I will try and find what triggers mine the most but it does seem to vary. It's sad having to avoid so many foods. Do you take any needs for your heart? 

That's exactly what I felt the other night. I couldn't sleep as the feeling was so awful and I nearly called a doctor but didn't know how to explain it as wasn't a pain as such? I get a lot of pain in my upper back but not sure if related? I find I have a lump in my throat a lot, a cough and food seems to get stuck but guessing this is all things you've heard of. Is breathlessness a symptom because I struggle a lot with this? Thanks so much for replying 

Hi darl yer all the symptoms you are describing are all part of reflux. I've had them all and really bad sometimes. You need to try and find out what triggers it off. Eat small portions of food and often instead of big meals. Drink water. Try not to eat after about 7.30 pm it does help xx

Hi Raffa,

Yes I am on meds for the heart a beta blocker and an anticoagulant,

we are all asking why isn't there better treatment you would think in these days of technology they would come up with something, new rather than just throwing tablets at everyone.

I have been following a story from the the Netherlands where scientists have devised a pace maker for the Vagus Nerve and they are currently trialling it on people with severe RA and it is proving its worth, once the nerve is out of kilter it affects the immune system and all the things we suffer from as I said before it controls the the gut heart and lungs hence the breathlesness we sometimes experience.how long it will take to reach us who knows but if they are looking for people to trial it I will be at the front of the queue.

L x

I had no idea how much effect the Vagus Nerve had on the whole body but that does make a lot of sense. I'm on a beta blocker too which does calm the ectopics but doesn't get rid of them especially when my stomach is so bad. I had a better day yesterday and then bad again this morning. No reason that I can think of but it's ruined my whole day again. Think I will just stay in bed and try not to move but can't do that forever!

Thanks Karen, I definitely need to look at my whole lifestyle. I have been on a restricted diet for years but now anything seems to affect me. Will take your advice for little meals and see how that goes but the way I feel at the moment, I'm too scared to eat much at all

Your welcome. Anything sets mine off now a days. Had it over 14 years now but got worse since I started menapause xx

Hi Carole how you doing today. I've jinx myself, had a pork pie but had just been made so pastry red hot so flared my stomach reflux up today xx