Forced off HRT at 60?
Posted , 117 users are following.
I've been on HRT, very happily, since my menopause at 45 (I'm now 67). My doctor is really pressing me now to come off it. Personally, I believe in 'if it ain't broke, why fix it?'. I am (as far as I know!) in very good health: I walk for over an hour a day, work out, eat extremely well, don't smoke, am not overweight, I'm still working part-time, I don't have any cancer history in my family and feel full of energy and bonhomie! The risks relating to HRT and breast cancer are now proved to be unfounded and anyway there is no breast cancer in my family. The risk, apparently, that rises after 60 on HRT is stroke. However, doctors also say that you are 43% less likely to have a stroke if you exercise an hour every day, which I do. So, is it not reasonable to say that as long as I am low risk, and as long as I feel great on HRT, why come off it? My age group are all one big experiment anyway and in America I know women can be on it till they drop. The question is: can my doctor force me to give HRT up?
26 likes, 445 replies
lyn82834 groovygranny
Posted
Hi I'm excited and relieved to have found this site and to find that there are other people like me. I started HRT at 50 and saw my gynaecologist twice yearly for checks - blood test for oestradiol levels and a scan for endometrium thickness. My does of HRT were adjusted accordingly. This gynaecolist was in my age group and was very supportive He talked about personal and population risks and that my risk was low. He talked of flawed research on HRT. He had a Phd and was a professor in a university. After he retired I went to his replacement - a young new consultant. He continues to prescribe HRT but he is not happy with me continuing on it. He said that he will bring this up every two years. In the meantime I try to maintain good relations with him in the hope that he will continue prescribing. My GP is supportive also but I go to the gynaecologist because of the scan. One major difference is that the previous gynecologist and GP are in my age group and mixing with women who have issues. I want to remain on HRT forever.
sal93720 groovygranny
Posted
Rayna_Dee sal93720
Posted
I sure would like to know a reliable source/internet/store type-to purchase somethig that is much needed... I'm having worse bladder problems since been taken off the premarin.My fibromylgia is worse-aches and pains,inflamnation...etc... The doctor tested me for Lupus. My sed rate is high--- it did come back postive with ANA/with patterns! Went to a rhumey -more blood test-then negative for Lupus-huh?? I just want to feel good again! Estrogen helped me function better....HELP!
dominique64820 groovygranny
Posted
Im not a fan of Hrt because its synthetic but i thought id let you know what my mum has been through. She is 64.
I have recently opted to take bioidentical hrt which im feeling very good on.
If you stay on hrt just keep exercising and eating healthy and avoid any phytooestrogens eg soy
No one can force you to stop.
Best of luck
Dom
sheryl37154 dominique64820
Posted
lily60379 groovygranny
Posted
My story: exactly like yours. I went on HRT at around 47 after going to my GP suffering from hot flushes so bad I couldn't concentrate on my work properly as well as feeling dreadful . I had 13 years on HRT with one trial break in between which sent me back scurrying off to the GP as quickly as I could. Then a couple of years ago (I'm now 61) my GP kept saying about coming off, about breast problems, etc. this horrified me as, like you describe, felt totally fine and wonderful. He then put me on a low dose and gradually I came off completely. I suppose for about 6 months. Over the time I have felt increasingly dreadful, hot flushes, night sweats, awake all through the night, sweating & peeing. Aches & pains, fluey symptoms, joints aching, panicky feelings. In short absolutely terrible. This not helping by uninformed "friends" saying things like HRT causes breast cancer. HRT just staves off the inevitable and once you come off it your back to square one!! Well, all I can say is if this was to continue for the rest of my time here I would seriously consider suicide. My GP has put me back on a low dose and so, I'm once again getting it into my system. I've been restarting it for about a week. Please God give me my life back! And thank you so much for your story.
price6209 lily60379
Posted
Hi Lily, My story is also like yours and groovygranny's, "exactly." I had my annual with my OBGYN last month and I told him if I ever had to get off HRT (I take Estradiol tabs) I'd rather end my life than go through not taking them again. Trust me - you will get better, but it takes months to get back on track. At the end of 6 months you'll start thinking, "I think I can see a light at the end of the tunnel" with each month you'll "gradually" feel a little better. I'm now in my 8th month and feel normal again. During those dark/anxiety filled days, I told myself it was going to be a bad day, so I did things that made me happy - lots of funny TV movies and working in my flowerbeds. If you aren't feeling better by the 6th month then you may need to increase the pill by 1/2 mg at a time. Good luck!
maria58274 lily60379
Posted
Early last year, after nagging from my doctor, I tried to cut down my HRT - literally, as I was on patches - with a view to stopping. Not only did the night sweats, etc, start but I also started with a frozen shoulder which I swear was related. Between the sweats and the extremely painful shoulder, I was hardly getting any sleep. My immune system was totally shot and I fealt dreadful both mentally and physically I persuaded the doctor to prescribe my patches again - about half the highest dose I'd been on, which I'd dropped down to without major problems. It was much against his wishes - he wanted to put me on anti-depressants! Once these got back in my system, I started to feel normal again and I'm sure they speeded up the recovery of my frozen shoulder.
Last week was my 1 year review with the doctor after restarting my patches. I'd got myself worked up, ready to fight for my HRT. Fortunately I saw a new doctor and although she made the usual warnings of breast cancer, she seemed happy enough to continue prescribing, as long as I was aware and accepted the risks. I've also had a similar conversation about "putting off the inevitable". If others can manage without their hormones, good luck to them but some of us seem to have much more severe reactions than others to the lack of them. We know our own bodies and shouldn't be in fear of having the plug pulled on our hormones unnecessarily. Good luck to all you ladies!
lyn82834 maria58274
Posted
Great Maria. We have to take responsibility for our own health and sometimes we know what our body needs. It is important to find a sympathetic doctor who will prescribe HRT. Many are afraid because of some of the studies. I had a wonderful gynaecologist who was also a professor. He saw the flaws in the WW study. He also said that we need to distinguish between population risk and personal risk - often poles apart. I'm 66 and have been on HRT since around 50. I wouldn't come off it. My current gynaecologist, much younger, is not keen on it and has regular discussions. I'm polite and as long as I can get the prescriptions I'm happy. However, unlike my previous gynaecologist, I don't feel that he's on my side. Good luck to all. Don't let doctors dictate what's good for you. It's shocking to prescribe anti-depressants when HRT is what's needed. Women are living much longer now and we want good quality of life.
mary14938 lily60379
Posted
Lily, thanks so much for sharing. I am on a very low dose & Vagifem, and I feel great,I do not want to quit.I am 64.
karen72487 groovygranny
Posted
I came off hrt six month ago and have really struggled, I've tried all the herbal methods, I exercise every day, walking , do Pilates and Body Balance classes, play tennis once a week and eat a good diet.
Ive just decided to go back on hrt two days ago and after reading your comments now feel quite confident to do so.
I would like to thank you all for expressing your views it's been a great help. 😊👍
DramaCoach groovygranny
Posted
I don't think physicians are normally trained to understand research. The nineties research was deeply flawed. For one thing the older experimental subjects were given estrogen after they had been off of it for years. That s a different person than the one who has never been off of it. But in US physicians are spooked by lawsuits. I have had a lot of difficulty staying on it. I am pushing 70. Up to last year, I was feeling pretty well and taking Premarin .625. I had little or no arthritis pain, was doing intense lap swims 2x a week and other things and bone density was normal. Then I had an incident of breakthrough bleeding. Found out I had endometrial hyperplasia. No abnormal cells though. They scraped and got rid of the excess tissue and inserted a progesterone IUD. The insurer didn't pay for it tho they thought it would. So the hospital ate the bill. I had it done because I was blackmailed. They wouldn't prescribe estrogen only. They gave me the estradiol patches which often fall off. Since progesterone was added i have been feeling lousy. My arthritis is very painful and some fingers swollen. I cannot wear my rings. I dread exercise and have less strength. Cannot open jars etc. i have night sweats. Finally persuaded my doc to give me .5 estradiol oral which is dose recommended for osteoporosis. That was the whole reason for continuing it. My mother died in agony due to osteo. I hope this all works. I think the progesterone is awful but what can i do. I do not believe in unnecessary surgery and a hysterectomy because the doc wont give me estrogen is not right. My female doc agrees that research into women's health issues is awful and no money going into it. This is the reason they have to rely on old and poorly done studies.
sheryl37154 groovygranny
Posted
Go, ladies! So glad to read support for continuing use of oestrogen - forever!!! We are not all the same, and lack of oestrogen can affect us badly. Pretend 'natural' rubbish is throwing our money away. It does not work for us.
Going armed with medical science and pushing back on the flawed research that have become mythical truths for some practitioners can work most of the time. It lets these practitioners know that we, too, are educated.
When it does not work, that doctor is not worth looking after our health and paying money to so we just move on, and spread the word.
Good on you all!
karen72487 groovygranny
Posted
I've just come from the doctors and he ask me how long I intended to stay on Hrt? I answered the queen mother was on Hrt all her life. He suggested Flexitine as the side effects are know to stop hot flushes???
I'm hanging on to my aHrt as after been off for six month and now back on for 21 days feel great, more energy happy within myself I'm back in the human raice the flushes are subsiding I'm hanging on to my Hrt
maisie05 karen72487
Posted
Thats great that you are feeling the benefits of hrt now you are back on it.
I started hrt patches 6 months ago age 57 and hope to stay on it for many years.
Take care