Forced off HRT at 60?

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I've been on HRT, very happily, since my menopause at 45 (I'm now 67).  My doctor is really pressing me now to come off it.  Personally, I believe in 'if it ain't broke, why fix it?'.   I am (as far as I know!) in very good health:  I walk for over an hour a day, work out, eat extremely well, don't smoke, am not overweight, I'm still working part-time, I don't have any cancer history in my family and feel full of energy and bonhomie!   The risks relating to HRT and breast cancer are now proved to be unfounded and anyway there is no breast cancer in my family.  The risk, apparently, that rises after 60 on HRT is stroke.  However, doctors also say that you are 43% less likely to have a stroke if you exercise an hour every day, which I do.  So, is it not reasonable to say that as long as I am low risk, and as long as I feel great on HRT, why come off it?  My age group are all one big experiment anyway and in America I know women can be on it till they drop.  The question is: can my doctor force me to give HRT up?

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  • Posted

     Hi

    Have stumbled over this forum while trying to find out if it was just me who wished HRT prescription could be continued after the age of 70 ( my age next year )

    Due to the intransient position of my new G.P (new location , new surgery ) who does not agree with my ex G.P's prescribing , I have been told no more HRT will be prescribed within a few months .

    So.. have been trying to reduce dailyfrequency of KLIOVANCE 1/0.5 HRT tablets . However , I have experienced reduced concentration , more joint aches ( already have arthritis in thumb joints ) fatigue, feeling spaced out and hair loss etc . This cuts no ice with the new G.P. who offers no advice .

    I am principle carer for my 91 yr old mum ( who lives a distance away) I need to be on top form . My mum has osteoporosis/ arthritis , severe degeneration in spine/ hip , pain, very poor mobility etc , so I am also very concerned about protecting my bones from any genetic risk . I have weighed up the risks and benefits( long discussion with ex G.P. ) and conclude a shortened life would be preferable to chronic health problems exacerbated by reduced hormone levels . I know length of life is not guaranteed ( my husband died of pancreatic cancer ) and feel my own well-being will not be compromised by continuing to take HRT into elder age( preferable to a cocktail of medications for chronic age related conditions !) especially as I have been on a continuous contraceptive pill( since the 1960's except for 2 pregnancies ) then HRT in latter years. Feel fit and well , only other meds needed - pain relief gel for the arthritis .Plus making sure I have mammograms etc . I will be interested in the NICE recommendations on HRT due out this month . Lloyds- on- line - doctor would not prescribe for me , so I am at a loss how to go forward . Has anyone explored the efficacy of the non prescription hormone creams ?which are advertised on the internet. Any ideas gratefully received! Maggie

    p.s. The Post Reproductive Health Conference for the medical profession is 17-18th Nov .   

    • Posted

      Hi, I too had this problem but after me having comsulted a specislist in HRT my doctor agred to renew my script. Within 2 weeks I had my life back. Suggest you ask for referral to consultant.

      Good luckx

    • Posted

      Hi Maggie, I too was told that I had to come off the HRT patches because I was too old at about 62.  Am now 65 and have the daily flushes and at night much worse causing sleep deprivation.  Have just seen new doctor because we recently moved and requested to re-start HRT and he flatly said I was too old.  Showed him article on front page of Telegraph which states that the old trials were not conducted correctly and that it is perfectly safe.  He still said no (typical man) and offered me Clonidine instead.  Was horrified when I read the contra-indications for this medicine and have now booked appointment to request a specialist appointment!  Has anyone heard of a good one in Lincolnshire?!

      Will look forward with interest to findings of the conference on 17/18th this month and suggest you do the same as me and get a specialist appointment as these local GP's don't seem to be keeping up to speed on our needs!

  • Posted

    I have the same question. The doctor wants to to quit all of a sudden. She says I can taper off over a month. I don't want to go back to feeling terrible all the time. Plus I already have the beginnings of Ostiopenia so if she takes me off the estrogen won't this advance quickly to Osteoperosis?
    • Posted

      I tried to taper off my HRT by literally cutting back patches early last year.  After a while, my symptoms came back with a vengeance and I started with a frozen shoulder, which I'm sure is also related.  My doctor did not initially want to put me back om my normal HRT dose but reluctantly agreed, when I was adamant.  

      Are you in the UK?  The latest UK NICE guidelines were published in November and is much more positive about the benefits of HRT, which can outweigh the risks for many of us.  Although it talks about starting HRT before you are 60, unless I'm missing something, I can't find anything that specifically says you should come off at 60.  It's worth reading the guidelines (Google NICE HRT or there is a link in another discussion on here) and printing the relevant bits off before speaking to your doctor.  It is your body and should be your decision - you ought to be able to continue, if you accept the (small) risks, unless you have some underlying condition that goes against it.  If you have another GP in the practice, it might be worth seeing them, if your current doctor is totally against HRT for some reason.

      I do wonder about the risks of not taking HRT for women with severe symptoms.  Lack of sleep alone, due to night sweats, must take some toll on your health.  My Mother had osteoporosis and I wouldn't wish that for anybody.  

      Good luck with your doctor, let us know how you go on.

    • Posted

      Hi, I went back to my doctor armed with the new NICE information and have now been on the FemSeven conti patches for three months - what a difference!  I had drawn up a list of everything that was wrong with me since leaving HRT five years ago (am 65 now) and then ticked off everything that had been 'cured'.  The list had originally run well into the double figures but now just two or three little problems that I know are nothing to do with HRT.  The doctor was very surprised when I gave him the list for information purposes but he is now happy for me to continue as long as l want to!  Greaaat ......I now have my life back again!  Do not give up and as others have said on this forum, try a different doctor if you cannot get yours to agree.  Good luck.
  • Posted

    I  sympathise I am in my 70s and since I was forced to come off HRT I have had nothing but health problems.  I have tried every whichway to get back on HRT to no avail.  Like you I never bothered the doctor while I was getting the prescription and since then I've had no end of blood tests and visits to the hospital.  The NHS would save a fortune if they would let us stay on the drug "till we drop".
  • Posted

    I am so glad to read such positive attitudes to HRT.  I had been following the Menopause forum, but it was so full of moaning and wailing about menopause symptoms, looking for miracle treatments but refusing to use HRT because of the negative headlines about HRT (but they never really read the whole study to find out what it incurred - e.g. women past menopause and no longer having symptoms but given Premarin anyway.  Premarin has long been proven to be the worst oestrogen to use.  For the damage to those women's health, they should be criminally liable.  The WHI set back the health of women for decades.).  But some of the women on the menopause forum were happy to take psyche and other terrible drugs with horrible possible side effects.  To be fair, some believed they could not use HRT because of family history, but mostly it was about pushing their fear of HRT.

    I was lucky in that during my hysterectomy/oopherectomy at age 39, my gyne implanted the oestradio pellet immediately.  It was fabulous, except a 12 month one generally only lasted me 9 months.  I topped up with patches until a menopause dr said I could have the pellet implanted earlier.  Then they stopped making the pellets.  On to the patches fulltime.  My skin did not like them and 2 x 100 per week did not last the distance, so I topped up on the 7th day with the daily gel satchet.

    As I live in a hot climate, I recently searched out a compound chemist to make the implant pellets for me.  (No dearer than when I could buy them over the counter with a script).  However the first one failed but it took a while for me to work it out as I also have haemochromatosis which causes the same symptoms as menopause (kind of a double whammy in that department).  3-4 months later I was almost screaming with unusual anger, full body night sweats, head sweats during day, loss of libido, hair failling out, belly getting bigger, etc. etc. and although I told my dr of these problems, had to work out myself that it was oestrogen deficiency and back on to the patches, overlapping them.  It took another 6 months to get rid of the symptoms, nightly head sweats the last to go.

    I had experienced 6 years of sudden and constant head sweating during an earlier period.  But nobody could come up with anything other than thyroid (blood results normal) and menopause (but I was on HRT).  After 6 years of this nightmare, I sought out botox to stop the sweating and went to a botox dr who said she would like to find out the cause - Yippee! so would I.  She referred me to an endocrinologist.

    I was found to have an adenoma on my pituitary gland which was causing excess prolactin.  I did not have the usual symptoms of it but with further research, I discovered that excess prolactin causes our oestrogen to be ineffective.  Therefore, pushing us into menopause.  Women with excess prolactin need extra oestrogen.  As soon as I started taking Carbergoline, the sweating eased.  Such sweet relief.  However, as soon as I try to reduce the medication, the symptoms come back again.  Endocrinologist has no problem with me continuing to take the Carbergoline, and he is all for oestrogen therapy.

    But not all endocrinologists are like that.  One fill in, tried to ram all sorts of threats into me, getting into my face, that I was working hard on withholding from punching him in the nose.  He was of another enithicty, which might explain it.

    My current gp was flipping out about my using hrt, until I reminded her that those studies were flawed.  She could not argue with that.  Why on earth does hrt medication have to refer to and quote the results of the WHI study?  She is much more understanding now after see what I go through with oestrogen deficiency.

    Now I am coming up 65 (26 years happily on oestrogen therapy), and I do wonder at some time, perhaps when my current gp has moved on, if I will come to a road block.

    I am also giving the compound chemist implant pellet another go but I just don't think it works as well as the original (although supposed to be exactly the same).  I am also trialling pregnenolone.  It is the grandmother of hormones.  I am also trying to increase my good cholesterol, which the precursor of our hormones - pregnenolone being the first step after good cholesterol.  Vit D also comes from good cholesterol.  So if your good cholesterol is low, no doubt your vit D is also low.

    The author of the Wisdom of Menopause, a menopause specialist, believes there is no reason to prevent women from using hrt forever.  She advocates bio-identical oestradiol (it is not a 'natural' hormone that required is required to be made up by a compound chemist - but one that is most closely related to our normal oestrogen), and I have always stuck to that, whether it be implant pellets, patches, gels, vaginal pessaries, and oestriol cream.

    So, one year later, how is everyone - did you find a solution?

     

    • Posted

      That should be ... ethnicity ....
  • Posted

    I've been on premarin for many years--am 62 now.(in USA) My new primary doctor refused to refill my med. So-just a few days ago went to obgyn appointment-the nice older man doctor that upped my HRT a few years ago-didn't work there anymore-(retired?) Well-the new doc dilgently and loudly explained all the risks taking HRT.I said I was fully aware of the risks and would still like to take the HRT.She says::"tick tock-you are a ticking time bomb ready to go off- for a stroke,heart attack,cancer and/ or blood clots"!!! OMG- this big woman raised the volume of her voice talking - she was yelling at me! I was speaking softly-I was so humiliated and treated with much disrespect! She said to find another doctor to prescribe that! After a breast exam and pap smear-she said she'd prescribe me a months supply- to wean myself off in a months time--but never called it in! I'll never go back there! She really stressed me out-and --If somebody knows where I can buy premarin from the internet- a reliable source---please message me. I shouldn't have to feel ashamed or guilty for wanting to stay on HRT.I didn't deserve to be treated like that.
    • Posted

      How rude and IGNORANT that dr is.  Why don't drs update their knowledge?  She is still working on old knowledge from research that was found to be flawed.  You are more than likely to suffer from any of those things because you do not have oestrogen in your body.

      Find the relevant information about those studies, print it and take it with you for your next dr visit.  Go armed.  I don't know how the US system works but try a Family Planning Clinic.  Sometimes they have menopause drs, who are more educated.  Ask for estrodiol oestrogen, it is bio identical and also stick to transdermal, e.g. patches, and gels.

      Verbalise your last two sentences if it happens again.  Tell them that you hope they don't expect you to pay for such outdated advice.

      Good luck.

       

  • Posted

    Hi there.

    I have been watching this site for a while now and had a lot to do with an earlier site on Tibolone/Livial.......Have been on this since 2004 and will not be going off it.  Tried all sorts of 'natural' remedies before that.   I take one tab (2.5mg) every second day and that keeps me just fine.  I am nearly 74 years old and as far as I am concerned it is what my body needs.  Like  you I keep well, exercise, and am not overweight.

    In April 26 2016 under Women's eNews there was an article written by Mallory Locklear called: 'This Heart Doctor Wants to Clear Up Confussion About HRT'....Dr Howard N Hodis was quoted throughout.   It is very interesting and almost a complete turn around on what the doctors have been telling us over the last few years.

    Your doctor should not force you to do anything...........take a look at this article and print it out and take it along to your doctor.   I believe a lot of doctors have not updated themselves on HRT.

    Good luck.

    • Posted

      I love reading all the replies.... I've been searching some about Tibolone/Livial.

      Livial tablets contain the active ingredient tibolone, which is a synthetic steroid medicine used for hormone replacement therapy (HRT). It mimics the activity of the female sex hormones in the body.

      Livial contains tibolone, a substance that has favourable effects on different tissues in the body, such as brain, vagina and bone. Livial is used in postmenopausal women at least 12 months since their last natural period.

      Livial is used for:

      Relief of symptoms occurring after menopause

      During the menopause, the amount of oestrogen produced by a woman’s body drops. This can cause symptoms such as hot face, neck and chest (“hot flushes”). Livial alleviates these symptoms after menopause. You will only be prescribed Livial if your symptoms seriously hinder your daily life.

      Prevention of osteoporosis....

      I'm not too sure about that synthetic steriod stuff...Sounds like not for me. Right now-I'm taking 0.625 premarin-and cutting it into thirds (into 3 pills) Taking one a day. I use to take one 0.625 a day. That doctor cut me off cold turkey! I guess I'll do the reduced amount for now. I guess at 62- we should all be glad and lucky to live this long! If anything-I feel that my hormones/blood chemistry has changed greatly in a over a months time...and my body compostion too.I think it takes awhile for the body and mind to adjust.- to lesser amount. I'm kind of set in my ways,change is hard.I don't think I can find a doctor in this area that prescribe any premain for me at my age! I think they want to scare you to death!!

    • Posted

      Hi Rayna

      About one month after posting my plea for help...i decided that i should not be having this problem...why should i suffer in this way...so i decided to become a pain in the rear... and booked an appointment at my GP's...i turned up to my appointment a blubbering wreck...i may as well been invisible...and was told again (in a sturn voice)forget these... its in the past

    • Posted

      Continued from above...

      Shouting at me...she didnt even have my notes to check as the computer screens were down.so as i left her office...i thanked her for nothing and sorry to have wasted her time...but as i left i thought damn it i am not letting them get the better of me...they are treating me as a nobody...i re-booked another appointment with another GP ...and this time spoke on the phone...i told her about the other gp and how i'd been treated...and how i am not being listened to...i poured my heart out to her...and she fitted me in for an appointment within two days...she asked me again to explain what had happened...and was there for a good 20mins... at last she gave me what i wanted...with other blood tests... but now i can relate to the world again...i can walk, laugh, work on my allotment..joined a gym and most importantly have fun with my grand daughter...lol

      If you want something bad enough...be a pain in the arse!!

      Hope i have been of help

      Linda

    • Posted

      Good Job Linda! When I try sticking up for myself- they consider me a ignorant troublemaker ! You didn't tell your age-or if in USA? I guess I'm considered high risk-as I do smoke-and they frighten me with heart disease. I just wish-they'd prescribe the lowest dose available even...It now-is effecting my skin,mood/depression,more facial hair,dryness and sweats...etc..Is there a reliable site to order premarin from?
    • Posted

      Hi there I was 60 last October and leading up to that had been on HRT for quite a few years - over 10 perhaps 15 years and all the time I had been taking HRT felt fabulous, then came the crunch and a new doctor at the surgery said that I had to come off it as according to her I was over everything now or should be.  needless to say things have never been as bad, can cope with the flushes but not with everything else, brain fog being the worst, no feelings whatsoever about anything not happy not sad not nothing, and now have just been to the urinary clinic and now have to have an operation to solve my bladder problems; that have only  come into being since stopping the HRT.  The doctor who I am seeing there has written to my GP regarding HRT and says that if I dont get any response from the surgery to go back to her and she will put me in touch with the menopause clinic at the hospital where I am being booked in for the bladder operation. There has been a lot of discussion surrounding the risks involved in taking HRT whilst I was taking it I lost weight, felt tons better than I do now, now I have gained weight, been diagnosed as diabetic and have bladder problems, as if that is not enough to have when you reach 60.  No-one seems to tell you the benefits of HRT properly though do they - thanks for listening - take care and keep taking that is what I say....

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