Forced off HRT at 60?
Posted , 117 users are following.
I've been on HRT, very happily, since my menopause at 45 (I'm now 67). My doctor is really pressing me now to come off it. Personally, I believe in 'if it ain't broke, why fix it?'. I am (as far as I know!) in very good health: I walk for over an hour a day, work out, eat extremely well, don't smoke, am not overweight, I'm still working part-time, I don't have any cancer history in my family and feel full of energy and bonhomie! The risks relating to HRT and breast cancer are now proved to be unfounded and anyway there is no breast cancer in my family. The risk, apparently, that rises after 60 on HRT is stroke. However, doctors also say that you are 43% less likely to have a stroke if you exercise an hour every day, which I do. So, is it not reasonable to say that as long as I am low risk, and as long as I feel great on HRT, why come off it? My age group are all one big experiment anyway and in America I know women can be on it till they drop. The question is: can my doctor force me to give HRT up?
26 likes, 445 replies
maggie47657 groovygranny
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Have stumbled over this forum while trying to find out if it was just me who wished HRT prescription could be continued after the age of 70 ( my age next year )
Due to the intransient position of my new G.P (new location , new surgery ) who does not agree with my ex G.P's prescribing , I have been told no more HRT will be prescribed within a few months .
So.. have been trying to reduce dailyfrequency of KLIOVANCE 1/0.5 HRT tablets . However , I have experienced reduced concentration , more joint aches ( already have arthritis in thumb joints ) fatigue, feeling spaced out and hair loss etc . This cuts no ice with the new G.P. who offers no advice .
I am principle carer for my 91 yr old mum ( who lives a distance away) I need to be on top form . My mum has osteoporosis/ arthritis , severe degeneration in spine/ hip , pain, very poor mobility etc , so I am also very concerned about protecting my bones from any genetic risk . I have weighed up the risks and benefits( long discussion with ex G.P. ) and conclude a shortened life would be preferable to chronic health problems exacerbated by reduced hormone levels . I know length of life is not guaranteed ( my husband died of pancreatic cancer ) and feel my own well-being will not be compromised by continuing to take HRT into elder age( preferable to a cocktail of medications for chronic age related conditions !) especially as I have been on a continuous contraceptive pill( since the 1960's except for 2 pregnancies ) then HRT in latter years. Feel fit and well , only other meds needed - pain relief gel for the arthritis .Plus making sure I have mammograms etc . I will be interested in the NICE recommendations on HRT due out this month . Lloyds- on- line - doctor would not prescribe for me , so I am at a loss how to go forward . Has anyone explored the efficacy of the non prescription hormone creams ?which are advertised on the internet. Any ideas gratefully received! Maggie
p.s. The Post Reproductive Health Conference for the medical profession is 17-18th Nov .
dorothy64227 maggie47657
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Good luckx
sarah99273 maggie47657
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Will look forward with interest to findings of the conference on 17/18th this month and suggest you do the same as me and get a specialist appointment as these local GP's don't seem to be keeping up to speed on our needs!
cynthia46451 groovygranny
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maria58274 cynthia46451
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Are you in the UK? The latest UK NICE guidelines were published in November and is much more positive about the benefits of HRT, which can outweigh the risks for many of us. Although it talks about starting HRT before you are 60, unless I'm missing something, I can't find anything that specifically says you should come off at 60. It's worth reading the guidelines (Google NICE HRT or there is a link in another discussion on here) and printing the relevant bits off before speaking to your doctor. It is your body and should be your decision - you ought to be able to continue, if you accept the (small) risks, unless you have some underlying condition that goes against it. If you have another GP in the practice, it might be worth seeing them, if your current doctor is totally against HRT for some reason.
I do wonder about the risks of not taking HRT for women with severe symptoms. Lack of sleep alone, due to night sweats, must take some toll on your health. My Mother had osteoporosis and I wouldn't wish that for anybody.
Good luck with your doctor, let us know how you go on.
sarah99273 maria58274
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roberta97370 groovygranny
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sheryl37154 groovygranny
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I was lucky in that during my hysterectomy/oopherectomy at age 39, my gyne implanted the oestradio pellet immediately. It was fabulous, except a 12 month one generally only lasted me 9 months. I topped up with patches until a menopause dr said I could have the pellet implanted earlier. Then they stopped making the pellets. On to the patches fulltime. My skin did not like them and 2 x 100 per week did not last the distance, so I topped up on the 7th day with the daily gel satchet.
As I live in a hot climate, I recently searched out a compound chemist to make the implant pellets for me. (No dearer than when I could buy them over the counter with a script). However the first one failed but it took a while for me to work it out as I also have haemochromatosis which causes the same symptoms as menopause (kind of a double whammy in that department). 3-4 months later I was almost screaming with unusual anger, full body night sweats, head sweats during day, loss of libido, hair failling out, belly getting bigger, etc. etc. and although I told my dr of these problems, had to work out myself that it was oestrogen deficiency and back on to the patches, overlapping them. It took another 6 months to get rid of the symptoms, nightly head sweats the last to go.
I had experienced 6 years of sudden and constant head sweating during an earlier period. But nobody could come up with anything other than thyroid (blood results normal) and menopause (but I was on HRT). After 6 years of this nightmare, I sought out botox to stop the sweating and went to a botox dr who said she would like to find out the cause - Yippee! so would I. She referred me to an endocrinologist.
I was found to have an adenoma on my pituitary gland which was causing excess prolactin. I did not have the usual symptoms of it but with further research, I discovered that excess prolactin causes our oestrogen to be ineffective. Therefore, pushing us into menopause. Women with excess prolactin need extra oestrogen. As soon as I started taking Carbergoline, the sweating eased. Such sweet relief. However, as soon as I try to reduce the medication, the symptoms come back again. Endocrinologist has no problem with me continuing to take the Carbergoline, and he is all for oestrogen therapy.
But not all endocrinologists are like that. One fill in, tried to ram all sorts of threats into me, getting into my face, that I was working hard on withholding from punching him in the nose. He was of another enithicty, which might explain it.
My current gp was flipping out about my using hrt, until I reminded her that those studies were flawed. She could not argue with that. Why on earth does hrt medication have to refer to and quote the results of the WHI study? She is much more understanding now after see what I go through with oestrogen deficiency.
Now I am coming up 65 (26 years happily on oestrogen therapy), and I do wonder at some time, perhaps when my current gp has moved on, if I will come to a road block.
I am also giving the compound chemist implant pellet another go but I just don't think it works as well as the original (although supposed to be exactly the same). I am also trialling pregnenolone. It is the grandmother of hormones. I am also trying to increase my good cholesterol, which the precursor of our hormones - pregnenolone being the first step after good cholesterol. Vit D also comes from good cholesterol. So if your good cholesterol is low, no doubt your vit D is also low.
The author of the Wisdom of Menopause, a menopause specialist, believes there is no reason to prevent women from using hrt forever. She advocates bio-identical oestradiol (it is not a 'natural' hormone that required is required to be made up by a compound chemist - but one that is most closely related to our normal oestrogen), and I have always stuck to that, whether it be implant pellets, patches, gels, vaginal pessaries, and oestriol cream.
So, one year later, how is everyone - did you find a solution?
sheryl37154
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Rayna_Dee groovygranny
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sheryl37154 Rayna_Dee
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Find the relevant information about those studies, print it and take it with you for your next dr visit. Go armed. I don't know how the US system works but try a Family Planning Clinic. Sometimes they have menopause drs, who are more educated. Ask for estrodiol oestrogen, it is bio identical and also stick to transdermal, e.g. patches, and gels.
Verbalise your last two sentences if it happens again. Tell them that you hope they don't expect you to pay for such outdated advice.
Good luck.
ykay groovygranny
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I have been watching this site for a while now and had a lot to do with an earlier site on Tibolone/Livial.......Have been on this since 2004 and will not be going off it. Tried all sorts of 'natural' remedies before that. I take one tab (2.5mg) every second day and that keeps me just fine. I am nearly 74 years old and as far as I am concerned it is what my body needs. Like you I keep well, exercise, and am not overweight.
In April 26 2016 under Women's eNews there was an article written by Mallory Locklear called: 'This Heart Doctor Wants to Clear Up Confussion About HRT'....Dr Howard N Hodis was quoted throughout. It is very interesting and almost a complete turn around on what the doctors have been telling us over the last few years.
Your doctor should not force you to do anything...........take a look at this article and print it out and take it along to your doctor. I believe a lot of doctors have not updated themselves on HRT.
Good luck.
Rayna_Dee ykay
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Livial tablets contain the active ingredient tibolone, which is a synthetic steroid medicine used for hormone replacement therapy (HRT). It mimics the activity of the female sex hormones in the body.
Livial contains tibolone, a substance that has favourable effects on different tissues in the body, such as brain, vagina and bone. Livial is used in postmenopausal women at least 12 months since their last natural period.
Livial is used for:
Relief of symptoms occurring after menopause
During the menopause, the amount of oestrogen produced by a woman’s body drops. This can cause symptoms such as hot face, neck and chest (“hot flushes”). Livial alleviates these symptoms after menopause. You will only be prescribed Livial if your symptoms seriously hinder your daily life.
Prevention of osteoporosis....
I'm not too sure about that synthetic steriod stuff...Sounds like not for me. Right now-I'm taking 0.625 premarin-and cutting it into thirds (into 3 pills) Taking one a day. I use to take one 0.625 a day. That doctor cut me off cold turkey! I guess I'll do the reduced amount for now. I guess at 62- we should all be glad and lucky to live this long! If anything-I feel that my hormones/blood chemistry has changed greatly in a over a months time...and my body compostion too.I think it takes awhile for the body and mind to adjust.- to lesser amount. I'm kind of set in my ways,change is hard.I don't think I can find a doctor in this area that prescribe any premain for me at my age! I think they want to scare you to death!!
RoniD Rayna_Dee
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About one month after posting my plea for help...i decided that i should not be having this problem...why should i suffer in this way...so i decided to become a pain in the rear... and booked an appointment at my GP's...i turned up to my appointment a blubbering wreck...i may as well been invisible...and was told again (in a sturn voice)forget these... its in the past
RoniD
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Shouting at me...she didnt even have my notes to check as the computer screens were down.so as i left her office...i thanked her for nothing and sorry to have wasted her time...but as i left i thought damn it i am not letting them get the better of me...they are treating me as a nobody...i re-booked another appointment with another GP ...and this time spoke on the phone...i told her about the other gp and how i'd been treated...and how i am not being listened to...i poured my heart out to her...and she fitted me in for an appointment within two days...she asked me again to explain what had happened...and was there for a good 20mins... at last she gave me what i wanted...with other blood tests... but now i can relate to the world again...i can walk, laugh, work on my allotment..joined a gym and most importantly have fun with my grand daughter...lol
If you want something bad enough...be a pain in the arse!!
Hope i have been of help
Linda
sheryl37154 RoniD
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Rayna_Dee RoniD
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marilyn13830 ykay
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