Fostepor once weekly 70mg
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Happy new year to all of us.
I'm a 59 year old male, started prednisolone on Dec 16th, 20 mg now on 25mg and still have very sore shoulders and arms but able to walk, did 3 and a half miles yesterday. Woo hoo.
my rhuemy prescribed Fostepor (alendronic acid) and after reading the warnings and side effects got a bit worried. Very common side effect was severe joint, muscle and bone pain. I've just started taking Pred prescisly because of that sort of pain. Has anyone got any advice or reasurance before I start taking this. I, like most people I'm sure, have always shied away from taking drugs unless nessasary so would like to hear as much as I can before I start popping pills.
Peace
Ron
1 like, 37 replies
ptolemy Tastyron
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Tastyron ptolemy
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Yes the Pred did work like a miricle but I don't think I have been overdoing it. I'm walking about three miles a day which is fine for the moment. I was fit before running and cycling so have always been fairly body aware. I'm on 25 mg but my shoulders and arms are still a bit of a problem. I'm wondering if increasing to 30mg for a couple of weeks to see if they improve would be benificiial or whether I have a "tandem" problem similar to my bad back.
ptolemy Tastyron
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Elijo ptolemy
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accodring to my knowledge.
ptolemy Elijo
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Elijo ptolemy
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ptolemy Elijo
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Anhaga ptolemy
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EileenH Tastyron
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The pred does not "cure" anything - it manages the inflammation that is the cause of the symptoms until the inderlying cause, an autoimmune disorder, burns out and goes into remission. Pred is only part of the story - your muscles remain intolerant of acute exercise and the other part of the management of PMR is to pace yourself and avoid or modify the activities that make things worse.
It is possible however that you also have myofascial pain syndrome - it is common alongside PMR and is caused by the same inflammatory substances, cytokines, except instead of being systemic, all over the body, they are localised in what can be felt as hard knots in the muscle groups, typically in pairs aongside the spine. One pair is found in the shoulders, one pair about rib level and one pair in the low back, They can lead to the surrounding muscles becoming tense and hard and even going into spasm to protect themselves from further damage/pain. When they do that they can pinch or irritate nerves and that gives rise to referred pain - typically in shoulders and upper arms, into the ribs or into the buttocks and upper legs depending on which area is affected.
eddylynn36538 EileenH
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Kdemers EileenH
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EileenH eddylynn36538
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shawn99 Tastyron
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I contracted PMR the same age as you and now into year three and finally made it to 10mgs of Pred, albeit with a little pain still. Much like you, I took Alendronic as prescribed by my doctor and had the same side effects. I always felt ill after taking it, so I stopped. I am very diligent in taking a daily dose of Calcium (1200) and Vitamin D (800) and my bone density is holding up very well. If that were to change then I would likely try Alendronic once again.
Good luck with whatever you decide,
Shawn
Kdemers Tastyron
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maid_mariane Tastyron
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Been on prednisone since end of September 20mg now 17.5mg.
My rumi put me on a once a month bone pill and before I took it I to looked up all the sideeffects and it scared the be jesius out of me. I read that it came in a weekly dose and you may have less side effects which my pharmacist concurred.
I had a GP appointment the same week and discussed it with him and he said "no one will win a nobel prize over this" un quote but he gave me a script for weekly. I filled it and took it and was sick with flue like symptoms. That was the first and last.
I eat lots of calcium rich foods, cheese till the cows come home and exercise. My bone scan at the onset is vg, so we will monitor.
I love my gp and respect him more than my rumi and believe him in saying it's not worth it, at least for me.
Good luck
Mariane
Anhaga maid_mariane
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ptolemy Anhaga
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EileenH ptolemy
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