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Found the cause of the bleeding.

Posted , 7 users are following.

Dave_Brown
Dave_Brown

Hi every one, 

i had my 6 month check at the respitory clinic the other week, spent a good half an hour with the doc who was brilliant, she listened to me & gave all the answers I wanted & needed so that was great. 

She has said the cause of the bleeding is due to blood vessels in the lungs bursting when I get an infection as there attached to the airways. I have bronchiectasis in both lungs & its spread all over the lungs from top to bottom. The airways that are affected look like rings as there circular & have what looks like a diamond on them which is the blood vessel. It's these vessels that burst & bleed when I have an infection. Was good to find out the cause & now she said she will be keeping a close eye me & has got me on a four month review instead of a six month one. Being sent for loads of tests over the coming months to find the cause of the bronchiectasis as still not known. Had bloods & next week going for a full pulmonary lung function test, all go here lol. 

Well I hope every one is ok & your all smiling & laughing, take care all & hope to speak to you soon :0)

3 likes, 25 replies

25 Replies

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  • pamela15262
    pamela15262 Dave_Brown

    Posted

    hi dave, I have attempted to reply twice but something goes wrong each time. what i'm wanting to say is at last there is someone else out there with dry bronchiectasis. I am ignorant apart from receiving leaflets and disc from the lung foundation and these sites. everyone seems to have wet bronchiectasis and no one until now had dry. I have never had mucas in the two months since being diagnosed. my chest hurts alday long and the wheezing stopped 2 weeks back, exhaustion seems to be lifting. dave what does it mean when they say dry bronchiectasis, how does that differ from the others? please answer soon, I'm in australia.
    • Dave_Brown
      Dave_Brown pamela15262

      Posted

      Hi Pamela,

      i too get chest & back pains on a daily basis & I too don't suffer with excess mucus (thankfully). I get shortness of breath whilst walking or when over doing things but I don't get the wheezing. There is so much information on bronchiectasis out there Pamela but everyone is different so you can only take bits that are relevant to you circumstances otherwise panic can set in ! The thoracic society site is useful but to be honest the best source is a specialist who you can talk too, it takes time to get the answers you need & want so hang in there & keep pestering for the answers. 

      Like larrylarry said dry bronchiectasis is the term used for people who don't produce mucus but get other symptoms like we both do. 

      Hope you well & I hope I have helped in a small way, take care & stay strong, speak again soon :0)

    • pamela15262
      pamela15262 LarryLarry

      Posted

      I have read others reports saying that although it reads dry it does noot mean that the mucus is still in the lungs, this confused me. I am starting to feel better after 2 months and even went out to a resturant last night. however we sat outdoors in the fresh air. In Queensland the weather is mild and the resturants and cafes spill oout onto the sidewalk. I am tired this morning with a headach, but OK. I have not yet had a specialist appointment.

      Thankyou for responding, take care Larry

    • pamela15262
      pamela15262 Dave_Brown

      Posted

      thankyou for your help to so many, I will take your advise, not yet seen the specialist. I am a pensioner and we have free hospital services, so the waite is some time. I have been discharged 8 weeks ago, and ony now picking up. I expect to hear from the hospital in a month from now. As I did my spine in 2 years ago I use a motorized scooter to get about, but the effort requied to get the scooter in and out the car brings on shortness of breath, and excited talking can do the same. The wheezing has slowed right down. Last night I laughed and laughed and although I coughed which sounds like a smokers cough, it was great to be back in life!!!

      God keep watch over you Dave.

  • jeannie4243
    jeannie4243 Dave_Brown

    Posted

    Hi Dave so pleased you have found out the problem at least it is being delt with now, and i wish you good luck. This is just a

    Quick hello to you and anyone else i know reading your page as have not been on as Joe in hospital 2 weeks now with this bloody psudamona and is quite poorly so will speak again when thngs settle good luck to everyone x

    • Dave_Brown
      Dave_Brown jeannie4243

      Posted

      Hi jeannie, 

      thank you for your post :0)

      sorry to hear Joe is unwell, fingers crossed he will get better quickly & will back on his feet very soon. 

      Take care jeannie & give Joe our best wishes & let him know we're thinking of him. 

      Keep smiling & stay strong, speak again soon :0)

  • Stixlabushka
    Stixlabushka Dave_Brown

    Posted

    gotta love spending quality time with your doc.

    especially when they explain everything and answer your questions.

    good luck with all the tests and let us know how they are.

    breathe well

    • Dave_Brown
      Dave_Brown Stixlabushka

      Posted

      Hi Stixlabushka,

      thank you for your comment :0) 

      It is great to finally get some answers & to get some help, it really does help knowing your not alone & just being ignored which seems to be the problem with a lot of suffers of this disease. 

      I will let you know the test outcome once I've had them all, till then take care & keep smiling & stay well :0)

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