frozen shoulder not sleeping

Posted , 40 users are following.

Hi all of you out there, Now I really understand constant pain and I really sympathise with you all. When I was first diagnosed it meant nothing to me I was going on holiday to a hot country and thought it would right itself. I cannot afford to stay off work, but am drugged up to the eye-balls but that does not cover the pain, I am not able to do anything I planned and have very sleep interupted nights. I am waiting to see a Surgeon , the Physio said that there was nothing they could do - I lost over 50% movement from the start, so the pain, the longevity of this condition combined makes it all very gloomy. So all the best to you fed-up people out there, I just hope that you can have a comfortable night and get some sleep.

4 likes, 69 replies

69 Replies

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  • Posted

    You may want to order a portable tens unit for the pain. They are not all created equally so look at reviews. Good luck to you!
    • Posted

      Thanks for the suggestion terry74787, I

      have a feeling before this is over with I will

      have tried just about everything to find what

      works for me. I don't expect miracles, just

      Livable. Thanks again .

      Dorene

  • Posted

    Diagnosed with FS in February. Tried PT, injections

    and dry needling. Nothing helps. Been seeing a lot

    of information saying FS early symptom of Parkinson. Anyone have any insight?

  • Posted

    Hi. Thank you for sharing. Have you been looking for alternative natural therapy. I know a few people who were suffering from frozen shoulder where showering requires someone to help. No drug worked for her and surgery was next on list but thankfully she tried something that helped her with her pain and doesn't need surgery. If you are looking, i can get more information from her. 

  • Posted

    Hi everyone,

    I am suffering OMG pain with a 'frozen shoulder' have had an x ray and no bone injuries or calcification but how do we actually know it's a frozen shoulder and not something else? Like many of you I have been given various pain killers which make me feel like an alien! Can someone please outline the symptoms along with drug free things they have tried that give some relief?

    Many thanks

    Lyn

    • Posted

      Hi Lydia 

      Have you considered the distension procedure ? It's amazing the difference I had it done yesterday and cannot believe the contrast , I'm out of pain and my movement is improving by the hour , start my first physio today and I'm feeling very optimistic. 

      Take care 

      Maggie xxx

  • Posted

    Hi everyone of my fellow frozen shoulder group , I had a tennis elbow op and was in a cast for 4 weeks.  I started physio immediately after , after the 3rd gruelling session I started to develop shoulder , shoulder blade , neck and arm pain , pain that just got gradually worse by the hours , after screaming at my consultant to please take my arm off , he sent me for a MRI scan and revealed my shoulder was frozen , he gave me a steroid injection, that has eased the pain in my shoulder , however the pain in my arm is like nothing is ever experienced ( and I've given birth 3 times ) . I've been prescribed naproxen , they do not even touch it , can anyone suggest a pain killer that would at least take a little of the edge off , my whole life has been disrupted by this and I'm sick of myself talking about it , however unless you experience this pain and debilitating condition , no one understands how sickening the pain is.  I have totally lost the use of my right arm , and I still do not understand why , thanks for reading 

    • Posted

      Hi Maggie,

      I thought I had frozen shoulder a couple of months ago.  The ER doc said that's what I probably had due to the unbelievable pain I was experiencing for 11 days non-stop & no sleep at all.

      But after X-ray, it showed calcium deposits 'calcified tendinitis'

      I know exactly how bad your pain is. I've had a child as well and the shoulder pain is so much worse than that.

      So, 3 things that helped me: Tiger Balm, I swear by it!  ( strong ointment that you put on the shoulder and surrounding area).  It lessened the extreme-ness of the pain

      And the ER doc gave me 2 shots of morphine, which dulled the pain  for about an hour. (I wouldn't  suggest the shots all the time plus no doc will give to you all the time anyways).

      I used heat all the time and stopped trying to do anything with my arm . And it was my right arm too. I'm right handed.

      My inflammation of the calcium deposits has stopped now and I'm back to normal but this will keep happening to me unless surgically removed... 

      I just wanted to give you a few things that helped me. Even though I didn't have FS I did have that pain. Apparently it's the same type of pain. I hope your FS goes away asap!!!

      Good luck, take care 

    • Posted

      Hi Kelly 

      I've got a actiopatch from chemist , it's given me my first full nights sleep , and I've emailed a consultant that apparently has developed this wonder injection that releases the frozen shoulder so here's hoping , I'm willing to travel to London to have it done , thanks for your tips, I pray for the day this condition is in my past it's totally taken over my life , I spoke to a chemist over the wknd who suffered with it , he said omg the pain reduced me to tears many a day , 

      So at least I know I'm not going mad 

      Xxx

    • Posted

      Hi Maggie

      Do you know what is the injection you mention??? I suffer for 5 years and Im hoping for a miracle.

      Best wishes to you!!!

    • Posted

      Hi Oliveria

      The doctor is called Simon moyes , the injection is a combination , I read an article in the daily mail , so I've emailed him , as soon as I know anything I will post it straight away , I have an appointment with my consultant on Wednesday and I will be showing him the article , so sorry to hear you have been struggling for 5 years , what is going on , why has this condition gone by without any progress , since I've been diagnosed I'm shocked how many people have it or have had it ,

      Ok so as soon as I hear back from mr moyes I will let the forum know 

      Please take care 

      Maggie 

    • Posted

      Hi oliveria 

      Hope you are well , I had the procedure yesterday afternoon , I've had my first nights sleep in months , got more movement again today , little twinge when I move somewhere it dosnt like , but nothing major , I can feel the difference already , and pain free , I'm so sad it didn't work for you , never thought I would feel this optimistic again , I'll post now and again with the progress , 

      Take care 

      Maggie xx

  • Posted

    Hi all , 

    I'm going to have a hydrostatic distension procedure for my frozen shoulder, wish me luck , I believe it's very good , I'm desperate now , 

    I will report on how it goes 

    Xxx 

    Maggie

    • Posted

      Thank you Maggie I appreciated. Is also called hydrodilation. I have this done but didn't work for me.

      I wish you all the best, let us know how it went for you.

      Best wishes!!

    • Posted

      Hi oliveria 

      I will let you know , it feels like my last resort ( not to mention expensive ) 

      Fingers crossed 

      Xx

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