Fusing lichen sclerosis

Posted , 11 users are following.

there is another forum here about this topic but i cannot post bc it is locked. it was about methods used to reverse labia fusing. Is there anyone that can explain to me these three things and how to do it:

using coconut oil

dilating

and bicarbonate of soda baths

i really appreciate any help thank you

0 likes, 21 replies

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  • Posted

    I don't think anything unfuses. Possibly steroid cream slows or halts it. I had some success with a small area of labia unfusing when i started using Betnovate, but I now think that was just luck because I caught it before it had a chance to properly fuse. My fusing is worsening despite all the creams/oils and steroid.

    • Posted

      im in the same boat. fusing continues despite all the holistic and other treatments, ive tried the many forms of advice given here over the months, and it has not stopped the process of fusing.

    • Posted

      this is so disheartening. clobetasol makes my skin more thin and then it tears more easily.

  • Posted

    If you research through previous threads on this forum, you should find some on using baking soda water to unfuse and also some time ago there was lots of activity on a thread about using borax to unfuse . There are women who have successfully done that.

    • Posted

      i ve been doing it for months and it cant hurt but for me personally it has not helped. dont mean to be a pessimist. coconut oil is just an emollient and can be helpful to keep the skin from breaking.

    • Posted

      Me too Lynn, borax soaks are soothing and softening but haven't stopped the fusing or undone it.

  • Posted

    What about preventing it? is there anything?

    • Posted

      As far as we know the steroids are the only way to slow down/ prevent fusing. Keep yourself moisturized with your choice ( I use organic coconut oil or emuaid), and limit sugar.

    • Posted

      I don't think there is any way of preventing it as it's our bodies working against themselves. I have not met a doctor who says there is a way of prevention. Steroid ointment and strict regime of moisturising to slow the process seems to be the only way to manage this hideous disease.

  • Posted

    Following this post for sure... as I have fusion going on, too.... and want nothing more than for it to unfuse and go back to normal!

    It's so frustrating because when I got diagnosed and my doctor told me to start using the Clobetasol - I asked her if it would "unfuse" my hood from my clitoris. She said, "yes - it'll unfuse, everything will clear up, and all will be fine." Ummmm - after all the reading I've done on this site about LS (from people's experiences) - it doesn't sound like that's going to happen! 😦 It upsets me that my doctor would say that and give me false hope. I follow up with her in 4 months... to see how my LS is doing. If my fusion hasn't bee fixed by then - I'll definitely be finding out WHAT I need to do to unfuse this! 😦 UGH!

    • Posted

      ive had ls since i was a child but i was misdiagnosed with vitiligo. when i became sexually active and started seeing a gyno he diagnosed me correctly. so ive been treating this wrong for a long time.

      honestly i dont think my situation will get better.

      does the clobetasol make your skin thinner and easier to tear?

    • Posted

      Sese88 - I'm sorry you weren't diagnosed correctly until later. 😦 I hope your situation gets better... I hope all of our situations get better.

      I've only been on the clobetasol one month - i put it on every night before bed. I haven't noticed it getting thinner and tearing easier... (not yet anyway)

  • Posted

    i thought LS Thickens your skin and thats why the steroid is used to thin the skin ?? mine was so bad once that i could barley get one finger inside now i am having sex and getting paps so the steroid will work if you use it right and also i suggest investing in the o-shot to help rebuild the tissue and cells down there

    • Posted

      Hi Donna - If you don't mind me asking - did you get the O-shot? If so - how did that go? I'm curious to hear from someone that's done it. I've read that "how long it lasts" varies from person to person. And again - if you don't mind me asking - did it hurt?? I've read that it doesn't hurt, BUT - I've also heard that having biopsies (down there) for LS diagnosis isn't painful - and it hurt me! 😕 Well... the numbing shots hurt ... and I know the O-shot is a big shot! 😃 so any info would be great! 😃 Thx!

    • Posted

      its very scary at first which is natural but they us lydicane to numb you down there and then give you a numbing shot so you really dont feel anything what was worse for me was inserting my IUD AND ALSO TAKING OUT THE IUD but the O-shot was not bad at all but the benefits of it made me get passed my fears of getting it done ,i think you should do it ,it can really help you and refresh your vagina and boost up your sensitivity and get your juices flowing there again ,just got my 3rd one 3 days ago and when my BF comes to see me i will let you know what happens

    • Posted

      Thank you for the O-shot info! You said this is your 3rd O-shot? Do you mind me asking when your first one was? Is this an every year thing? Or more often? Or less often? I'm curious how long it lasts (even though I'm sure it's different for each person.) Has it helped your LS?

    • Posted

      last one was 2 years ago and yes it has helped my LS a whole lot you should try it

    • Posted

      Hi Donna! are you in the US? Where do you go to get the shot? I'm interested in doing it

      Thank you! : )

    • Posted

      USA in california , riverside and i drive to irvine CA, to get it done

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