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Fusing Questions

Posted , 7 users are following.

kasiaj
kasiaj

Hello I am new to this forum and lichen schlerosus.

I was diagnosed a few days ago but have been having a flare for a couple of years now (since summer 2013). It was mainly itching so I had many misdiagnosises with thrush. Finally was given eumovate for eczema which relieved the itching temporarily until the final diagnosis of LS and so have been using dermovate for the past few days. Hardly itching at all now after this treatment. Main problem is just the pain when having sex as I believe maybe my vagina has narrowed a bit.

I have been using dilators which has improved the problem a lot. But I think I need to invest in some bigger dilators as the ones I have were the cheapest I could find so only go up to 30mm diameter, which I don't think is big enough (I am 18 years old and a student so couldn't afford ones for more than £20).

I have some questions about fusing as I have read a lot about it on the internet.

My main question is does fusing happen to everyone with LS? 

I am only 18 so the thought of fusing happening terrifies me. 

Considering I think I have caught it early as I don't see any fusing that has happened already (only a few small white patches and purple ish colour to my vagina), if I am using my steroid ointment and dilators to improve the condition and taking precautions then will this stop fusing from happening? 

I cannot tell from research if it is something that happens to severe cases of LS or something that happens when untreated. 

I am hoping if I do everything I can to help with my LS - which I don't think is as bad as a lot of people's due to not much pain or itchiness anymore and vast improvement lately - then maybe fusing will not happen to me.

If anyone has any info they can tell me regarding my question then that would be really appreciated

Thank you in advance for your help!

Kasia

 

1 like, 20 replies

20 Replies

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  • renee77108
    renee77108 kasiaj

    Posted

    If you can keep the itch and irritation down fusing is unlikely.
    • kasiaj
      kasiaj renee77108

      Posted

      Thank you so much. That is what I needed to hear :-)
    • renee77108
      renee77108 kasiaj

      Posted

      On another forum on this subject and also oral lichen planus there is discussion that it could be a vitamin D deficiency. Several people including myself (just got back from sunny South Carolina) noticed symptoms subsiding or disappearing while they were on holiday...sunshine is what makes your body make Vitamin D. The LS on my legs went entirely away...private area has been getting better with the aloe vera gel...so haven't noticed much change there.  But in the last few days I started vitamin D3 5000 IU  in the morning and another 5000 at night. The oral lichen planus in my mouth has already shown some improvement after only a couple of days. Some on this site supplement already with D3...but are they taking enough?  Here is what I found on the symptoms of vitamin D deficiency...note: what we have is an auto-immune disease...plus I have also noted many indicate some kind of depression along with this disease (which of course is depressing).

      Symptoms of Vitamin D Deficiency

      Vitamin D isn’t an optional nutrient, our bodies need it, and without it, problems can arise. Many people go through life with nagging aches and pains, allergies, malaise, and a general lack of vitality. Such nonspecific symptoms can be the result of one, or several factors, and vitamin D deficiency is one of them. Specific symptoms related to vitamin D deficiency include:

      Muscle weakness

      Joint aches and discomfort

      High blood pressure

      Inability to concentrate or focus

      Urinary incontinence, bladder issues

      Constipation

      Headaches

      Cold/flu, immune system decline

      Mood disorders

      More serious diseases linked to vitamin D deficiency include:

      Osteoporosis

      Heart disease

      Autoimmune diseases

      Periodontal disease

      Gout

      Diabetes

      Obesity

      Psoriasis

      Neurological diseases

  • hanny32508
    hanny32508 kasiaj

    Posted

    Fusion was going on for a long time before diagnosed.  Treatment was ill explained at the time.  You are doing much better already.

     Keep things lubricated down there with for instance coconut oil.  I myself have done well with the baking soda rinses and baths.  Other people thrive with aloe vera and witch hazel spray.  You'll have to find out what works best for you.

    Diet has helped as well - no sugar, gluten, alcohol, most dairy products for me.  

    Also - perhaps have your estrogen level checked.  

    • kasiaj
      kasiaj hanny32508

      Posted

      Thank you so much for your help. I am definitely going to invest in some coconut oil. If that + dermovate + dilators does not make things almost normal then I will be looking into estrogen levels and changing my diet smile

       

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