Gabapentin Withdrawal IMPORTANT
Posted , 149 users are following.
I spent 4 days in intensive care following a spinal operation. This was found to be the result of the sudden complete withdraawal of Gabapentin.
For 3 whole days I was, to quote my surgeon, 'on another planet.' The only drug, of the many I was taking for pain, the only one that could not been given in an alternative form was Gabapentin. Fortunately, on the 3rd day there happened to be a charge nurse on duty who had seen a [b]previous case similar to mine, also resulting from withdrawal of Gabapentin.
My husband insisted that some way was found of administrating the drug. (I myself was una\\ware of any of this until later). There were objections from the staff since I would need sedating and was unable to consent! My husband over-rode them - thank goodness - and said he would take full responsibility and 'just do it.'
Some time after he left they did sedate me and administer the Gabapoentin. Then, as now, I had been taking 900mg 3 times daily for nerve pain, so I had obviously fallen off a cliff in terms of amount taken.
The following morning I woke up back to normal and asked for a cup of tea. When my husband arrived I saw him wipe tears from his eyes. If not back from the dead I WAS back from a living nightmare.
WHAT CONCERNS ME MOST IS THAT THIS WAS DISMISSED BY THE MANUFACTURERS WHEN ONE OF MY CONSULTANTS MENTIONED IT. YET IT IS A TERRIBLE REACTION, ALBEIT NO DOUBT EXTREMELY RARE. IT SHOULD BE MAD E KNOWN:!:
16 likes, 474 replies
cynthia33808 Guest
Posted
I attempted to come off of gabapentin following the recommendations of my psychiatrist (I had initially been prescribed it for anxiety). I was on 600mg 4xs a day. He had me go down in the following way:
600 mg 3xs a day for 4 days
600 mg 2xs a day for 4 days
600 mg 1x a day for 4 days
300 mg 1x a day for 4 days
This was one of the most horrific experiences of my life. From the beginning of decreasing I started having horrible nightmares, anxiety like I'd never experienced before, and horrible depression. By the time I was finally off of it completely I was nearly suicidal. I tried yoga, magnesium supplements and epsom salt baths, counseling, etc. Nothing helped. I finally broke down and started the gabapentin again, 200mg 3xs a day. My anxiety did not completely subside but my extreme depression and suicidal thinking went away. I hadn't realized just how crazy I'd been feeling from the withdrawal! I have since begun decreasing the gabapentin but have done it at a much slower pace. I bought a milligram scale on Amazon so I could pour out small amounts from my capsules and decided to decrease by 20mg per dose every three days. This is what I have been doing:
180mg 3xs a day for 3 days
160mg 3xs a day for 3 days
120mg 3xs a day for 3 days
100mg 3xs a day for 3 days...etc.
I am on my last day of 80mg 3xs a day and this time the withdrawal has been minimal. I am trying to eat healthy, I have been exercising nearly every day, doing yoga, and trying to maintain a positive attitude. I want to be off of this medication so badly. I recommend to anyone dealing with extreme withdrawal issues to try decreasing as slowly as possible. Drs do not know enough about this medication and do not warn you what you will go through if you ever want to quit it when they prescribe it to you-my doctor described it as a completely benign medication. I wish I'd never started taking it, but with the method I described above I finally feel like I will be able to be off of it someday. If I start to have the extreme depression again I will probably start taking a low dose again and decrease at an even slower rate, however, this rate seems to be working well for me so far. Good luck and much love to anyone dealing with this, the withdrawal is certainly real and severe for many people, but I believe it's possible to come off of it if you do it slowly.
dorbocon55 cynthia33808
Posted
I did make it off but had to go back because of nerve pain . Now I have side effects .Doctor says that she doesn't think they are side effects.i am only on 500mg .Will they go away with time ?
Jrankin0607 Guest
Posted
My dr prescribed me 200 mg of gaba 2x a day so far to start out (major tendinitis in right hand/ nerve pain in whole arm now) and now my nerve pain has sky rocketed after surgery, but when I started I was already on 50mg of Topamax a day as a migraine preventive. I wish he read my chart and realized I was already on an anticonvulsant ugh. So for over a month now I take the gabapentin at night and during the day I was still fitting in my topamax and started having all kinds oF side effects thinking I was crazy until my bf looked it up is when I realized the interactions. It's so scary how some drs put you on medications and not see the risk in your current. I take 25 mg of my topamax every other day to keep my withdrawals from that down.
Blacklabelbob Guest
Posted
Hi All, I can totally appreciate the fact that many people use helpful resources like this site to learn and post about issues they've had with their medications. And of course everyone's body responds a little differently. I'm just curious if anyone here has tapered off Gabapentin and has Not had any withdrawal issues (or if they did they were minor and short term. If so, what did you do in terms of your tapering plan? Thanks in advance.
Jacquijill79 Blacklabelbob
Posted
300 in morning and PM for two weeks, then 300 just in morning for a week, then
300 at night only, to promote sleep for a week, then stop.
I have been taking Gabapentin for a year now for hip and back pain. Have a new hip, and back pain is manageable now but I know that the main thing helping me get through everything is 100 diclofenac at night for inflammation.
so yes, the gabapentin has no withdrawal so far, but I cannot stop diclofenac during the process. Who knows what I will do if I have to stop the anti inflammatory.. It may be that I take the occassional tramadol to sleep, because my second hip hurts like hell during the night but improves with movement during the day.
as they say, if it hurts, then move it more!
time will tell
betty42805 Guest
Posted
I'm strugging I do believe I am addicted at the gabbs. I am prescribed 4 ... 800 mlg a day. I did start taking more than I am percribed when I run out I'm sick I don't want to eat, my stomach is messed up. Its not a norcotic so it is possible to have withdrawal from them. How do I get off of them without withdrawals or is anything to take or do to help with it. I'm scared!!!!!!!!!!!!!
Shumate betty42805
Posted
Yes, withdrawal from gabapentin is real, and, it is ugly at first. My personal belief is that the longer you were on it, the more difficult the withdrawal. But....keep in mind that things do get back to normal. Hang in there and, if possible, talk this over with your physician.
betty42805 Shumate
Posted
Shumate betty42805
Posted
Shortly after I stopped taking the gabapentin/methadone I began taking a magnesium supplement because I had read repeated reports that it helped a bit. I think I agree that it helped, a bit. I also started taking a B12 supplement. I'm pretty sure that it helped. I also drank milk from time to time throughout the day. That seemed to help a bit too. I have no idea why. Find music you like to listen to and let it play.
Again Betty, this is just from my experience; your's may be completely different. But, again, I'll say this...the 1st week off of the stuff, for me, cold turkey, was absolutely miserable. But....during the second week, for me, although I wasn't having much fun I could see that I was getting my life back, slowly.
This past week was my 5th week off of them. I'm still working to get my energy level back to where it was pre-drugs, but I'm markedly improved. The insomnia, which for me was the worst part of the withdrawal, has gone away.
Hang in there and don't let it get the best of you. If you know ahead of time that it's one of those "it's gonna get worse before it gets better" deals, I think you'll be better prepared to get through it. Good luck and stay in touch.
Deb9322 Guest
Posted
Hi Ive been on this tablet since May was put on it for breast pain told doctor not sure if it's working sometimes feels like it took edge of it it not convinced after reading about it quite worried told doctor my face is tingly since starting these she told me to up dosage which I did no better has anyone had this side effect help ??
Actiquser Deb9322
Posted
Hi Deb, sorry you are on this drug it seems to be the biggest sell by GPs at the moment. My Gp keeps trying to increase my dose as its the new wonder drug. I've stopped it as It is highly addictive and difficult to withdraw from. Confirmed by the pharmacist I spoke to who warned me off gabapentin and gave impartial advice.
I would not be increasing a dose if you are not convinced this works. If it gives you side effects then I would be looking to taper it and stop it under Dr supervision. Speak to your pharmacist about whether it help you and side effects.
If its like its relative pregabalin, if you develop side effect from this they tend to remain for life. Not enough is known about the long term effects of this drug. I would stay well clear.
Head pain is a known side effect.
Good Luck. Look to alternatives rather than always poping pills. Pills always have side effects.
Deb9322 Actiquser
Posted
Told doc since May about the tingling in my face and to be honest I don't think they are working luckily I found this website as I was going to just stop taking them, to be honest when I speak to the doc (always a telephone appointment). I imagine her doodling or reading a magazine i'm sure she's not even listening to me !! Just another patient hypercondriac!! Thanks for the advice
kirk86326 Guest
Posted
I have done this once before. I hate myself for ever being put in this position again. Chronic pain is a bitch and can wear you down. Brief history, motorcycle accident in 2004, completely destroying the left shoulder, resulting in TOS, brachial plexus injury, RSD, and few other odds and ends. I've had 10 surgeries total since then, the last one being in 2012. I have most recently been on 30mg oxycodone 3xday, gabapentin 300mg capsules x 2 @ night (had been on 2400mg daily at one time years ago) & Tizanadine 4mg tabs x 3 @ night. They also diagnosed me with ADD as an adult and put me on Adderall 10mg tabs x 3 per day. Ive been on this regimen for the last few years and did not see myself turning into another person all together. I've gone from 165 last year, to 130 now. I've stopped talking to anyone, including family. I have zero energy, depressed doesn't quite describe just how bad off I feel.My memory has been trash, to the point where I literally forget why I go into a room. I've been experiencing tremors, which can be the adderall or the Gaba, not sure. But instead of looking at the meds, they now are trying to say I have early onset Parkinsons. I'm not sure why docs dont really look into side effects of the meds they put us on. As a medical professional I take part of the blame myself, but when faced with chronic pain day in and day out, sometimes all you want is relief. But when the relief is worse than the pain, it's time to stop. I own a Medical Equipment Company for Pediatrics and I have been so depressed with such an intense fatigue, my employees are starting to think I am a myth. My wife doesn't know what to do to help and that leaves her feeling helpless, which in turn makes me more depressed. I have just recently, 27 days ago, detoxed myself off of the oxycodone and adderall, not realizing that the Gaba was causing just as many problems. I thought it was one of the other two meds. The adderall is going to apparently take the rest of my life until I feel normal again, but the oxy withdrawal is done I hope. I have been supplementing with Magnesium which seems to help. My question is, having just completed a nasty detox, how best would you proceed to come off the Gaba? I'm afraid if i get anymore depressed I will just give up all together. I've gone cold turkey before off of everything, as a matter of fact, I went cold turkey from the oxy, but that stuff is more physical than mental. I just want my life back.
Deb9322 kirk86326
Posted
Can't believe the doc never mentioned anything really about apart from its for nerve pain the thing is they don't even know what my pain is only told at hospital it was unexplained pain given a leaflet and told to read it and take evening primrose which didn't work that's why I spoke to docs and put on these tablets 😡 .
maureen90295 Deb9322
Posted
sandy97889 maureen90295
Posted
I got off this horrible drug in February, my Rheumatoligist said there would be no withdrawal problems and took me off way to fast.
That was in February and am finally pretty much back to normal except still having stomach issues. I just hope that eventually they will go away soon.
This drug has to be taken very slowly when stopping. Don't rush it!
maureen90295 sandy97889
Posted
sandy97889 maureen90295
Posted
I had nervousness, sleeplessness, lots of anxiety, stomach aches,
reflux so bad I thought I was having a heart attack..
Was no fun..still having some stomach issues yet..hope that this
will go away too.
Good luck
maureen90295 sandy97889
Posted
sandy97889 maureen90295
Posted
You are so right you can't rush it!!
I am pretty much back to normal except for stomach issues. Been a long haul
maureen90295 sandy97889
Posted
sandy97889 maureen90295
Posted
rita52071 sandy97889
Posted
rita52071 sandy97889
Posted
On a happier note it will get better...We all will get better....just takes a long time....Have a blessed day!!!
sandy97889 rita52071
Posted
I had good days and bad days..at first more bad..I was taken down way way to fast by my Rheumatoligist..I was on 3200 a day, he had me drop to 1600 for 5 days then to 800 for 5 days then STOP..he said he never had any compaints of withdrawal..HELLO..at first I thought I had the worst case of flu ever..my husband finally picked up on it..went to my family doctor and she said I should of been taken down 100 mgs over a series of months!!! I just fought thru it..I have Xanax and didn't want to get hooked on it but it did help once in while for me to sleep..I just pray my stomach issues are not permanant and it didn't totally mess me up..
Very Very Bad drug..
Hope all gets better for you..sending (((hugs)))
naomi64 kirk86326
Posted
Hi Kirk
I will pray for you..I am still struggling myself and I been off Gaba for two months. Everyone say's go off slow. They say go down 100mg per week. You can get 50mg made at a special phymacy. God can restore, no matter what. Even when there is no hope. I will pray for us..Naomi