Gabapentin Withdrawal IMPORTANT
Posted , 149 users are following.
I spent 4 days in intensive care following a spinal operation. This was found to be the result of the sudden complete withdraawal of Gabapentin.
For 3 whole days I was, to quote my surgeon, 'on another planet.' The only drug, of the many I was taking for pain, the only one that could not been given in an alternative form was Gabapentin. Fortunately, on the 3rd day there happened to be a charge nurse on duty who had seen a [b]previous case similar to mine, also resulting from withdrawal of Gabapentin.
My husband insisted that some way was found of administrating the drug. (I myself was una\\ware of any of this until later). There were objections from the staff since I would need sedating and was unable to consent! My husband over-rode them - thank goodness - and said he would take full responsibility and 'just do it.'
Some time after he left they did sedate me and administer the Gabapoentin. Then, as now, I had been taking 900mg 3 times daily for nerve pain, so I had obviously fallen off a cliff in terms of amount taken.
The following morning I woke up back to normal and asked for a cup of tea. When my husband arrived I saw him wipe tears from his eyes. If not back from the dead I WAS back from a living nightmare.
WHAT CONCERNS ME MOST IS THAT THIS WAS DISMISSED BY THE MANUFACTURERS WHEN ONE OF MY CONSULTANTS MENTIONED IT. YET IT IS A TERRIBLE REACTION, ALBEIT NO DOUBT EXTREMELY RARE. IT SHOULD BE MAD E KNOWN:!:
16 likes, 474 replies
jennifer43598 Guest
Posted
Hi I'm new to this site.
I'm on neurotin 600mg 1/2 twice a day and 1 at bedtime. I've been on it for over a year. My rheumy retired and I started seeing a new one in the same building. Well I called he office yo get a refill and he doesn't prescribe neurotin. So I need to see my prinmay dr. So I guess now is
The time to get off this med. I sure hope my primary care dr will write me a new script so I can start tampering off. Yesterday and Today I only took one 1/2 and even with that I'm having sweating issues, hot flashes, nausea, dizziness and headaches. And I just want to cry.
rick04189 jennifer43598
Posted
I'm very sorry to hear that, I've been off since the 20th of last month, still having issues with memory and dizziness.
linda88918 jennifer43598
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Hi Jennifer. That may be too much at a time. The Ashton manual recommends 10% every 2-3 weeks at most and when you get down to the last bit, some make 5% cuts. So instead of 300,300,600 you would take 270, 270, 540. Or you could start with just cutting the first dose on the first day (270, 300,600) and then maybe if that goes okay, cut the next dose the next day or a few days after that (270, 270, 600) or something like that. Then after a day or two you are at 270, 270, 540). Hold this for at least 3 weeks before you make another change. You can adjust to meet your needs, but the main thing is go PAINFULLY slow. It could take many months or a year, but then you prevent a lot of side effects. I am told that you can get gabapentin in liquid form, so you could measure it out and if not, you can crush the pills and put in water or milk and do it that way. I have not done that, but I am told that many have. Just be very careful. This is not a medicine to mess around with, but you can prevent most of the withdrawal if you get off at a snail's pace.
jennifer43598 linda88918
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jennifer43598 rick04189
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linda88918 jennifer43598
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I should probably clarify that the next dose down would be 240, 240, 480. (You don't have to take 10% of 270 and make it 27 -- 243.) You'd just do 30mg cut and 60mg cut as long as you can tolerate it and then probably when you get down to the last 100mg or 75mg or around there, you could try taking less than 30mg -- maybe even 15mg (unless you can tolerate the 30mg). It just depends on what you can tolerate.
kirk51905 jennifer43598
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linda88918 kirk51905
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Kirk's method may be a good one, i just know of people who have gotten addicted to benzos after only 10 days, but hopefully you wouldn't have a problem if you did that. Probably it would be fine for most people. I just have heard to many horror stories about ativan, so I'm leary of it.
kirk51905 linda88918
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linda88918 jennifer43598
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Hi Jennifer. I guess I responded to Kirk instead of you. He suggested Ativan and that might work out good, it is just that I know of someone that got addicted to Ativan after only 10 days and a low dose and after tapering, still had a year's worth of symptoms. It probably would be okay for most people, but the problem with benzos is that they are highly addictive and you never know how and when they will catch up to you. And you can taper off one time and be okay and not be okay the next time. After a couple of times it is called "kindling" and it doesn't work out as well, whereas you CAN come off of gabapentin without any symptoms if you come off slowly enough. I know because I have done it both ways. Your brain needs time to make the adjustment, but if you are easy on your brain, it will be easy on you.
rick04189 kirk51905
Posted
So what your saying is I'll stay in the suspended state of headaches and dizziness for life if I don't go back on the gabapentin? At some point the body should correct its self.
kirk51905 rick04189
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jackie54344 linda88918
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I had hip replacement and was on this for 6 weeks 300mg first 2 weeks n then 600 mg for 2 weeks n then back to 300 again for 2 weeks always at night. I called pharmacist n he told me for one week to take one one night skip a night n do this for a week. I feel fine during day except for some depression n crying. But at night I can't sleep n feel anxious n terrible can't stand it.what should I do should I stop like pharmacist ssid. And why do I only feel like this at night
kirk51905 jackie54344
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jackie54344 kirk51905
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I can't sleep terribly anxious feeling when I go to bed so I lay awake. My question was is the pharmacist advice gor weaning off correct. I barely took sn advil before this surgery so I sm thinking all these meds just messed with me. Never sgsin!
kirk51905 jackie54344
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jackie54344 kirk51905
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kirk51905 jackie54344
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dd82864 kirk51905
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rick04189 dd82864
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I've been off for 41 days. Still having bouts with dizziness from time to time.
Neuro Endure Mini, a supplement, has made an exponential difference. I doubled the dose after two weeks as I am at about 200lbs.
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kirk51905 dd82864
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jackie54344 kirk51905
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Goodmorning I am off completely as of last saturday. My doctor called me in zanax I had to take 3 half of .5 and then one whole that night all same day. I did sleep and it helped with my tremors n anxiety feelings. I still had a hard time last night but not as bad I only took one n was able to get through night. I will never again take gabapentin. Horrible drug.Before surgery I never even liked taking an advil. So all these meds to me were horrible. I took the Tylenol never oxycodone after my surgery but was fine when I stopped I say beware of gabapentin, they say they don't even know what it does to the brain. Not cool!
martin45332 jackie54344
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Well done! I have something to look forward to. I am currently on 2700mg for peripheral neuropathy and Restless Leg syndrome. The problem I face is finding something else that works as well. I am still in pain and also take extended release Tramadol. Isn't life fun!
kirk51905 jackie54344
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kirk51905 dd82864
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