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Gallbladder disease, pancreatitis, really scared!

Posted , 7 users are following.

Welshfairy
Welshfairy

I have been misdiagnosed for 6 years, finally in may I had an ultrasound confirming what I was desperately trying to tell them in the first place! I have gall stones, last week I was hospitalised as a severe attack and some loose stones caused me to develop pancreatitis. I discharged myself after 4 days as I was sick to death of hearing conflicting interpretations of test results with no real action plan. Now I am at home being told no fat n no dairy. I'm a 7.5stone woman with a BMI of 15. I am hungry, anything I eat causes pain, I cannot stand any veg except a bit of raw spinach n rocket leaves. I don't know if my GB is even going to be removed, what I would like to ask though, is if anyone can help me with websites or blogs or ideas to maintain some of my weight please? I can't eat chicken either as it really exacerbates the attacks. I need food help basically. My biggest fear is losing more weight. I was well over 8st before the griping started, I can't really afford to lose more. Sorry it's long, any help greatly appreciated. I simply don't know where else to turn. Thanks for reading x

1 like, 16 replies

16 Replies

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  • b68419
    b68419 Welshfairy

    Posted

    Just stay on liquids then and be sure to get some kind of protein drink  and keep hydrated like electrolyte water , do broth, teas., smoothies is a big one for me. good luck.
    • Welshfairy
      Welshfairy b68419

      Posted

      I forgot about smoothies lol, thank you. I have never been one for knowing how to eat properly, I usually have big heavy comfort foods made from scratch like bolognaise, lasagne, cottage pies, stews n big roast dinners. They are all out now. It's a big adjustment and it's like taking a stab in the dark! I will try these, I'm sure it will settle enough that I can eat more things in time, I just need to adjust my habits. Thanks for the suggestions x
  • Ginagirl
    Ginagirl Welshfairy

    Posted

    Complete meal supplements

    These products contain the nutrients to replace a meal. Your doctor, GP or dietician can prescribe them. A district nurse or specialist nurse can help arrange a prescription for you. It's possible to buy them yourself but they are expensive. If you use them you should be monitored by your doctor or dietician. These supplements come as a liquid in a carton or bottle, and are either milkshake style or fruit juice style. The milk based ones include

    Ensure Plus

    Fresubin Energy

    Fortisip

    Resource shake

    Ensure Plus Yoghurt Style

    Fortifresh Yoghurt Style

    Clinutren

    and the fruit based ones include

    Ensure Plus Juce

    Fortijuce

    Clinutren Fruit

    Resource Fruit

    Provide Xtra

    In most cases you have these between meals and carry on with your normal diet as well. Drinking between 2 and 3 cartons a day gives you a substantial boost to your overall nutritional intake. You should not take more than your doctor or dietician recommends, as the drinks contain vitamins that could be harmful in large amounts. Tell your doctor, dietician or pharmacist if you are taking any other vitamin supplements.

    Try the High end Calorie drinks 300 cals each carton fuit ones are lovely I have tasted them when I was on a course for Nutrition ..you can get these from your GP on prescription as you are unwell..you must have something, Please dont just leave it.

    • Welshfairy
      Welshfairy Ginagirl

      Posted

      Thank you for this info, I will ask my GP about them. He told me today that anything I eat will cause some discomfort as the gall bladder will still kick in and as it's been irritated and has stones in it, it will gripe. I don't know if they plan to operate, I feel they should but I discharged myself from hospital so it threw a spanner in the works. I have to go back for more bloods so I will get in and see someone then and get onto this. Many thanks x
    • Ginagirl
      Ginagirl Welshfairy

      Posted

      Well if you have pancreatitis and gallbladder issues in the end they will have to operate keep on at the GP or if the pain persists call the Paramedics..at night they will admit you.   Needs sorting asap tell the GP you dont want to end upwith perotinitis which is possible with what you have and serious enough.. Really if you are not eating anything it should be sorted and you should be on a venous drip 5% Dextrose..If you are admitted they will do a blood screen anyway. Don't hesitate to call them. In the mean time drink plenty to keep yourself hydrated. Otherwise you will end up with a horrendous headache.

      Best of Luck to you..

      Retired Staff Nurse RGN Dip He..of 33 yrs NHS.

    • Welshfairy
      Welshfairy Ginagirl

      Posted

      Thank you, I am doing my best with drinking water and I have been managing to eat without much bother. It's not a lot but I can build on it hopefully. I shouldn't have discharged myself really but I have other health issues that they didn't seem to know what to do about. I needed to get home to my kids and it all got too much with conflicting opinions from one doctor to the next! My stress and anxiety levels were through the roof. I've felt better since coming home but unsure if I'm physically better. 
    • Ginagirl
      Ginagirl Welshfairy

      Posted

      Best place is home.. If you call out the doc at weekends or night a Locum will visit then you will get another opinion. Hope you get it sorted soon x

       

  • kim59492
    kim59492 Welshfairy

    Posted

    It infuriates me when I read what's happened to you because a similar thing is happening to me right now. 

    My consultant thinks mine is anxiety and offered me amytrypltiline which I flatly refused as I get palpitations and they can cause problems with people who have cardiac problems. 

    So because I refused the consultant thinks I've undermined him. He also offered me citalopram as he's seen reports of low dosage helping with stomach pains. I didn't want to take an antidepressant but I thought if I said no again he wouldn't do anymore to get to bottom of my problems. So I'm giving it three months. If there is no difference I'm going to go to a different doctor. I hate the way they just dismiss us. It's not them living this half life daily. They don't seem to give a damn. 

    • Ginagirl
      Ginagirl kim59492

      Posted

      Try it Kim it may help with the Anxiety, you may have the pain because you are uptight with things..I understand Doctors do dismiss things you have to be very firm and tell them what you want.. Research things and support what you say with evidence...some can be condescending..

       

    • Welshfairy
      Welshfairy kim59492

      Posted

      It makes me angry too, I'm already on medication for mental health problems that I have battled for years so they can't mess with that thankfully. Not that they have a damn when I ran out during my hospital stay, just looked at me blank so I ended up discharging myself, I needed my meds n was due a review! 

      I'm going back to my GP Friday to discuss my blood results and possible re-admittance (if they will have me) I should never have left. But I got scared n scarpered. 

      I hope they sort u out soon, it's not a way to live and being told how common it is doesn't help anyone either. I'm sick of hearing it. 

  • pauline1920
    pauline1920 Welshfairy

    Posted

    Erm my Consultant says it's rubbish but she drinks grapefruit juice to stave off attacks and whatever my dr says for her it's worked
  • sandy40093
    sandy40093 Welshfairy

    Posted

    You might end up going back in because of the pain anyway, with Pancreatitis there is a risk of death, your stones cause serious inflammation and block the bile duct, I had pancreatitis from this and stayed in 7 days not eating for most of them, they discharged me with health drinks and the doctor refused to give me more on prescription because of NHS cuts.   They couldn't at the time find my gallstones and it took 5 tests to finally find them months later and then my gallbladder was removed quickly but the swollen bile ducts remain a problem which I hope will resolve it in time.  Once gallstones are on the move things get very dangerous and painful.  At home after pancreatitis I had a day of extreme pain and called an ambulance but they didn't take me in, I believe this pain was the passing of the gallstone from the bile duct into the intestines but I really should have been taken in and not waited for more tests.  They did not find the stones on a CT, two Ultrasounds, once and one ensocopy, the 2nd longer endoscopy finally confirmed the stones, at least you know you have the stones and that is a start.  Please try and get it sorted asap.x
  • sandy40093
    sandy40093 Welshfairy

    Posted

    Keep to a liquid diet, try lots of apple juice for a start of an attack and keep away from most fat and meat.
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