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My names Emma and I am 17 years old, I want to tell everyone my story on gastro reflux disease.
I've had gastro reflux disease since I was 13 years old, all throughout GCSE's and now through college, I am in so much pain, I am out of breath, weak, I don't want to eat, I have no energy and I have pains in my chest and my upper stomach, since going to my gp from the age of 13 they was no help, neither was all the hospitals I visited, they said 'it's stress from school' I was only diagnosed with GORP or whatever it's short name is a year ago, when I finished school.
They have given me High dosage from 40mg -60mg a day, and they haven't worked, I am fine for 2 weeks then bed ridden for 4-7 weeks, I have no comfort from laying in a certain position I can't get these pains to go, I cant do anything. It comes and stays the pain never goes.
The only way I can ease the pain is from hot water bottle, which got so bad at one point I burnt all of the skin under my chest area from having the hot water bottle too hot and long on my skin, even from taking multiple tablets for it as well as had to re book my gastroscopy (camera down the throat) 3 times because the places they send me too can't do my age as I'm under 18.
I have kept myself at the same weigh 8stone 6 from when I was young I haven't changed, and I have a very good diet, no foods start it, the symptoms just come when they want. The top of my bed is higher by 8 inches and I'm still getting the acid causing problems in my mouth and throat. I'm sick to death and so ill, I can't do anything.
It's ruining my life, please can anyone help me? Has anyone got anything that can help?
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