Getting upset
Posted , 8 users are following.
Hi as well as depression I have copd and have been trying to get some advice on my inhalers and need to see the copd nurse, but the NHS is making it very difficult.. Why don't they understand that things are 10 times worse for depressives and treat us less officially? I have been trying to negotiate the system and I give up now as it's getting me more and more distressed and thinking what's the point of it all? I might as well self treat and hope I get it right. If I don't who cares? Certainly not me... I might as well give up now....
1 like, 53 replies
RHGB hypercat
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lynne82155 hypercat
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Its tough I always say if I had a broken arm it would be fixed but when it comes to the mind its russian roulette.
Stay Strong
hypercat
Posted
I can't get the help I need and trying to negotiate an uncaring system is making me very upset and my depression worse. I am trying to fight off suicidal thoughts at the moment and am feeling like s...t and just can't cope with it all.
I can't see a doctor about it or a nurse in person (just over the phone) so what am I supposed to do? Self treat and not give a d...n like they obviously don't. If I get it wrong it's tough isn't it?
What happens when my copd gets worse (it is progressive) Things won't get any better will they? Why bother when I can't get proper medical advice? I'm finding it hard enough to deal with my depression let alone anything else. I am on my own as always and things will never get any better. I will just get older and sicker and then I'm dead. I'm 62 now and don't want old age on these terms.
RHGB hypercat
Posted
Either it is imporatant enough for your GP to refer you or it isn't, but you have been offered a call back over the phone.
Imagine if next time you really needed help, but the waiting list was so long (months) because they kept dealing with walk ins all the time and you got bumped down the list.
Speaking of walk ins, have you checked if you have a local walk in NHS centre, they may be able to help you.
lynne82155 hypercat
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I have never heard of anything like this before, in my surgery you can get a doctors appointment in 2 days a nurses appointment in 4 days.
RHGB lynne82155
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"I don't need a referral to a hospital,"
The OP seems to want a vist to the hospital nurse without a referral from their GP. At no point have they stated that they have been to their GP and been refused. They seem to be trying to get an appointment without a referral, which is a no go and won't accept a telephone call back from the nurse.
There seems to be no reference to a refusal, more an attempt to bypass the system.
hypercat RHGB
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A nurse at my surgery did my copd review. I need to ask her some questions which would be very difficult over the phone. I am not trying to bypass any system but just trying to get the help I need. If you can't be supportive or nice please don't reply to my post.
hypercat RHGB
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lynne82155 hypercat
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If I called my surgery today I would get an appointment with a nurse by Friday if I wanted to see a doctor I would get to see one Thursaday, If it was an emergency I would get an appoinment with either of them today.
People on this forum are just trying to help
RHGB hypercat
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If you had explained this earlier it would have been a lot easier, you would not have had myself and others trying to guess solutions. Give people the full details and they will be able to give you the best help.
I have asked for a lot of help in these forums in the past six months, in more than one forum (I have several problems). But I am always clear on the issue, so people know how to respond and I don't snap at them if they get it a bit wrong because I haven't explained myself.
Have you asked for an appointment and what date did they give you?
lorraine52317 RHGB
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I have seen quite a few responses of yours to other people which i considered harsh/blunt or unnecessary. On these occasions I have been sorely tempted to say something to you, but refrained. I would suggest you re read the post you sent to hypercat! And ask yourself was that necessary! I understood exactly what hypercat was saying. In fact if you had read it properly, you would have too! when your feeling low and unwell, the last thing you need is a response like your one!
1. If hypercat designated nurse wasn't trained in COPD/other breathing issues, hypercat wouldn't of been seeing her.
2.she wasn't asking you for a solution. She was venting her frustration around inhalers.
3. It's wonderful you manage clarity on every post you send, but this does not entitle you to blast people when you haven't grasped what's being said.
hypercat has helped many people here. Always displaying kindness and compassion. She rarely posts about herself...and look at the response she recieves!
If you don't understand something, there's absolutely no excuse for harshness/lack of sensitivity. If someone is saying they feel 'sh.t' why would you respond like that???? If you haven't got anything nice to say....say nothing at all!!!
We are all sufferers here and without the certainty of thoughtfulness/considerate responses....We wouldn't have this great outlet!
hypercat lorraine52317
Posted
You are right - I rarely post, but foolishly when I do I hope to get the same support that others do, and it just makes me question why I bother trying to help and understand others. Fortunately most folk on here like you are brilliant and do try and help. We do all suffer from depression, and the point I was making in my post was the difficulty of dealing with normal events when my depression is bad again like this.
I am seriously considering my commitment to this site and am debating leaving completely. If I did I would of course be there in pm's for the good people on here.
Bless you Lorraine for understanding and being your usual lovely self. Bev xx
lorraine52317 hypercat
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god bless you always ♥♥
fee25 hypercat
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Bev, I have a few family members who suffer from COPD, it is a horrible disease and I am very sorry to hear that you have been diagnosed with this. However, it is totally manageable! Which is great. But, you need all the support and information that you can get from your local surgery. I think it is absolutely awful that it has been so difficult to organise an appointment to talk through your inhalers with a nurse, that is what they are there for! It does sound like your GP practice is lagging!
It's really difficult and in fact, feels pretty impossible to push for help on these things when you are battling depression. I don't know what your conversations with the surgery have been like so far, but I would just flat out demand an appointment. My mother is a specialist nurse and so often she has to call up doctors and GP's on behalf of patients and shout at them to do X, Y and Z!
Please don't give up on it though. I know it is so frustrating but it is so important that you have the right information to manage your COPD!
I'm really sorry to see that you have been talked down to in such a way on your post, Bev. We come here seeking support, advice and positivity not grief! It is a sensitive time and everyone using this forum needs to be sensitive.
You're genuinely such an important part of this forum, you are integral to its usefulness! Not only for me but, for everyone. It was only a few days ago you were offering me support when I was having a hard time. And that is just one of the countless times you have been there for me. I know that personally, I could not ever thank you enough for what you have given me. I have no support in my everyday life and it is people like you on this forum who keep me going! I hope that you do stay because I know there are a lot of other people who appreciate your kind words and loving nature. It seems strange, we are all strangers, this is an Internet site...but the effect that it has on our lives is massive! And for the most part, it is a wonderful crutch!
My post the other day was about the difficulty of dealing with everyday life whilst suffering from depression, it is so hard. Too hard. And I cannot understand why medical professionals especially don't recognise this and treat the situation sensitively. They are stretched, I know but, we are the patients, we need and deserve the help. You deserve the help you need from your GP surgery but, you know you will always have love and support from us here Bev.
I hope you are feeling okay xxxx
lorraine52317 fee25
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Your response to Bev has made my day!
God bless and I too agree with your comments about Bev's value on this site.
god bless ♥♥
elizabeth20203 RHGB
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Elizabeth
hypercat fee25
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I was very upset when I wrote the post and I needed support and understanding and emphathy. Thank goodness I have got it from you fee, Lorraine and most of the others who have replied.
I too have very little support other than here and I am so grateful to this site and the wonderful people on it who all understand what depression is like to live with. It is funny but we, because of our shared experiences, can sometime be closer than real time friends who can't relate to us.
I hope you are feeling a tad better than a few days ago fee. Remember what we said won't you? And remember too that no one can expect more from you than your best. If they do it's their problem not yours. OK.
Bless you for your kind words love. Bev xxx
lorraine52317 elizabeth20203
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What a dreadful shame if hypercat elects to leave us over this. The comments by RHGB were harsh / inconsiderate and totally unnecessary.
God bless ♥♥
hypercat elizabeth20203
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I have been battling strong suicidal thoughts again for a while now and I keep thinking what's the point of trying to get help when all I get is knockbacks. It sickens me how much we have to fight whilst suffering from our depression which makes it a lot worse.
Thanks again love. I hope you are ok, well as ok as possible. Bev xx
elizabeth20203 hypercat
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Best wishes. xxx
hypercat elizabeth20203
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hypercat lorraine52317
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hypercat
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fee25 hypercat
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It is so interesting, that we share with each other what even those closest to us in every day life may not even know! It definitely creates a very supportive atmosphere. People with depression can struggle to fully understand. To be honest - I didn't really understand depression at all until I lived it! It's a unique illness but, everyone here understands and offers a shoulder to lean on
Stay strong Bev! Life is so very difficult, but we are in this together!
Fee
xxxx
fee25
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audrey96558 RHGB
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Understand that people who post here are seeking to vent, to rage, to get support...
I understood all posts and even if I didn't I wouldn't attack.
So pack it in.
We are here to support one another, not add to strife or question.
Just a thought.
hypercat fee25
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When my depression is bad anyway having to deal with everyday life leaves me feeling totally inadequate, stupid and hopeless. Unless I can take control of this I can end up feeling suicidal. One of my coping strategies is to come in to a safe place like this and vent. Getting back the positive vibes really helps stop the slide.
This is taking a chance though as if folk are not supportive I can overreact and slide further down into the black hole. My moods plummet that quickly which is very frightening.
Many thanks fee for being one of the lovely people who support and care for others, and totally understand. Love Bev xxx
hypercat audrey96558
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I totally agree we are here to support and help each other. If anyone won't do that then they have no place on here.
Thanks Bev xx