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GLANDULAR FEVER IS GETTING WORSE . FEELING CHOKED WHEN LYING DOWN. TROUBLE SWALLOWING. PLEASE HELP!!

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angelrose
angelrose

I'm 47 I've been ill for 3 months now. I thought it was the flu until it was confirmed I have GF that was 2 weeks ago. I've been to emergency 3 times now as it is effecting my breathing and swallowing. I have been taking prednisone for 3 days but it hasn't taken away the lumps in my throat or swallowing difficulties. I get terrified at night that I'm being choked. I can't take this anymore, it just won't get better. Any advice please? I pray everyday for God to heal me.

0 likes, 26 replies

26 Replies

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  • Gerbear
    Gerbear angelrose

    Posted

    Oh you poor dear, this GF virus is a nasty one.  I also had three courses of prednisone, each time I took it for a week(decreasing the dosage daily as prescribed).  I can only offer my support and the advise to rest, rest and rest  more.  The symptoms vary from person to person but will improve with time.      A healthy diet, plenty of fluids and vitamins have been a key for my lifestyle since diagnosed with mono (GF).  
    • angelrose
      angelrose Gerbear

      Posted

      Hi Gerbear, thank you for your kind words. I'm so sorry you are suffering yourself. I was told to take the steroids for 3 days 1 1/2 a day. Yesterday I was feeling a bit better but it's 100 times worse today. I don't know why the steroids haven't helped. The doctor's underestimate how debilitating this illness is. They keep telling me to "ride it out ". I have cervical stenosis and this is much scarier as it affects my breathing and swallowing. I agree with the vitamins but I find it hard to swallow pills. I'm eating yogurt, cold soup and milk. Even typing this is making me tired. Take care, blessings.

    • Gerbear
      Gerbear angelrose

      Posted

      I remember saying to my husband "I don't think I will ever get better". This virus messes with your mental status and ability to be positive and have a hopeful attitude. I also remember being soooo frustrated with my doctor because he had nothing else to offer me, he just kept saying that I needed to go home and rest.  I tried to get an appointment with a specialist but no one would even see me because they said that there was nothing that could be done for mono (GF) patients.

      We, on this forum, understand the exhaustion and stress you are feeling.  I hope your throat is getting better.  I still have good days and bad days. Right now I am finally having more good days than bad days--that is a huge improvement!  However, I am not well enough to go back to work.  Have you scrolled through and read other posts?  Maybe reading these will help you.

      My prayers for your healing are with you!

    • angelrose
      angelrose Gerbear

      Posted

      Hi, thanks for your kind support. I choked on a soft biscuit this morning, I was terrified. So I went to ED again, crying with fear and exhaustion. It's the 4th time I've had to go to emergency. 3 days ago they put a tube in my nose to look at my throat. It was a terrifying experience. They didn't find anything abnormal thank God. Now they're saying I have anxiety and the lump I'm feeling in my throat is a psychiatric illness. My 70 yr old mum was with me and got so angry with the doctor. I was so upset that he didn't believe me. The lump in my throat is stopping me from eating solid foods. I'm so tired and weak from this illness. I will read everyone's comments. It's a comfort to know you all understand. Thank God you have a loving husband. Blessings

    • Aquin
      Aquin angelrose

      Posted

      That's dreadful sad I will be thinking of you and hoping for improvement soon. We believe you and we're all in this together.

    • angelrose
      angelrose Aquin

      Posted

      Thankyou for your support and for believing me. I think I got unlucky with that nasty doctor yesterday. I feel for others who are suffering from this horrible illness.
  • Aquin
    Aquin angelrose

    Posted

    Hi Angelrose,

    So sorry to hear you're going through this sad i wish i could say something to help you. Unfortunately there's not much that can be done for this horrid virus but im sure your throat must calm down soon. If it gets worse definitely go to emergency again. You could always go back and tell them the prednisone is not helping, they may have something else you could try. Keep an eye on it. Lots of liquids and soups etc. Have someone to take care for you!

    • angelrose
      angelrose Aquin

      Posted

      Hi Aquin, thanks for your reply. I've been to emergency 3 times now and each time they say the same thing. I can't take the prednisone long term as it prevents me from taking Aldactone for PCOS. I'm scared it's never going to get better.

    • Gerbear
      Gerbear angelrose

      Posted

      Angelrose, how are you doing?  Has your throat calmed down?  I can relate to the overwhelming, intense feelings of fatigue and emotional turmoil this virus causes.  Wishing you well!
    • angelrose
      angelrose Gerbear

      Posted

      Hi Gerbear, I'm still suffering with the razor blade throat. I'm so sorry you have the same exhaustion and sorrow. It feels like you've been on a treadmill all day. I've spoken to many people in the past few weeks. And nearly all of them have suffered from GF. They all had similar symptoms and said it took them months to regain physical strength. Does it take you longer to walk around the house? I'm like a snail, I feel like I'm 100. I still don't know how I caught it. I pray you bounce back soon.

  • Satay
    Satay angelrose

    Posted

    You must try and stay positive, this is just the present but you won't be like this forever. Having an illness like this not only makes you feel physically ill, but mentally also. Try talking to people about it and looking into the future instead of feeling worse about the present

    • angelrose
      angelrose Satay

      Posted

      I'm usually a positive and optimistic person. I agree it does make you depressed. I do have faith that myself and everyone else who's suffering will heal from this. Thank you.

    • Satay
      Satay angelrose

      Posted

      I'm 17 now and was 15 when I had glandular fever. I got to the point where I didn't want to carry on because I got so so low and thought I'd never be better. I had 6 months off school and had no social life and felt like I'd lost a lot of friends! It's just so important to get through with keeping a positive mind. One thing that did help me massively is keeping a diary of how I was feeling, I hope this can help X

    • Aquin
      Aquin Satay

      Posted

      Did you feel fully recovered at 6 months?
    • Gerbear
      Gerbear Satay

      Posted

      I have been keeping a journal also.  I do not write everyday--usually once a week.  Looking back I can see the improvements I have made. I still have a long way to go. If only I could get over having the daily headaches, nauseated and hot flashes.  It usually becomes so severe that I have to take a pain pill, nausea pill and go to bed.  It is so strange because it does not seem to matter how much or how little activity I do.  I have not returned back to work yet, so I have plenty of time to rest.  So far today I have not had one of those mysterious attacks so, fingers crossed that I am getting better.  I usually get one of those attacks 4 or 5 days a week.
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