GP Refusal(s) re Classification/DS1500 Form For PiP/DWP?

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My new NHS-GP had previously refused to complete my DS1500 form & today, I had written confirmation of this after:-

1) i had been confirmed with having a tumour of the Pancreas in early Oct. 2014, why? &;

2) I had symptoms of this from early June 2014(my former GP practise refused me physical examination) why? &;

3) this former GP had damage of my immune system since 2008 but had refused then, my request for investiation, why? &;

4) it was DWP staff who in late Sept. 2014 stated that; (a) I had 'a terminal Illness,' &; (b) instructed me to go to my new GP practise & get him to complete a DS1500 after; (c) I notified them of my change in circumstances (My Tumour) &; (d)they DWP, confirmed that I had applied for PiP in late 2013 but which still has not been processed, why?

5) what shall I do, can anybody advice please for, (a) I cannot get PiP without my GP, completing this form & according to DWP I'm entitled? &; (b) my former GP refused in 2008/2009 to complete DLA forms, even though I've had serious comolications to my spine since, 1999/2006/2008? Thank you.

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  • Posted

    hello Stuart13,  I did & they won't /refuse & my new GP who refused today in writing is the Head of the GP practise, like my former GP, who also refused(since 2008) my request(s) re DVLA & yet the NHS website clearly state that I should be getting, PiP!  JonDsail
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    • Posted

      sorry that should have been DLA(Disability Living Allowance) & not DVLA(which is for motorist..)

      Thank you Stuart13 for your input...

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  • Posted

    I'm a person with a Disability since 1999, unable to work!
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  • Posted

    I went to my local MP after going to an ATOS assessment in which the so called nurse lied about my condition.  She stated that I go out socialising with ex work colleagues and I walk a mile everyday without issue and I can bend over and pick up a brick. amongst other issues. I have filed a complaint with the nusring body and Atos.

    I had my esa stopped based in her statement even though my doctors have stated I am not fit for work and no one will insure you to work with machinery when you are on medication like tramadol.

    I write to Ian Duncan and then I wrote to mu local MP who has been fantastic and rang DWP and sorted it out within Half a day. if you are as lucky as me to have a good MP. I must point out they are duty bound to put you to the top of the list and if you are lucky he she will help you.  if you need more help I can help. 

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    • Posted

      thank you Robin0... sorry new here so put my reply/info down below, i need to get used to this Forum/system... thanks :-)
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  • Posted

    Jon--sorry for what you're going through. i don't have any help for your terrible problems with the bureaucracy as i am in the US and unfamiliar with NHS, except that i had benign tumor of the pancreas, insulinoma, and i was particpating for a while in a discussion/support group for that kind of tumor, and the group was started by someone in the UK and most of the members were in the UK.  

    Something i learned on that group about treatment through NHS that is not consistent with your experience, if i understand it, not sure that i do, was that if you had a tumor on the pancreas, even if it was likely to be benign, it was considered to be cancer until proven otherwise, and thus, such cases were prioritized and there was a rigid standard time frame (something like 30 days) at which point the case had to be treated. Any cancer diagnosis was treated as urgent, there seemed to be agreement on that, although sometimes cases could fall through the cracks and patients had to advocate for themselves, whether through their consultant or by changing medical centers. Again, this is foreign to me, just telling you what i read on that group where patients share experiences. i was on the group this year between June and September.

    (Insulinomas are usually but not always benign and one doesn't know for sure until surgery and pathology of the tumor).

    Reading your post, i was just wondering, when you say you were confirmed as having a tumor of the pancreas in October 2014, how was that confirmed?  What diagnostic procedures did you have, and are the results documented, are there medical reports?  Do you have copy of documentation or can you get it?   Is there any more specific diagnosis than 'tumor of the pancreas?'   Do you know what kind of pancreatic tumor you have?  There are various kinds, with different treatments and prognosis.  You said that in September 2014 that DWP staff stated that you have a 'terminal illness.'  Do you know any more specific information about the diagnosis?  I'm not sure what they mean by terminal.  Did they tell you there is no treatment?  or have they discussed treatment with you?

    Sorry if my questions are ignorant.  I don't know what a DS1500 is. i don't know what DWP stands for (i live in Los Angeles--here it stands for Department of Water and Power, not very popular).  

    I was just prompted by your post to write because i feel so concerned that you have a serious illness without much information about what it is or what to do in order to have treatment for it.  On the insulinoma list there were people, including the person who started the group, who have malignant insulinoma and are living and functioning (working) after many years, although they had some really complicated difficult surgical treatmens for these tumors which, if malignant, can be recurrent. 

    Because i don't understand your situation, i can't help thinking that this might be a case for an attorney, if they are delaying treatment for a 'terminal illness,' which could make a difference in your outcome. 

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    • Posted

      sorry, DWP stands for Department For Work & Pensions & since I have this aggressive tumour(re-confirmed last Friday(in Birmingham, England) following a scan, I cannot work & thus need my GP to complete the PiP(Personal Independent Payment) DS1500 form but he won't, just like my last GP, refused to(2008,2009), even though I was identified as having a Disability since 1999(lower Spine Disc) & two car accident(s) occurred to me(both times the other persons admitted Liability) in April 2006 & Dec. 2008 & I was left with severe whiplash. 

      In 2013, another Consultant confirmed my condition as being serious & when his injection did not work, I was sent(I thought for spinal surgery) to another Spine Consultant but they were economical with Truth and I was refused surgery &, refused referall to external county for surgery!

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    • Posted

      sorry, because the website says [url=https://patient.info]patient.info i thought everyone was from U.K.
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    • Posted

      they have not even appointed a McMillan Cancer nurse for me, despite my highlihting that a guy at my hairstylist said he had one..
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    • Posted

      i had a biopsy taken more than 3 weeks ago and, I was told it's malignant tumour/cancer Adocosinoma last Friday afternoon..
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    • Posted

      robin0,  I have a lousy MP, so lazy & doesn't want to do anything i.e. my little daughter was/is a victim of her mum losing temper & DV inflicted upon her & my LibDem MP/local councillor are part of the cover-up, as are social services/police & that's why deaths into children like Victoria Climbe, Kyrah Ishaq, Daniel Pelka etc. happen.  The Savile Inquiry/Report highlighted cover-up, that's why he/others were able to carry on their Abuse, because government paid dept. staff/police/headmasters cover-it-up... I need to live, survive this tumour, to protect my little girl Eve, before she because yet another fatality statistic & these 'evil' group of government people aide & abbett the Abuser...  
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    • Posted

      nothing for you to apologize for, i ended up on this site for a different medical condition, there are lots of people who post really good information on these forums. i'm signed up with the pancreas forum so i get notices when anyone posts anything.  
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    • Posted

      if your mp is crap then go to a neighbouring borough and explain.  as for your kids I know the feel my ex wife  has done the same and has even told the eldest I am nit his dad. he hasn't been for 9 months and has told me if I am not his biological dadvhe wants nothing to do with me he is 12. my daughter wisher her mother dead and all been well she is moving in with me and my wife and her half brother.  My ex poored hot coffee on me tried ustab me had me arrested. and the police even said they will get her one day as she is a lair and fraudster wuth a violent nature.  social services are sh*t said she is a mother that needs support. I know how you feel but be honest with your kids and record everything even when you drop them off and it all builds a picture of evidence. 

      keep fighting. as for benefits get hold of the news papers as its election time and apeak speak to your local conservative or labour candidate. believe me the will run with it.  

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    • Posted

      sorry, i had posted my other post asking about the specific diagnosis before seeing your post---Adocosinoma. i googled that--i didn't find exactly that, what i found was close, adenocarcinoma of the pancreas.  Google's first link was to the center where i had my surgery done.  it says there is staging, and they seem to be saying it would only be called terminal if it's spread to other organs, not sure if your scan showed that, but if it's not spread outside the pancreas, there is surgical threatment which can remove all the cancer, followed by other cancer treatment, chemo and or radiation, to get the microscopic stuff. If it's spread to some blood vessels that go outside the pancreas, they can't remove it surgically, but they will treat it with chemo and radiation, and if those things work as intended, shrinking the tumor, then surgery to remove all the cancer may become possible. it's only incurable if it's spread to other organs like the liver or intestines.  In that case, they focus treatment on maximizing comfort and quality of life.  Those are the three stages. No matter what, you should not have to wait for treatment.  No wonder you're so frustrated and at a loss for what to do. 

       

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    • Posted

      thank you Jaw444... sorry new here so put my reply/info down below, i need to get used to this Forum/system... thanks :-)

      by the way, jonDsail is from the USA, Beach Boys song so hang up your jonBsail, just a coincidence that you're from states... :-) God moves in... ways!

       

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    • Posted

      This 'Tumour of the Pancreas' prevents(due to abdominal pain/spasm's) a person from sleep at night time, so this the only time I can get things done & I end up sleeping in mornings & a few hours in afternoon...

      I should try writing/complaining to my MP(member of Parliament, Senate in USA) like above mentioned but letters to him/to government ministers, others medical departments alongside all my other letters, is a bit much & somewhere I need to tidy through my mountain of paperwork for solicitors/lawyers too...  thanks 

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    • Posted

      jon, i've been on these forums for more than a year but i keep getting confused about where to put the reply.  Maybe you'll get it down, good luck smile  i think this is a good forum to come to for info from other members, i hope you will find what you need to unlock the barriers you're facing.  wow, you're from the USA.  that is a coincidence. I was only to England one time, 1968, summer, i loved it, the people, the vibes, and i beleive universal public health care like NHS, which US lacks. i've heard others on this forum report really good experiences with NHS. i hope you can find a way to get experiences like that, you deserve the best in medicine and other support. Sorry you have a lazy MP.  It sounds like Robin has a really good one.  I'm really sorry to hear about your daughter Eve--what a helpless feeling, when the people who are supposed to protect are the ones who are doing the opposite--then where can you turn?   I'm glad she has you, knowing what she's going through--that makes a big difference to children, to know that someone understands and cares. I hope you are able to see her often.
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    • Posted

      i'm going to be moving up that way hopefully early next year, probably to Oakland or San Leandro, that's where my family is, daughter, son in law, baby.  i am waiting to recover from the pancreas surgery so that i can pack and carry boxes and things like that, so i can get my house ready to sell, it's mind boggling. i think it's been 12 weeks since the surgery (september 9).
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    • Posted

      That's great.  My daughter lives in Fremont.  I like the Valley.  Maybe you can get in to UCSF. They have an entire Pancreas Center.
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    • Posted

      adenocarcinoma of the pancreas... yes I think that's what he meant..

      Myscan did not find the tumour had spread anywhere else, so that's positive!  But I only have their word for that, I've not been shown anything/scans however, at some point, we have to trust these doctors that their not lying even though many are full of half-truths!  :-)

      Yes I'm frustrated but thankful, blessed by people like you, who've been through the process, so that we can ask questions, this benefits most persons, who've just been identified with Cancer/Tumours. Thanks.

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    • Posted

      a recent Nov.2014 scan, EUS found the tumour at the Head of the Pancreas & a Biopsy was taken.  It was only last Friday, I found out that they did not check to find out how agressive it was i.e. a different type of biopsy was taken & it was only then I found that out, despite requesting in early October 2014 that I wanted to know how the type & how aggressive the Tumour was & I was given undertakings then & throughout but, it didn't happen!
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    • Posted

      all the research I've done mate, indicates that by the time as patients, we experience abdominal pain, the tumour/cancer has already spread & one of them was from the Pancreatic webpage of USA's John Hopkins Medical University Hospital so like many I was concerned but last Friday, I was told opposite by the Consultant/surgeon whose going to be carrying out my pancreas head removal that, mine had not spread & I had a more recent CT Scan fo my Liver/Gall Bladder/Kidneys etc. all the major organs below my rib-cage & they didn't find anything!
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