Grateful for the surgery - go ahead and do it

Posted , 5 users are following.

Hello everyone,

I had a huge fibroid larger than 1500 ml. Went to myomectomy but ended up needing a hysterectomy due to bleeding during surgery. I had a subtotal hysterectomy, cervix and ovaries were kept. I was very anxious about everything: surgery, what I would be like after surgery, anesthesia, death, every f thing. I had read and watched all videos around the internet about how bad it is after a hysterectomy, that sex is never the same again, that your body will look just awfult, etc. But the fibroid was *so* large, I looked 7 months pregnant without a doubt, and I could not walk properly and felt very sick all the time. Menstruation hurt like hell. In the second half of my menstrual cycle I lied in bed all the time and felt really bad.

Just wanted to let everyone know that 3 days after surgery I was walking around the house and already feeling better than before the surgery. One month after surgery I was really eager to drive and to swim. I was so cheerful and had my energy back. Sex is just like before I had any problem, and this  means much better than when I had the huge fibroid inside me. Now it is 4 months after surgery and the only physical problem I have is that I gained weight while I had the fibroid due to not being able to exercise. I feel just fine!!

I am so grateful for the doctor that performed my surgery and for medicine in general. I am just so happy I had the surgery and feel like a fool for having worried so much.

Just wanted to post this to all of you who are going through the trouble I was going thru. I advise you to get a subtotal hysterectomy, too. I am happy I kept my cervix. Some doctors told me they would not let me keep it but I did not choose them.

Medical science is just wonderful, go ahead, fix what went wrong with you and continue to live life!

 

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  • Posted

    Glad to hear it went so well for you. That's my dilema, were they able to do your surgery keyhole? Why didn' you consider embolisation?
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  • Posted

    A huge fibroid (mine was larger than 1500 ml)  is a strong counter-indication to both keyhole surgery and to embolisation. I have no experience with those. All I can say from experience is that my laparotomy was not nearly as bad as I thought it would be. I am really alright. The scar is so low I can wear any bikini I want. It is fading quickly.  I am just happy to have my life and patterns of behavior back.
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  • Posted

    I am so relieved to hear how successful your surgery has been.  I am scheduled for a subtotal hysterectomy in less than 2 weeks and am terrified so your post has been really reassuring for me.  I lasted 5 weeks on Esmya, had continual bleeding which then became so heavy I had to be admitted to A&E. My hb had dropped by 3.5 which is a common them for me every time I bleed.  My consultant is a specialist in minimally invasive surgery and didn't advocate the hysterectomy lightly but because of the amount of blood I lose and the consequent drop in hb he said it was the best decision.  I had been hoping to have a hysteroscopic resection but it's actually looking like the fibroid is firmly embedded in the uterine wall so it wouldn't be an easy procedure and wouldn't remove all of it.  To be honest, psychologically I don't think I could cope with any more bleeding.  I'm having an MRI on Saturday - probably more to exclude a myomectomy rather than confirm it. Consultant wants to confirm fibroid position in the uterus to determine if it's that which is causing my heavy bleeding - he has offered a myomectomy but he can't guarantee that will stop the bleeding. To be honest, I've really had enough and just want my uterus and fibroid out now. It was a hard decision to come to terms with but now that I have I just want it over with, even although I'm really scared. Thank you again for such a positive post.
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    • Posted

      Dear caz, you are very welcome and I wish you all the best in your surgery, post-op and in living again without a fibroid ! smile be well wink I am happy to know that my post helped someone
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    • Posted

      caz did they no offer you a 6 month course on implants (Zoladex) or something to stop bleeding - itsthe "big guns" compaired toEsmya you should be on it before surgery whattt about embolisation orkeyhole
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    • Posted

      Hi Heather

      The Esmya was to try and shrink the fibroid. Most women have light or no periods on it but I was part of that small percentage who are at risk of further haemorrhaging! After the A&E trip the consultant took me straight off the Esmya and on to norethisterone 30mg daily. High dose but doing the trick, just feel like I've got bad pmt. Is zoladex one of the gonadotroin releasing hormone analogues, put you into menopause. I think that would have done the trick as well, maybe just consultant choice. Thanks.

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  • Posted

    How big is 1500ml? Mine is 3x14x12 or something like that - melon sized. Smingly 'm at the outer liit for both other procedures. (Embolisation & Keyhole) But my blood cells undr film look like they are sticky (more rsk to clot) so im scared re surgery
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    • Posted

      Hi heather, mine was about that big, or a little bigger.

      I do not know about clotting... Check with your surgeon if that would be a problem. I think that NOT clotting would be worse, as having a hemorrhage is usually a big risk.

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  • Posted

    Thanks Very,

    I know the size is siificant as some medical professionals have used the term massive. I am considering embolisation to reduce then keyhole hopefully would be more likely. My son is young & I am worried.

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    • Posted

      I think you will be all right! When you have your "massive fibroid" away from your body you will feel so much lighter and better! And will be more able to be happy and healthy around your son!

      I just went for laparotomy straight away.... old-fashioned way. Talk to the doctors in your area and be sure to choose wisely. 

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