Graves diagnosis

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A couple of weeks ago I posted in hyperthyroidism about my weight gain. I had yet to meet the endocrinologist then. I have now met her twice, ran antibodies tests and a thyroid uptake scan. All of these confirmed autoimmune Graves' disease, I have just been told today.

I am still coming to terms with the information received today and found online... I will start Carbimazole in the next couple of days.

I am not sure what to expect from now, but I do need to feel better, my heart rate is crazy, the tremors are debilitating and I just don't have power to do half of what I could 3 months ago, despite feeling high all the time.

I have received fantastic support here, I am really glad and thankful.

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  • Posted

    Hey Rita, hang on in there! I was the same! Please msg me if you'd like to chat! I'm slowly feeling better now and didn't realise how ill I was! 😷

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  • Posted

    Welcome back Rita ...

    It's not the end ofthe world .. remember I told you how bad I was ... and now I'm Euthyroid !

    Won't be long till you are too !

    Mx🌹

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    • Posted

      Hi madge1979 I'm euthyroid too now but my antibodies are slightly high doctor said normal range is 0.50 and mines are 55 funny thing is I'm getting pain on my other side of neck now and I'm not on any medication they will repeat the antibodies blood test in April again ...don t know what to do ? Thanks .....samy

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    • Posted

      Hi Sammy ... so glad you have had success and now Euthyroid too..

      from memory I still have antibodies .. think ... mid thirties ....GP and Endo...

      cant even be bothered talking about antibodies ... I've been told  Oh once you have them you'll always have them a,

      I prefer to think if you take care if your immune system you can get rid of them ..ll what do they know .. and it's NOT THEIR  BODIES..🙀

      ....I'm Now going to add every other day 

      into my supplements ... L Carnitine ... I'm hoping that will make a difference ... but I'm giving it a shot anyway ..I did use that sparingly whilst on Carbimazole......  I say sparingly , because it is quite powerful and it works 

      well if taken properly .... Linda is great at this ..as she has not only become Euthyroid but has had great success with her antibodies ....  she'll be 

      along here soon .. I just know it !

      im sorry about the neck pain..  could it just be muscular ... how about 

      magnesium oil... rubbed in gently ...also do you take magnesium supplement  .. Magnesium Glycinate is what I use and tolerate it well..

      and make my own magnesium oil.. probably better and stronger than 

      the kind purchased online .. and it works great !  for any pain , discomfort or 

      muscular aches .. if you haven't used it before try it now .. it's NOT an old

      wives tale .. I make it for family and friends.

      Best of Luck Sammy ..try some gentle massage and mag. oil on yr neck and see if it makes a difference .. if not tell GP and he'll retest you.... hopefully.

      luv Mx🌹

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    • Posted

      Hi Madge thank u so much for ur reply I haven't added .magnesium yet but I think I should give it a try and like u and Linda said as well l carntine should be added too worst thing is my eyesight which is getting worse I will start taking selenium and magnesium and will update u if it does make difference to me thank u so much. Luv samy

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    • Posted

      Hi Samy, for me my eyes did not bulge but were always irritated and dry.  Got blurred vision if I was overtired. My ophthalmologist recommended putting collagen plugs into my eyes to keep them more moist as well as using eyedrops.  This worked very well for me.  If you are having eye problems, you should have an eye exam by a optical professional who specializes in treating Graves eye disease.
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    • Posted

      Hi Linda thanks for your reply my eyes r not bulge either they become dry too and then feel like burning eyes and I get really blurry vision I been seen by the Opthalmologist but not not the thyroid eye specialist and I do use hycosan eye drops my eyes got better when I was taking carbimazole since endo stopped it slowly they have become worse don't know what to do?thanks samy

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    • Posted

      Ask your ophthalmologist to insert collagen plugs into the tear ducts.  That helped me a lot.  Also I found a new eye drop that really worked better than the others.
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    • Posted

      Thanks Linda I will ask the doctor and which other eye drops u use? Luv samy
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    • Posted

      Thanks for your reply karmaway how often do u get the neck pain?I get the pain in neck and then my jaw where my thyroid is enlarged but sometime do get the same pain on the other side of neck too
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  • Posted

    Thanks for the update.  You should begin to feel an improvement in heart rate and tremors with start of treatment.  Please keep us posted.
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  • Posted

    Thank you all for the encouraging words! I will write updates here on how I feel when I start the med.
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  • Posted

    I just had my thyroid removed 5 days ago and immediately got my energy back . I couldn't stay awake 2 hours without a nap . I decided on removal because I had a goiter started and slight buldging of my eye started and this way it stopped all that . I got hives when they started me on the carbimozole and the next drug we tried tasted hideous and all day but now after surgery I have a new drug.

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    • Posted

      Thank you Patricia, I will try with Carbimazole first and see how I get along.

      Thank you for sharing your experience!

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    • Posted

      Hi Patricia

      when you say .. now after surgery .. you have a new drug 

      ... do you mean Thyroxine ...   and Not another drug like Carbimazole

      hope  you're feeling fine after your surgery ...

      plug mx🌹

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