Posted , 14 users are following.
I am now a 22 year old male. 3 years ago i went on holiday, went jet sking/quad biking and took abit of battering in my pelvis and back, ached abit and then i was fine... for about 2 weeks. Then all this started, initialy with weak urine stream, pain urinating, pelvic pain and burning in the tip of my penis. It took the nhs more than six months to get me to see a uroligist where slowly i had, ultrasounds, blood tests, xrays, ct scan and a cystoscopy to try and find the cause of pain and urinary problems. nothing was found, i became depressed and remain incredibley depressed. they finaly diagnosed me with Chronic pelvic pain syndrome to which i was given physio and relaxation technics. slowly pain improved over the corse of 18 months but i still have to live with urinary pain and weak stream. since then i have had nerological problems (tingerling in feet, genitals, burning in legs and much of the rest of my body, weaknes in arms legs) i was given a mri of my brain, more bloods, urine tests, nerve conduction studies.... all clear again. recently i have developed siatica and chronic epididymitis (inflamation in one testical) groin pain and worsening of urinary syptoms. iv been given antibiotics that have not helped along with anti inflamitory meds... nothing has helped.
Im looking for anyone with an insight or idea who could help me now.... this is my last resort and im on the edge. knowone should live like this.
any idea of where to look, what could help, what it could be, what to do now?
So far i have had:
MRI: brain. upper spine
Blood tests of nearly everything
CT scans of brain
Nerve conduction tests
Urine tests- (everytime, no infection-EVER)
cystoscopy
X-rays
I have seen Uroligists, neuroligists many times.
my current syptoms are.... pain urinating, slow and weak urine stream, constipation, pain and numbness/tingerling of verious body parts specificly the legs and feet, siatica, mild back pain, very bad groin/testicular pain, occasional weakness in limbs.
Im asking for anyone who can help me... PLEASE!!!
2 likes, 20 replies
john02 ryan992
Posted
Talk to your GP about it. If you are like I was you will try anything! It doesn't work for everyone so good luck.
AnthonyNoel ryan992
Posted
richardd77 ryan992
Posted
John's advice could indeed be helpful as Amitriptyline is often given where there is nerve damage.
It is worth doing some research into Pudendal Nerve problems. They cause very similar symptoms to Prostatitis and your problems. They are difficult to diagnose and many GPs and Urologists aren't very aware of of their existence. If you really believe your physical accident could be at the root of your problem then do research it.
I have written a fair bit about it in other threads of this site (click on my name and follow links). I had a back/pelvis injury that ended my rugby playing career aged 35. I believe I ended up with Pudendal Nerve damage.
The problem with PN damage is that vigoroous exercise or the wrong manipulation will further aggravate the nerve.
Good luck
Richard
john616 ryan992
Posted
can you tell me the name of the antibiotics you were on
bunyy78797 john616
Posted
Solutions to urs problem. pls check immediately if you are still active
david69804 ryan992
Posted
philip70411 ryan992
Posted
ryan992
Posted
i have tryed amytriptiline several times now, at verious stregths. which has always had little to no effect and still leaves me with many unexsplained syptoms. along with verious other pain killers (diclofenic, naproxen, paracetamol ect). The pudnal nerve is somthing i am curently looking into and will ask whatever doc i see next to consider this also. Phil thankyou so much for youre post we seem to be suffering a near identical trouble. With all the tests you have had have they ever found your postate to be enlarged or "normal"? I am also begining to wonder if my back could be a cause for much of this and im currently trying to see a chiropractor at my own exspence to see if i can find any answers. have you done this before?
did this all develop sudenly for you or slowly over time?
philip70411 ryan992
Posted
When I initially saw my Doctor I was told my prostate MAY be enlarged and they therefore prescribed me anti-biotics and I was on them for months! None of these took any pain away. Subsequently I saw another Doctor and I was then informed that my prostate was NOT enlarged but they could not find the cause of my pain, which is when they put me on Amytriptiline etc.....Deep down I have always felt that my problem is one affecting my nerv es because my lower disc is swollen and I feel that puts pressure on the central nervous system. I would be very interested to know how you go on with a Chiropractor...this is not an avenue I have been down. I thought in the very early days (approx 10 years ago) that I had contracted an infection as the pains just came on so suddenly...such as I have told you about pains in the testcles and penis area espcially when I urinate and it can be very very painful. After having many tests...there was no signs of any infection and the whole diagnosis was eventually classed as chronic pelvic pain. I was informed that there were many people who have the same problems and they come from various walks of life and various ages. What used to upset me was the fact that I had never met anyone with the same problems. My colleague who was a fitness instructor treating Doctor Referrals had never met anyone with the same symptoms either and I really thought I was on my own with these problems. I tended not to believe a lot of information I had been given by Doctors etc and I was totally frustrated by the advice I was given. I found this website was useful to me as I have seen that there are many people suffering such as me. I really wish you the best of luck re the Chiropractor and hope you have some relief of pain by going down that route.Please let me know how things develop. Good luck.
George1234 philip70411
Posted
bunyy78797 George1234
Posted
Epididmytis Wikipedia
kevin48399 ryan992
Posted
bunyy78797 kevin48399
Posted
Or
Epididmytis Wikipedia
Mum2girls ryan992
Posted
I have pelvic pain . I'm seeing a chiropractor . Get assessed by one . My pelvis was out of alignment .core weakness and things out of alignment can cause nerve irritation .
Do you do back stretches for the lower back ?
Another thing that's hard to detect is pudendal nerve irritation .
garba42941 ryan992
Posted
Hi Ryan, you are not alone, truly. I have been going through such a distressing symptoms ( frequent urine, premature ejaculation, fatigue, sleepless night, confusion, and numbness in extremities, including groin as well as older right body side ) for almost 10 years now ( aged 33 ) and the situation seems to be escalating instead of improving. My GP recommended MRI scan, though nothing showed and all the blood tests were cleaned. Lastly he put me on amytriptiline which is quite helpful, thus I just feel like stopping taking drugs, because it's just reducing the pain but the underlying causes remains untouched. Hope, we would get remedies someday, somewhere...
bunyy78797 garba42941
Posted
Else check
Epididmytis Wikpedia
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