Hair loss

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Hi I’m posting for advice in regards to my medication levothyroxine and hair loss .  I noticed 2 years ago I was losing my hair . I went to the doctors several times where I had tests take to be told they were all normal (hair loss was my only noticeable symptom) . Fast forward a year and half I went to see a hair specialist privately who ordered tests where it was discovered I had low iron , vit d and borderline under active thyroid . I have been on this medication for 10 weeks and have noticed my hair loss is worse . Has anyone else experienced this and is there other medications available. While all this is going I am also trying to conceive and finding that difficult also . Any help would be much appreciated x

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  • Posted

    Totally anecdotal and no guarantees because actually medical research seems to not be conclusive on levo and hair loss. However I have noticed that whenever my dose of Levo changes, I experience hair loss for about 3 months and I’ve heard of others experiencing the same. No guarantee that this is what is causing your hair loss but possibly could be the meds. See if it doesn’t stop in a few months. 
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    • Posted

      I am always surprised to read about Hair loss in connection with thyroid and Levo . I have been taking it for years and my hair is very thick and fast growing.
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    • Posted

      Same, after the dose stabilizes. It took my doc a while to get the right dose and in those months of changing dosages it would cause loss.
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    • Posted

      Hi Katejo11, did you Have hair loss before your thyroid problem was diagnosed? I’m wondering if it may just take a otter time to settle as 2 weeks ago the doctor told me my thyroid had got back in range and if anything had maybe slightly gone the other way but nothing to worry about . Just distressing as I’m finding my hair everywhere. Thank u for your reply 
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    • Posted

      Hi Emmaloulou. I can't help you there because I was born with underactive thyroid. It wasn't diagnosed until I was a couple of months old so I may have lost it then. I was born with lots of hair.

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  • Posted

    Hi Emmaloulou, sad to say, been there, done that, got the tshirt.

    The levo didn't work for me at all. It was a total waste of time and caused my thyroid disease to worsen. I feel it accellerated my thyroid disease and caused a whole bunch of other problems. 

    My best recommendation is to get a good acupuncturist, and try some Chinese herbs.

    You can also increase your vitamin and multimineral supplements, and try a gluten-free paleo style diet.

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    • Posted

      Did they put you on a different medication for your thyroid? I am currently taking vit d , iron and have changed my diet . Just hoping something works . Thank for your reply
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    • Posted

      I tried a bunch if different meds. Some worked better than others, some were downright harmful. All had side effects and a lot of formulation changes that eventually drove me to call it quits and  find another solution.

      When I stopped the levothyroxin, (replaced with glandular) my hair started growing back... now I've been off the glandular for a year and my hair color has improved greatly. All the wiry white hairs are growing in normal. 

      I take essential amino acid complex. It works better than the meds with way fewer side effects!

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    • Posted

      Hi Catherine ..what do you mean replaced with glandular? I am so confused right now ...I want to do the right thing but am afraid of more hair loss. I don’t think Levothyroxine agrees with me for many reasons ...have only started on a low dose & my bloating &  hair loss have significantly increased since  starting Levo. Ive read so many different opinions on Levo but I def know that things have been worse since starting it. I’m afraid to up the dose & then possibly experience even more hair loss.  don’t know what to do. 

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    • Posted

      Ms Joey, if you’re having bloating and hairloss at a low dose of levothyroxin and your gut is saying it isn't working, follow your gut! Stop taking the levothyroxin before it makes you sicker. The higher the dose and the longer the duration, the higher the risk of longterm side effects. 

      Glandular thyroid replacement consists of freeze dried bovine (cow) or other animal thyroid gland. This sort if treatment has been around the longest, but went by the wayside because, as a natural product,  there’s no way to patent it. The hlandulars are the most effective with least side effects and are available without prescription.  

      The patentable products are heavily marketed, and drug manufacturers go to great lengths to influence docs to prescribe the synthetic meds.

      There are NDTs, Natural Dessicated Thyroid, which is available by prescription. I found these helpful years ago, but they are from pigs, which have way too much T3 and cause anxiety. The NDTs also frequently contain allergenic additives. I font know the exact process gor these, but I’ve  found them to be unreliable, as formulations change frequently. When I went back to these after the levothyroxin, I felt these meds were cut with synthetic drugs.

      I went to a bovine glandular, which changed their formulation and contained wheat, which made me violently ill. I won’t  bother telling you the name of that one.

      At that point, I called it quits with the thyroxin replacement and put my science background to work. I tried amino acids and tgey worked! I have advanced thyroid disease. I figure if the essential amino acids and phenylalanine worked for me, they should work for most people. 

      Its taking me a long time to recover from the damage caused by the levothyroxin and hypothyroid. And I still have tons of weight to lose. But I feel better than I have since I started the meds.

      Might be worth trying. 

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    • Posted

      Tnx so much for your quick reply Catherine...what do you recommend for glandular? But you had a bad reaction to bovine glandular? ... I’m gluten free now and of course avoiding wheat also!  i have a dr apt tomorrow & want to be prepared to know what may be best & to stand firm on it! Tnx very much smile

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    • Posted

      Ms Joey, I love your enthusiasm. Hate to rain on your determination to stand firm, but doctors are only trained to dole out prescription meds. Most know little to nothing about the chemistry involved in thyroid finction, dietary needs or alternative and preventative measures. Jeep in mind that typical “prevention” of disease consists of “early” detection. Detection has nothing to do with prevention, get it? Just sayin’ you’re beating a dead horse if you expect a doctor to support you on a treatment they aren't trained in and know nothing about.  A likely reaction is that they think you've been reading too many ads on “pop” nutrution. 

      I can no longer recommend the particular brand of glandular  I was on due to changes in manufacturing.

      However, I can wholeheartedly recommend ThyroGold. My mother does quite well on ThyroGold, as she’s had her thyroid gland removed. She also takes essential amino acids.

      I only take amino acids now. No more thyroxin replacement for me.

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    • Posted

      Tnx so much Catherine i changed primary care Drs & have apt w new dr today after work. My previous Dr just told last week that she wouldn’t retest my Antibodies because she tested them last time  (at my request) and that my high antibodies will never change no matter what diet I’m  on & that they’ll stay at what the last results were for my life. I was only diagnosed this past February & been on low dose these past months ...(had posted results a couple months ago) how do I get thyroid gold ..& what amino acids do you take? Tnx so much!

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    • Posted

      @mtviewcatherine altho recently diagnosed I think I’ve prob had this most of my life 
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    • Posted

      Hi Catherine Just reread your reply before the dr apt & just noticed that you mention Phenylalanine ain’t w the amino acids.. , i has missed that tnk you! am so glad these things have worked for you & that you’re feeling better!! wish me luck lol🙄

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    • Posted

      oops typos sorry

       *along w ...instead of ain’t w 😄👍🏼

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    • Posted

      Hi Ms Jiey, you’re right to change doctors. Antibody levels change all the time. I have a friend who’s been successful lowering her antibody levels with diet- she’s doing quite well actually.

      You can order ThyroGold online. Just do a search.

      My essential amino acid doses have changed over the last year. When I quit the meds, I was on very high amounts and took three caps of essential amino avids plus one cap of phenylalanine at breakfast, lunchtime, and dinners- initially 12 caps a day.  Now I take them as needed. Udually no more tgan two a day. 

      My mother takes ThyroGold plus 2 caps of essential amino acid complex every day.

      You’ll have to figure out your own dose. Try a little initially to make sure you don't have any sort of reaction. Increase the dose slowly until you feel you have maximum benefit. Listen to your body and taper back as needed. No need to waste supplements taking more than you need.

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    • Posted

      Tnx so much MtViewCatherine...i so appreciate it. A lot to figure out it seems. Am so glad this made a big difference for you ,  it really is overwhelming...& very confusing😔

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    • Posted

      Ms. Joey, it isn't really confusing at all once you realize what we’re offered by doctors is little more than a marketing venue for drug companies selling useless junk. 

      Yoo want an eyefull? Look at the history of synthroid. 

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    • Posted

      Tnx so much mtviewCatherine! I’m down to my last few of Levo pills ...I’ve been taking this last supply only every other day so it’s been slow finishing them but wanted to make sure it wasn’t cold turkey or too sudden for my body. Am just not sure how to start with the essential amino acids , which ones to use & how much? am also wondering if i should’ve tried switching to Armour or synthroid maybe it would work better & without the side affects I’ve had, idk? I want to do the right thing without increasing more hair loss ..which I really am fearful of😩 

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    • Posted

      Hi MtviewCathetine tnx so much for all your info...just started the essential amino acids today (doing 2 w morning & 2 w evening meals ) will soon have no Levo left I’m finishing it but have only been doing it every other day these past 3eeeks until they’re gone , then no more. Will have my blood retested next week & see how everything looks & go from there. Tnk you!😊

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    • Posted

      Hi Ms Joey, good that you’re coming off the Levo slowly... I used quite a bit more amino acids, but my thyroid medication dose was very high, and I had to quit without tapering. I also took extra phenylalanine initially.
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    • Posted

      Tnx so much MtViewCatherine ,  I’ll keep you posted! And def so good to know your hair has been growing back ...did it take long after stopping Levo to notice regrowth?  tnk you!
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    • Posted

      The regrowth was pretty quick and continues. I especially notice around my forehead, where it continually grows new hair. So even though I’ve been off several years, I still have more new hair coming in. 

      Really, it takes a long time to detox the levo out of the body and repair the damage. As the body heals, the hair continues to grow.

      The best part is the quality and color are so much better! I can see a difference where the bottom of the hairs have a lot of funky, wiry white. Closer to the head, they are growing in more normal color and texture.

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