Hair loss with Methotraxate

hi eileen i only take 5mg of folic acid two days a week. i wonder do i need more. i need to book an appointment soon as i was supposed to be called at christmas. the fatigue is the worst isnt it 😦

Hi Clare

I have been injecting 25 g mtx for 16 years I have always taken 30 mg of folic weekly not within 48 hours of taking Mtx so I inject Thursday night take the folic Sunday I go through periods of hair thining when I notice I immediately increase to 40 mg weekly for a few weeks

Along with that I use a product called grow me you can buy shampoo conditioner and leave in conditioner

I'm not recommending it but this has worked for me

Hope this info helps

I have a different a/i disorder - and with mtx I felt worse than I ever felt with the illness and no treatment at all!!! I think I went up to 5mg folic acid almost every day I wasn't taking the mtx - some people need much more than others.

Hi Jay. Thanks for your message. I have never heard of that product i will look it up. Thats so much more folic acid then what im taking. i am really going to push for my folic acid to be increase. im sure it wont do any harm!!! i just cant understand why i was put on such a low dose from the start. they must have had their reasons i guess. thanks again

hi eileen sorry to hear it made you feel worse. did you find something that worked for you? yes im sure theyll have no problem increasing mine.

I'm on prednisone - only thing that really works but many rheumies are terrified of using it and try to get us to lower doses by adding mtx or something else, i.e. adding another layer of side effects in the hope of achieving a lower dose, which actually is relatively rare. I do OK - providing I don't have to fight about it!! Or deal with too much external stress (like currently the wondering will I still have medical cover in March 30th!!!)

Watermans grow me try getting it through groupon

hi jojo you are one of the lucky ones i guess. i never had thick thick hair so its just so noticeable now when any bit goes.

hi sez. i only take 5mg twice a week of folic acid. i think this is more then likely the problem. were you always on folic acid 6 days a week? i have always been told to just to take it twice a week i have never questioned it. thanks for your message

Started once weekly but was increased to 6 days when the nausea kicked in this then settled and the hair thinning started but now seems to have settled for the time being but still not pain free and fed up with the tiredness

ok thats good to know. ill say it to my doc and get my doseage put up. it could help me. i think the only time im pain free is when im on steroids. i have constant pain in my hands and feet. it could be a lot worse i guess. i feel like all i say is "im tired" lol.

Do you take oral or inject

If you take oral ask to switch to injection easy to do they come to you in a ready pen now it by passes you digestive system no nausea (or much less) plus you absorb more dose when you take an oral dose you only actually get 75% _80% of the dose with injection you get more

Worth trying

i take the tablets i inject enbrel once a week. i wonder would i be allowed to do both injections? i often wondered how much you injest by taking the tablets orally.

I was injecting both but Enbrel did not suit me at all suffered chest infections kidney infections Etc

I now inject MTX weekly and Golimumab monthly been great for 18