Hard to breath and panic with Mono? Please help
Posted , 5 users are following.
Hi everyone,
I am 23 and really starting to spiral here and looking for any help. 9 weeks ago I woke up knowing something was wrong and couldnt pinpoint it. Over the past 9 weeks ive had extreme shortness of breath (constant even at rest) horrible fatigue that I didnt even trust myself to drive, feelings of detachment and intense brain fog( these have gotten better), and the feeling like my heart is working hard or beating fast when it is not. this butterfly feeling in my chest spins me into panic attacks constantly. I barely sleep because of these feelings of racing heart. I have seen cardiologist, pulmonologist, ENT, and GI. so many tests and everything comes out perfect. Only thing they could find was high EBV antibodies for past or recent infection but nothing currently showing active infection (they just did this test at 9 weeks).
around 2 weeks ago i started to feel better and most of my symptoms subsided ( except for trouble breathing) but now the palpitations/anxiety/chest pain is all back. i dont feel the horrible fatigue anymore but im left with all these terrible symptoms. could this really be from mono?
the shortness of breath scares me the most because i didnt think mono could cause this and it never goes away even at rest. I spiral very badly because i never had typical mono symptoms except for the intense fatigue (no fever or swollen tonsils) I wish that my test would have shown active so that i could have peace of mind. i feel like it is probably mono because no antibiotics ever made me feel better and i got strep throat during this time too but the difficulty breathing and panic is making me scared its something far worse even though doctors cant find anything.
please help me.
0 likes, 18 replies
jay53414 Izzy233
Posted
Hi izzy! Sorry you're dealing with this. This sounds indeed like reactivated ebv. Do research on it. If you had it in the past it can definitely reactivate and some doctors dont know to look for this. Try getting on something for anxiety to ease your mind and do research. I'm struggling with it as well but we have to advocate for ourselves. Wishing you healing and praying!
Jay
Izzy233 jay53414
Posted
thank you Jay! i appreciate the response. My doctor said he thinks we could have tested too late for the active test to show up and he does believe what im feeling is a virus but wow it is insane what this can do to your body!
I did get put on anxiety medication so hopefully that will help.
Wishing you healing as well!
jay53414 Izzy233
Posted
Thank you izzy. I'm around a similar age as you... 25. I also can't believe how cruel and evil this virus is and how it can make one feel. I'm struggling at 8 months but i have done a lot of research and learned a lot. Today was a very bad day for me and not going to lie i feel discouraged. I have to pray this feeling off of me. Feel free to message me or vent or anything because i know what you're going through and its lonely and frightening. Much love & healing.
Jay
Izzy233 jay53414
Posted
Hi Jay,
yes, it is insane what this can cause and its terrible that doctors don't seem to know much about it. I feel you with the bad days... some days i truly think im dying and the next i feel crazy for spiraling so much. it just wears so much on the mind too because it seems never ending. I hope this both ends for us soon. I really appreciate your responses!
jay53414 Izzy233
Posted
Yes. I know the feeling. You're not alone as we are in this war together. I indeed hope so too! No problem. It's really nice knowing that you can have someone to talk to who understands how evil this virus is. Oh and if you need a little more info or advice/support feel free to private message me any time. Take care.
Jay
laurajade7 Izzy233
Edited
Hey, i have mono too and is awful worst thing i have ever been through. yours definitely sounds like mono, i have had most of all the symptoms you have described and others too! i also didnt have a sore throat or temperature and wondered why the docs eventually thought i had glandular fever made no sense.
i can totally relate to the anxiety it has been my hardest challenge since this virus, it plays tricks on you and makes you feel that something awful is going to happen bit thats the nature if the virus. the mono cant hurt you thats why tests are always negative.
my blood test was ebv possitive but i got the test when i was acutely ill and only because my friend told me i had EBV i rushed to the doctors because i waited two months without any answers from the doctors and A+E. my friend had the virus and said my symptoms were the same lukily.
im 9 months in and just had a flare up of anxiety again but until now i have been pretty much my usual self, it gets better.
mike04106 laurajade7
Posted
have you gotten rid of the physical symptoms. Im three months in and im about 80% physically, but i can feel up to 95% at times. I recently had a set back because I tried going to the gym. Im just wondering how I know when im good to go back to my physical activity.
jay53414 mike04106
Posted
You will know when you do not have relapses. Relapses are your body's way of telling you that you are not quite there yet and that's okay. The more you rest and give your body the attention and care it needs the better chance you have at full recovery. When you push against this virus it will push back and sometimes even harder which is definitely not what you want. You will be better and back in the gym just give your body time to recover so that you can make it back and be better than ever! I know it's hard but this will help you in the long run. Much healing & blessings to you Mike!
Jay
Izzy233 laurajade7
Edited
Hi laura,
thank you for the response! these past couple of days i have noticed ive been feeling better with shortness of breath going away so hopefully I am on the road to getting over this! you are so right about mono being the worst thing- i think people who have never had mono cannot understand how truly terrible this virus is. hope you are doing well!
laurajade7 mike04106
Posted
Hi mike, i am physically a lot better and i am back at work. i wouldnt say im 100% but much better than the beginning. the only symptom i have left is muscle twitching which can be good for a while then come back. im going docs next week because i have had the virus now 8months and woukd expect it gone. but yeah i feel tiredness wise normal. how are you?
laurajade7 Izzy233
Posted
so glad you are feeling better. your right no one understands it. when i tell the doctor my symptoms she looks at me like im crazy, then i feel crazy. its very misunderstood and you get no support, we need a vaccine for this. take care x
mike04106 laurajade7
Posted
I have been doing well. I relapsed about a week ago and i was able to recover from this pretty quickly. The only real symptom i haev left is depression/brain fog. This is scaring me at time because its even hard for me to listen to music that i know i love, it just doesnt feel the same. before my relapse i had a week where out of no where i felt like myself, i had that spark of joy and excitement. then it went away and now i feel scared again. Ive seen other people complain about this depression, but no one ever says if it goes away. it always seems like its ignored when answering the questions.
jay53414 mike04106
Posted
Mike the depression is definitely a part of this virus. I can tell you this because i still have it and i'm about 9 months in. It was really bad in the beginning for me and some days it still is. I've never been one to be depressed or anxious but this virus has made it an extreme for me. I've had the brain fog too some days its gone and some days it comes back. This virus messes with the nervous system. I'm hoping and praying for better days as this is all I know how to do right now. If it gets too bad please reach out to someone or see about anxiety/depression meds... I'm currently on anxiety and they do help me when panic sets in. You're not alone even though I know it feels like it due to the isolation of this sickness. God bless
Jay
mike04106 jay53414
Posted
i pray you get better. This is awful as we all know. It seems that people always say it does fully go away, just cant believe how awful this is
jay53414 mike04106
Edited
Thank you Mike! It truly is... This storm shall pass.
laurajade7 mike04106
Posted
its so s**t isnt it. i have those weeks also where you feel great and back to normal almost. funny enough this week i have had a relapse i noticed yesterday the brain fog and i slept so much. it stared again with sore throat and cough now two weeks later bad again.
im not sure about the depression, i get the anxiety terrible sometimes but i think is the virus the way it makes you feel anticipation of something all the time. i keep asking myself if im depressed because the doctor asks but i dont think i an i know it does cause depression brcause its a long term illness. i just get terrified its going to get so bad i cant cope with it which i think is the anxiety. its so confusing and messes with your head. im on anti depressants but i dont notice much difference for me especially with the flare up got to ride it out sadly i feel personally, but everyone is different.