Has anyone experienced swollen limbs due to mono/glandular fever?

Posted , 6 users are following.

Hi there, 

I have recently been diagnosed with EBV/ glandular fever or mono as some call it. 

My symptoms started back in April and after months of muscles pain and weakness/fever/joint pain/nausea etc I have finally been diagnosed with EBV/glandular fever.

One of the symptoms I have had since day one has been swollen legs and upper arms. Has anyone experienced this? 

Thanks in advance. 

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  • Posted

    hey there/ while i haven't had noticeably swollen limbs I have had all your other symptoms and continue to have them at 14 months in. You might be having some water retention problems? This virus causes all sorts of weird symptoms and I don’t think at this point any of them are out of the range of normal.

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    • Posted

      hi there, thanks so much for your reply. Yes, something i have learnt having this virus is that the symptoms are random. i was thinking the swelling maybe connected with lymphatic system/drainage.

      Do you feel as if you have almost recovered after 14months?

      thanks

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    • Posted

      hi there, thanks so much for your reply. Yes, something i have learnt having this virus is that the symptoms are random. i was thinking the swelling maybe connected with lymphatic system/drainage.

      Do you feel as if you have almost recovered after 14months?

      thanks

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    • Posted

      yes it could be! also I feel a bit more swollen if I have been in bed for several days. Even just getting up and doing light cleaning or doing a grocery run helps kind a loosen up everything. No I’m not recovered. I’m not anywhere near as sick as I was the first 3 to 5 months but no. I seem to be in a series of recovery and relapses. I’ll tend to have a good week and overdo it and then be sick all over again for a week or two and then the cycle starts all over again. My most recent testing showed that I have reactivated herpes virus 6 as well as high EBV antibodies. I’m going in for an in-depth Lyme disease and coinfection‘s test to see if maybe that’s what I contracted and what triggered the mono and all the viral reactivation. It’s been pretty frustrating and disheartening. But luckily I don’t have brain fog so I can still watch TV and play games and write and read. Unfortunately things that help people – like Epson salt baths and massage and acupuncture - all make me super sick and flared up.

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    • Posted

      yes it is such a frustrating condition! its taken since April for my doctors to diagnose the virus!

      were you diagnosed early? i have started to see a homeopath as totally lost faith in doctors.

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    • Posted

      ye s im seeing a homeopath too ... ill try anythiing at this point and she swears that she can get me better . may take a few months ... however naturally curing somebody takes much longer than drugs .

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    • Posted

      From falling ill to diagnosis it was five weeks. I had a positive mono spot test.

      after four months of conventional doctors I completely gave up as well. I have two amazing naturopaths that I love. And they are convinced they can help heal me. If I end up having Lyme I will have to see another specialist though.

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  • Posted

    yes 14 months is such a long time! have you at least improved ? and are you taking lots of supplements ?

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    • Posted

      hi Lori. i’m not bedridden all the time which is some improvement. I tend to go in waves. I will start to get a little bit better and then try and go see a play or take my daughter to the mall and then completely relapse and I’m back in bed for a couple days and then the process starts all over again. My main struggles are extreme fatigue and muscle weakness, flu like feeling and sometimes IBS. On and off I get shaking and twitching and sometimes numb arms and legs. Also night sweats. I just went in for an iron infusion because my ferritin was low and I might revisit high dose IV vitamin C. I am on supplements – I had a micronutrient test done as well as genetic testing so I’m taking things I’m either deficient in or have shown to have a genetic mutation which causes deficiencies. Right now I’m taking probiotics, glutathione, folate, B 12, vitamin C, vitamin D, L-cystine, Co Q 10, biotin and I am on an antiviral medication called Valtrex.

      I tried chinese herbs last month. I was custom-made them from a Chinese herbalist and while they helped raise my blood pressure they also were a little too stimulating for my adrenals. So I took a break from them.

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    • Posted

      I am hopeful that Naturopath helps you both. I also had one that told me she could help me. I spent $5000.00 dollars with her because my insurance would not pay for Naturopathy physician. I took IV Vitamins and glutathione. This took it's toll on my veins. So be very careful. It is also important to know where the glutathione is manufactured.

      Best wishes.

      Rhonda

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    • Posted

      Oh man that's a lot of money. My insurance covers this naturopath thank goodness. The only thing I'm out of pocket for so far is the vitamin C IV's. I take glutathione because it showed up as deficient on my micronutrient test and also as a genetic mutation on my genetic test. But it's a capsule form (lipospheric). I'm being careful. Right now it's trying to pinpoint exactly what's going on. So far we found two activated viruses (EBV and HHV6) and I'm trying to test for Lyme.

      Rhonda you recovered yes? After how long? And was it just one day you felt better or was it gradual?

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    • Posted

      yes ive spent a fortune too on many different drs. my new dr an infectious disease dr does infusions but when i asked for a vit c iv he said 'waste of time you just pee it out ' 'better taking a pill he said' go figure

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    • Posted

      Yes, the C vitamins and B vitamins are pretty much all water soluble and pass right through us. Evidenced by the color of the urine. The B vitamins also give that wired feeling while we are still fatigued....hang in there.....it is definitely a slow process most of the time....it can not be pushed or hurried even though everyone is desperately looking for a way to hurry it's passing!

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    • Posted

      when you bypass the gut and stick the vitamin C straight into your veins it is totally different. I was pushing 75 g into my system and then they take a blood test right after to see the saturation. Once it hits a certain point it goes from an anti-oxidant to an oxidant and becomes really powerful at killing things like cancer and viruses. Yes if you are ingesting the vitamin C I think your body can only hold 200 mg or something like that. But I was putting 75,000 mg into my veins. There’s a lot of research in it. But not every doctor is aware of or uses that type of therapy.

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    • Posted

      Hey Lisa, Lori, Rhonda,

      Hoping you guys are having a settled week, just reading the posts about the vitamins and stuff, learning stuff myself that I didn't know. I take a lot of vitamins including B complex and Vitamin C in tablet form but have never had any by means of injection or whatever. Really hoping that you can all find the right thing that works for you and that you have good docs that take time and offer the right kind of advice on it all. Sometimes I think I dabble too much on vitamins by kitchen is like a pharmacy, but sometimes you just want to try things to help yourself and it can help if just not overdoing it and being careful.

      Thinking of you and still believing that healthy and happy times are ahead for each of you - I really believe that for you Lisa, Lori and Rhonda.

      Craig

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    • Posted

      thank you craig ! yes im taking so many supplements i have to do it in stages in the morning. it takes forever ! pills tonics homeopathy. i cant wait to feel better and i will definitely reduce what im taking when i am .

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    • Posted

      Yes sometimes it's trial and error with different supplement Lori until you find something that you feel is helping. I know it's not easy for sure. Still thinking about you each day right now and together the good people on the forum here standing strong for you man. Hoping things are more settled over the weekend - hang in there.

      Craig

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    • Posted

      Hoping you feel much better soon Lori, it's awful when you feel so strange and out of sorts and can be very frightening I know. Still thinking about you and remember don't give in this thing isn't going to win in the end, it might be having it's day of running riot right now but it will soon be beaten - absolutely it will be thanks to God. Hang in there Lori.

      Craig

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