Has anyone had neurological problems after Botox treatment for migraine?

Ive been having Botox for 3 years no side effects here, but I honestly dont think it did much, I suffer from Chronic daily headache which grow into Migraines, I eventually asked my Nuro guy if he could give me anything to lift my mood, because ive tried every drug going and they all seem to make me tired or depressed, he gave me Prozac and after 25 years of headache these seems to have cut them down my 80%, ive just moved from prozac to Citalpram as this is a more Targeted SSRI and so far so good. Good luck with your medication and if you haven't tried SSRI give them a go, the main ones that worked for me were

Citalprom 20mg

Sertraline 100mg

Prozac 60mg

Yes, I have! I had botox in the past without any problems and it helped my migraines but I have a syrinx is due spinal cord damage and after this first set of shots I began to experience severe burning in my hands that quickly spread to my arms, neck, face, head and more diffusely over my back. The doctor administering the shots said that this was impossible but my neurologist said she was fairly certain it was due to the shots since she had given so many other tests to me to rule out ms, Lyme& other things. I don't think I'll be going back for another round of tests any time soon and my neurologist said that the effects should dissipate with time. I hope that your condition lessens and know you're not alone.

Jackie, I'd love to know how you're doing now.  I hope things have gotten better for you. 

I started botox for migraines about 2 years ago and have been getting it every 3 months.  Two months after my first injection, I was in a class and the teacher directed everyone to throw their arms up and toss their head back and scream.  I had chronic back and neck pain and should have known better, but I didn't want to be contrary, so I did it.  I knew immediately that I had injured my neck (which is prone to herniated discs) and suffered horrible pain and numbness that went from ear to ear around the front of my neck, like a tight collar.  While the worst of the pain has declined in the two years since, I still feel the numbness to some degree on most days, which is a horrible sensation.  I know what started this neck problem, but my primary doctor suggested the botox for migraines might be involved in prolonging it.  My neurologist who gives me the injections says there's no way the botox is responsible.  But an MRI of my neck shows nothing that would explain the numbness.  So now I'm trying to decide whether to go to my next botox appointment or not . . .

I see three different doctors for my migraines and they all have differing opinions. But the DO I see said that botox works because it paralyzes nerves&muscles, thereby weakening them and that's the last thing you need when you have any deteriorating condition of the spine. I noticed an improvement with the first two shots but with the third it was not the same at all. My neurologist said the botox can certainly cause a multitude of adverse affects like I had, and yours sound like it really hit your neurological system hard. I have spinal cord damage and it's a weird thing how sometimes it can seem very debilitating-like losing all control&feeling on one side of my torso&face and then clearing up slowly over a period of 3 months or so. Then things can afterwards become very mild and MRIs don't really tell the story but you know something is definitely going on! It's always difficult when you're going through this stuff because some people just don't understand. I'm just starting to listen to myself more & what I feel is working for me rather than what they tell me is working for me. I recently made the change from topomax to lamictal because topomax was totally ineffective for me. I've only been on it for a month but already it has changed the patterns of my migraines, so I am hopeful. I found seeing a DO helps, and Cranio Sacral is amazing because it works with the spinal fluid&nervous system. I hope things get better for you!

maybe should see a rheumatologist to rule out any autoimmune diseases. It could be a coincidence that these symptoms started with the Botox that may not be related to the Botox at all. Have you tried this route?

I don't see Jackie on here anymore, but I think its important to keep up with these discussions so that others can make a more informed decision in the case of Botox for cosmetic reasons, at least. I received mine 5 days ago in the 11's and for crows feet. The first day I felt nothing unusual. But day 2 I began with a fiery sensation in the 11's area only and woke with a headache and felt flu like symptoms as well as a very sore neck . Day 3-4, the fiery sensation and neck are a bit better, but still a dull headache from time to time, fatigue and bouts of anxiety and some insomnia. I am on day 5 and I have felt anxious all day.

I received mine from a well known plastic surgeon, had no bruising and very little swelling. I followed the instructions of no lying down or exercise. I am sure that these symptoms are due to the Botox though as I have no other answer for my symptoms. Hopefully it will pass soon, but if this happened to you, we'll know that we all aren't just imagining things and something more is happening (by way of bad reactions) that even some doctors are unaware of. This should be further studied. Needless to say, I will not be doing this again.

wow..i am so glad i came across this discussion..here's what's going on with me.. about a week before my next series of Botox shots..31 in neck, shoulders,head and forehead- i was walking thru my home when all of a sudden i was unable to talk..walk..stand... fell out. My body went limp. This only lasted about 5 mins but to me it seemed to last longer. My friend thank goodness..was visiting me when this happened. I came to laying in bed and her trying to get me to come to. It happened a few days later. My Neurologist said it was from the effects of the botox running its course in my system which i was due for next series within that week. This is becoming of my life..and with all other health issues i have..i dont this one too.. next i need to rule out PD and MS . Im scared..what if it-or when it happens again and no one here with me?..

I never realised that this was going on with me, as it did not start straight away. I was sent for so many test , including MS, to see why i was falling over all the time. dizzy Blurry vision. Then one day it occurred to me ii was after having Botox.

It seems you had too much Botox put into your system. It has side effects which you are experiencing. The good news is this should be temporary. I urge you to try heavy weight lifting, it helps headaches and promotes good mental health.

hi Jackie dis you ever get to feeling better or back to being yourself ? I have almost identical issues after one week of getting botox for migraines. I am also being told the same it can't possibly be the botox . I obviously disagree I wasn't having these severe issues untill I received the botox and friends and family noticed I have a strong relationship with my drs and they said there reporting it and make sure I do as well .

Hello. I received Botox about two months ago for the treatment of cervical dystonia. This resulted in fatigue, generalized weakness, severe weakness in my legs and balance instability. My symptoms have worsened and I now get muscle spams in my legs if I stand for more than 5 minutes as well as prickly sensations when I walk. I can only walk a block or two before my calves are so tight that i need to sit down. My pain management doctor dismissed my concerns during my appointment and now I'm afraid I am going to stay like this. I am extremely worried and scared. I am worse off now than I was before. My legs still have no strength in them. I'm only 38 years old and I am normally very active. I don't want to end up in a wheelchair. I haven't seen a neurologist, but reading these comments makes me think that I should. I'm sorry that I don't have much encouragement to offer other than YOU ARE NOT ALONE!! I hope your doctors can figure out a treatment that helps you. Please keep me posted. Sending healing energy your way.

hi everyone! i know this is a super old discussion but i thought i'd give it a try replying to it with the hope that someone will reply this is the only thing ive found online that seems similar to what I'm going through. I received botox injection and within 10 days I started to have really scary neurological symptoms. they started out as just numbness and tingling in my hands and feet, and progressed to tingling and incredibly intense burning sensation all over my body. The doctors are completely stumped because all my teat results have came back normal. for everyone who had similar symptoms or symptoms related to botox, did they eventually resolve with time? Or did the botox trigger something long lasting that you still deal with now? Any info or personal experiences you've had would be so incredibly appreciated because im super scared! Thank you in advance!!