Has anyone had neurological problems after Botox treatment for migraine?

Hi, I realise your post was over a year ago, I just happened to come across it and was wondering how you are now. Your symptoms are very similar to my own, I have had numbness, tingling, weakness pins and needles and the general fatigue is crazy, I must sleep and yet I can't , I sleep for a couple of hours and then wake up again for hours trying to get back to sleep. Speech difficulty, difficulty with weakness walking and forget about trying to climb stairs lol. Just wondering did your symptoms resolve? Hope so. All the best.

I started with botox around October 2016 and have had 2 sets of injections. It seems to be working having had constant every day migraines and headaches. I am finding though that if something makes me tear up and cry, I get the worst headache of my lifetime, something beyond a migraine, I want to end my life type of pain. Not sure what is causing it but I have to try to avoid sad movies or sad things on social media that would make me cry. Heaven forbid my love life go to shambles! Crying is healthy, but not in my case. Have you or anyone else experienced this with botox injections?

Hi, Jackie. Yes, I too have neurological problems after Botox ( Vystabel actually). Ten days after the injection I started having muscle twitching in different parts of my body at night, before sleeping, and an electrical sensation between my ears, which doesn't let me sleep. Also numbness in my arms and legs sometimes during the night. After another two months, the twitching appeared also during the day, which is scarrying me, and affect also the neck, the wrists and the lips. Can you please tell me for how long you had the muscle twiches and if you got rid of them finally? And if they dissapeared by themselves or not? I see your post is 4 years old, did you get better so far? I'm afraid they will get worse. Thank you so much! Simona

Hi Jackie, 

I know this is a very old thread. But I wanted to see if you have any improvements. 

I’ve never been sick or seen a Dr in my life. No drugs, alcohol or cigarettes. Never used antibiotics or medicine. Not even cough syrup or tylenol. No sex before marriage. 

Very clean living.

I got Botox 3 months ago, which is the only change I’ve ever made and everything changed.

I lost my appetite, became depressed, anxious, scared, foggy, disconnected, lost weight, lost my boobs within a week, my full cheeks are now hollow. My feet and hands are numb. My arms, ears and face, feel like there’s icy hot all over it.

And the worst part for me is the inability to be aroused. Literally overnight, any pleasure sensations were paralyzed. My nipples, which were always extremely sensitive and would instantly turn me on. My clitoris is numb and my vagina won’t open. And when my husband tries to penetrate it feels like knives! I’ve purchased some dilators and am working with those. My poor husband thinks I stopped loving him! But even simple pleasures like when he plays with my hair or tickles my arm are now sensationless. No more goosebumps or good tingles. Foot rubs are painful instead of a treat.

I’m heartbroken! I would take all the other side effects if I could just be intimate with my husband again.

If I had to diagnose myself, I would say I have peripheral neurophathy.

I went from happy, pretty, healthy, and in love to being terrified!

There are many botox support communities that I have found, that all have my symptoms for worse. I’ve only encountered a few people who have healed. But it took years.  There are others who are still suffering and it’s been 8 years! And they all have the same story. Perfectly healthy and then life turned upside down over night after botox. And they’ve all been to countless Dr’s who can’t find anything.

I’ve seen an OBGYN, Family practitioner of internal medicine, neurologist, immunologist, and of course phelobotomist and have had over 40 labs of all sorts, and 4 MRI’s which all resulted in nothing, as well as nerve tests.

I’ve got an upcoming appointment with an endocrinologist.

While I am happy that I don’t have an auto immune disease or tumor, I am so scared that I will never be the same. 

I believe the botox paralyzed my pleasure center. I used to be so full of life. Nothing else has changed. It was literally overnight. 

If you or anyone has any suggestions get checked out or supplements to try I would REALLY appreciate it!

702-326-5549

Hi, I have definitely had the same thing happen to me. Except with me I have complete paralysis on my left side. I have gotten some use of my left side back but not a lot. I have to use a wheelchair walkers shower chairs. And so far all my mris have come back normal. I have  a foot drop and a inversion. My symptoms are not resolving very quickly at all. Would just like to find out what is going on. It feels like they are trying to tell me or make me feel like I’m crazy. 

Hello - I just read your short article, and yes, I have a very close friend who is having identical symptoms to yours. Her neurologist is the physician who has administered the botox treatment for migraines, and now he is acting mystified that she is having these symptoms and spending a lot of extra time with her when she has appointments with him. . .unusual in today's medical world. He has ordered a myriad of labs and had had blood work done by the Mayo Clinic, yet acts baffled. I have not read the 75 replies to your story, and I will now. But, I am wondering what you learned about your situation, and if it resolved itself on its own. My friend cannot walk, is seriously depressed, struggles to get out of bed, her body shakes, her knees are weak to the point of giving out when she walks. We took her to the ER two weeks ago and she literally crawled through the snow to get to the car (we had terrible freezing rain and snow at the time.)  My friend is learning almost nothing from her neurologist. We are going to get a second opinion and will check back in to this website. Please post an update about your own journey with this. 

Jackie,

Thank you for your post. I've been on Botox for 9 years with all of the same symptoms and then some. Docs told me it couldn't possibly be Botox. I even had a work up for MS.

Thank you! I'll be stopping it. Lord willing my body can recover.

Hi jackie75453

I recently received botox injections, not for migraine, but did experience side effects such as you have highlighted. Doctors express doubt the botox is responsible so it is reassuring read your comment just to know I'm not going alone.

Please get in touch as I'd so welcome a sympathetic ear.

Hi Jackie, I am so very glad I ran across your question!! I have been so very sick and have also been in a MS chase for over a year or longer, I have seen so many doctors because no one has been able to find out what’s wrong with me. I just got my brain scan back and it is negitive ( Thank God!🙌?? ) !! I said if it was negative I was stopping my Botox I think I started it back this time last year I’m calling at 9 am to check and see but I have had all those same symptoms you have had and some you haven’t I had to move due to 25 steps had to start on a walker and a cane, I have been house bound since August of last year. My life has been over I hope you will answer my question I’m praying you are better, in hopes I may get my legs and arms, hands feet and my mind back 🙏????? I can’t remember anything can’t coordinate can’t spell words I’ve known all my life and have had to take steroids for flare ups about every other month since November and even had a bladder stimulator put in, I don’t think the Botox had anything to do with my bladder but Idk 😐. I hope to hear your back up and feeling better impatiently waiting in Tennessee..🙏??🙏??😕🙂