Has anyone heard of frozen shoulder syndrome leading on to frozen hips?

Thank you for repying Judith,

I have never had an MUA as I didn't like the sound of it...much prefer nature to takes it's course, though pain killers are necessary at times.  I too, have muscle spasms and a very irritating head twitching thing that started at the same time as the shoulders.  Each person is different, so it is hard to advise the best course of action in treatment.  I would say I am very conservative...and it did pay off for me.  The hips are another matter...cannot walk at all without pain...and getting in and out of the chair/car is excrutiating, but I have to do certain things or I'd be fit to be tied!  I'll see what the doctor has to say when I see him.

Do hope you have success in whatever treaatment you find suits you.

Chickabee

Thanks for your replay. Today is actually a better day for me. All sources of treatmentes like you said are very controversial and everyone responds diferent. In my case I didnt have a choice in the last month before my treatment I was confined in bed most of the day with terrible pain. I lost my job couldnt do anything. I understand frozen shoulder is as bad the only diference you can carry and avoid overusing your shoulder. Your hip is another story.

I really do wish is not your case. I wouldnt wish this condition to anyone.

I hope I can post later how my MUA is evolving. Im sure I do have way more ROM without a doubt I guess now is just time and physio. (Im still not that sure about physio either since three days ago is what put me back in a lot of pain. Again I hope Im doing the righthing. No choice for me since, If it wouldnt be for the MUA I would be in bed at this time. Im just hoping wont refreeze thats all I think that my major concern, so far soo good.I Probably all the pain I had back was due to the physio. Now Im not surr if I should continue, since agravate my pain.

All the best for you chickabee and dont hesitate to ask if you have any questions regarding your hips. I wished I could hear more experiences in people with frozen hip. I couldn find many.

All the best for you.

When they did the manipulation under anesthesia did they not tell you that if you don't keep the joints moving it will just freeze again!

A few more thoughts have surfaced Judith that you may find helpful.  I find laying flat at night with the hips in the natural straight position, with the toes straight up helps (I use a scrolled up fleece to support sides of the feet).  I notice first thing in the morning when standing up the pain is less, whereas if I raise the foot of the bed at night to relieve back pain, the hips are quite painful on first standing up.  So position at rest is one thing.  Getting in and out of the car/bath/chair, and all other repetitive activities I do very slowly, and stand for a few seconds to get the hips comfortably weight-bearing before walking.  Gentle, slow exercises going to the point of pain but no further...same as for the shoulders really.  Fortunately my physio was in tune with my thinking, so her treatment really did help.  Worth a try Judith...every little helps.  I too seemed to go forward and a couple of steps back with physio, but this is expected as long as your physio isn't too adventurous with movement!

Take care of yourself.

Chickabee

Thanks a lot chickabee you dont know how much I appreciate your advice. Is so nice to talk to someones that knows what you are talking about. I feel so frustrated that im two years into this and not able to walk normally yet. Im using a cane I was using a walker before, so Im improving. I just feel a lot of pain in my hip when weight bearing that the cane really help me to continue with my spine align. I had a problem just with the left hip that brought me in to hobbling around and pelvis issues and all other things. Im glad you seem to be doing pretty good. Even when I Lay down I try so many diferent positions to feel comforable ending up in the same position all the time. I will try your advice maybe that will help.

Im going to physio again Monday and see how I feel. Please keep me posted in your progress. Do you still have full ROM in you hips? because I didnt have any movement in my leg, abduction, aduction,fexion, etc was all lost for me. Mine was really severe. I dont know if mine was from falling down hill in my hip.im not sure becasue it didnt freeze right away that happen after 4 months of little discomfort.

Im just praying I wont have the other frozen too.

Thanks once again and all the best.

yes they did and I actually went to physio right away. Like I said I still have the ROM I gain with MUA but what puzzles me is that I start having the familiar pain of tendonitis and my leg feeling numb and unable to move as easy. I went for physio and they did manipulation of my hip to keep the movement and really set me back but at the same time gave me more ROM. But today I felt worst then evee I almost felt like was refreezing I guess I will wait for few days and see. Wondering what was your experience with MUA after a month or two? if anyone please.

Thanks

I actually had surgery but was told to do about 3 hours of physical therapy at home every day as in 3 1-hour sessions and go to pt 3 times per week in addition to home exercises .  Then they added more home exercises as time went by. That went on until I wasn't in pain. Took months. It is a very painful rehab for sure. And all the muscles and tendons are not themselves yet.  They r moving around and trying to regain their muscle memory and strength now that they aren't glued down from being frozen. I have Hashimotos thyroid as do 2 other family members so far and 6 of us have had 7 frozen shoulders. 

Hi Terry74787,

Thanks a lot for your replay. Your totally right regarding physio and the the structural pproblem with the all artculation in my case hip/leg. I do feel have problems with tendons ligaments, muscles. is a long recovery process for sure. Made me feel good your telling took you some time. I have good days and bad days.

I had the basic thyroid test twice and seem to be o.k wondering if is another one more extensive, because this one is not showing anything once again. But I heard people with diabetes or thyroid tends to have this kind of condition.

Once again thanks a lot Terry you gave me a piece of mind.

Sorry Terry I forgot to asked you if you had also frozen hip? or frozen shoulder?

Two frozen shoulders about 6 years apart different shoulders. Suspect I currently am getting over a partial frozen shoulder again although most say it doesn't happen twice...

If there were such a condition as a frozen hip there would be patients who had a hip joint freeze, stay frozen for a certain time and then thaw as the name given , freezing, would suggest.

Nothing in the literature shows this. Of course this is not to say that you can;t get a very sore or painful hip. Hip restriction follows a pattern of lost ranges and can be osteoarthritis, a mono articular rheumatoid, infections and synovitis. It seems that most will improve with the appropriate treatment. Some will continue and become arthritic and require more heroic measures.

Hi James,

I always wonder why some people try to give their opinions without knowledge. Is plenty of literature addressing adhesive capsulitis of the hip " frozen hip".

You are right there is lots of literature regarding frozen hip. But if there truly is such a condition there must beat least one article descibing the length of time an untreated frozen hips lasts. Re the frozen shoulder. It lasts a certain amount of time, it freezes, stays frozen and then defrosts. A frozen hip should do the same, if not it is not a frozen joint.

Hi James,

Im currently suffering frozen hip (very often is misdiagnosed with, arthriris, ostheo, etc) and I can tell you is basically frozen shoulder just a bigger joint. So it may take a little longer to heal. Depends on the person and the severity of the condition like you know everyone is different.

I just wanted to clarify that unfortunately is such a thing a frozen hip or adhesive capsulitis of the hip.

That is interesting, tell me why you think this is a frozen hip and not a synovitis or early osteoarthritis. I have found the the pattern of limitation for osteoarthritic hip and it is gross limitation of medial rotation and abduction, and flexion more limited than extention. Is a frozen hip limited in the same way. By the way did your Doc or Physio diagnose your freezing hip? There has to be some way a frozen hip is different from the usual hip conditions.

I had every single test done (xrays, MRI, CTscans, bone scan) not a sight of structural damage. I had two specialists confirming my case.

If you are young enough or lucky enough then all the medical imaging technology in the world will show no structural damage. If all these tests were done on a friend of yours it may be that the tests show a huge amount of damage, wear and tear and never produced pain. When I was in my 50s my neck xrays looked like those of an 80 year old.  Now I am in my 80s I hate to think what they look like but I have full ROMs and am pain free. Just what did the specialists say and does your ROMs match up?

Hi James,

You are just reading things on the internet and assuming they are true.

I have had frozen shoulder (same shoulder) for 13 years and it has not unfrozen. I have had 3 arthroscopic "releases" during this period and steroid injections. The shoulder has re-frozen after being forcibly released to some extent. 

Since the first frozen shoulder, my other shoulder and both hips have also frozen, the last hip starting Christmas 2016. 

Don't be offensive by suggesting that people must fit the textbook case history when we are talking about such a misunderstood and barely treatable condition. 

The reason she knows it's a frozen hip and not another condition is because she has had a frozen shoulder and it feels exactly the same. Doctors like to insist that frozen hip is some other condition because their textbooks do not mention it. Generally they insist upon arthritis, tendonitis, bursitis..anything but frozen hip. When they investigate and don't find any of these other conditions then generally they hint that you are making it up. It can be quite frustrating. To a sufferer of frozen joints, a frozen joint is a well known feeling. 

Hi Tom,

Thanks for your comment here. I would love to be able to communicate with you regarding this condition.

I can email you here privately if you agree.

Thanks a lot and praying for a miracle for both of us.