Has anyone out there had a "Prostate Artery Embolization??

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I had one on September 10th, 2014 and would love to compare notes with anyone else that has had one.   Thank You.  ChuckP   PS Some people just call it a "PAE" for short.

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  • Posted

    Prices noted are for procedure, correct? Is there any hospital stay involved? I would be flying in from the states. What are all the rest of the costs? Thanks for your time, JV
    • Posted

      I had my procedure done by Doctor Sandeep Bagla who is at the Inova Hospital in Alexandria, Virginia.  You can call Nicole Tolleson for a current price quote.  I had mine done on Sept. 10th, 2014 and have heard rumors that they have raised their prices since then.  It only shrinks your prostate 20 to 25%.  It didn't help me as I still get up 4 times a night to pee.  I would NOT recommend it in all honesty.  Iam looking into the Urolift at present time. 
    • Posted

      John, check out the testimonials on Dr Pisco's website.  It doesn't work for everyone like ChuckP noted but the success rate is high and no possibility of ED, etc. I think Pisco's price is the cheapest but he's in Portugual.  He's also done more over 800 PAE's.  Also, Pisco offers a cheap redo if your prostate doesn't shrink enough.
  • Posted

    After reading through the forum last night I was up for several more hours "looking." Firstly, why I didn't know that this procedure was even available  makes me nuts. I just  had a cathater out after 4 days because of not being able to go...AT ALL!  The nurse had to run the catheter up twice, either because I was so tight or because she was incompetent. Either way, I screamed like a cat caught in a garbabe disposal  .I'm in NC, in the US. Found that Duke University AND University of North Carolina  at Chapel Hill  both do the procedure and at UNC if you'rer over 65 and on medicaid, all costs are covered. Point of interest, Duke has 18 Professors and assistant professors in their Urology Department. Tells me someone knows something, huh? I'mgoing to follow through on applying to UNC.Will let y'all know what happens.  JV
    • Posted

      JV,

      As mentioned earlier in this forum, I had my PAE done at UNC in chapel Hill 6 weeks ago and the results have been remarkable. Dr. Isaacson is the Radiologist in charge of the study and he he outstanding. I have not seen anything on Duke doing the procedure, but if you can still get into the UNC study, you will be pleased. Like you I had a catheter inserted in the emergency room and wore it for eight days. I had my Urologist train me to self cath because I never wanted to go thru that again. Over several months I had to self cath 3 times. That was when I found about UNC thru online research. Urologists are generally unaware of this procedure since it is new and is performed by an Interventional Radiologist. So far all in my study have had good results. I know that ChuckP who started this discussion has not had as good of results. But even he is off awful prostate medicines and has a good sex life. I believe his was done in Alexandria, Va at Innova.

       

    • Posted

      Good to hear. I am going to follow through as i never want to go through that catherizaton again. Done a lot of research and was dead set against any kind of cutting on the prostate itself for fear of spreading a possible cancer, or just plain being incontinent or dysfunctional. Too many damn things to go wrong. This procedure sounds like a Godsend. Would I just get in touch with the Doc through the Urology Department?
    • Posted

      Jojnsv6,

      just google UNC PAE. You will find description of the trial with testimonials and a link to Dr Isaacson's email. He responded very quickly to me via email and if you leave a cell number he actually returns calls. There is even a YouTube that shows the procedure. I don't know if the trial is still open, but it is definitely worth a shot. As I said before, I am delighted that I found this trial and have had amazing results. The beauty of this procedure is it is truly minimally invasive. It requires no cutting, can be repeated and does not rule out other procedures should it not work for some reason. The success rates are very high. Because it is relatively new there are no long term studies to tell how long it will last, but for me even a few years would be good. I am optimistic that it will last quite a while though. It is a shame that this is not more widely known as it generally has no side effects and sure beats the alternatives which all involve cutting. You do have to be cancer free to participate. I had to do a biopsy first. Contact Dr Isaacson soon and I wish you the best of luck.

  • Posted

    Hi. I saw a mention of this forum on the "HealingWell" website concerning PAE.

    I noticed some mentioning having PAE from Dr. Bagla at Inova last year.

    I had my PAE with him in May, 2013 so was probably around #30 for him or ealier for him. I was 50 when I had PAE.

    I had dealt with luts for years and taking flomax.

    It quit working even at 2 per day and I completely shut down. I had to start catherterizing myself 3 times a day until I could get to Inova for the PAE.

    I had absolutely no side effects, no blood in urine, no problems at all.

    I had initial improvements and my prostate decreased from 53 to less than 35.

    I had very large diverticulum in my bladder which were as large as my bladder.

    Because of this I hadn't enough pressure when urinating. the urine just squeezed into the diverticulum.

    I had the diverticulum removed and, after the long healing from that surgery, I did very well. I am off the Proscar.

    I do not get up at night at all any longer unless I drink coffee. If I drink any at all I have problems urinating and will also get up all night.

    I have no sexual difficulty at all.

    My remaining problem is narrow bladder neck.

    My uro kept me on 1 flomax and put me on Cialis 5mg daily because it acts on the bladder neck. I was concerned about starting it since I have had no ED, but he is using it for prostate and bladder neck patients without ED. So I did.

    I've thought about a bladder neck recision but there are small possibilities for Retro. One of the main things I wanted to avoid. I choose not to at this time.

    2 years ago I averaged 300-400ml residual volume. Now, anywhere from 50 to 100ml.

    I am able to completely empty my bladder, although not quickly. I will choose to take longer to urinate than not being able to ejaculate.

    I am no longer bothered with night-time trips to the bathroom.

    I still take 1 flomax per day and 1 Cialis per day. He wants me to DC the Flomax in October. I might try it.

    Some things to consider.

    1. Mid-lobe intrusion. PAE nor GG are as effective when you have mid-lobe intrusion. Sometimes no benefit at all. I do have mid-lobe and it did help me, though.

    2. I am 2 years post-procedure. no problems. only benefits.

    3. Post-PAE (as does GG) often sees significant improvement in ED, etc. not always though.

    4. I have seen numerous horror stories with Turp, PVP laser, etc. Numerous people develop urethral scar tissue that never gets better even after numerous new procedures to clear them.

    5. Choose PAE or GG first. Anything else only as a last resort.

    If you want to check out my progess, from May 2013 to present, you can read it on the GG thread on "healing well". There's about a dozen threads of it n that site because it can only go 9 pages before messing up, but if you start at the first thread, you can forward to the next thread at page 9 of each.

    Best wishes to you all with the decisions you are forced to make.

    blessings,

    rphguy

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    • Posted

      GG is the Gat-Goren team of doctors in Israel, now performing their procedures in Cyprus. It is not a PAE procedure, they do a procedure that limits the flow of testosterone to the prostate.

      Their premise is that many have BPH when certain veins that carry testosterone from the testes to the rest of the body fail. that allows the testosterone to pool up and travel to the area of least resistance, the prostate. the prostate is bathed in excess testosterone and begins to enlarge. the body is getting less testosterone which hinders many other things.

      their procedure is supposed to 1. shrink the prostate. 2. help people that have symptoms of low testosterone.

      In the process of the procedure they basically do a variocele repair of the testical veins, which in turn, fixes the backflow problem.

      this procedure is over $20K and is only performed in Cyprus, as far as I know.

    • Posted

      1rphguy,

      when end I had my PAE performed 8 weeks ago my prostate size was 128G and I have a large median lobe protruding into the bladder. In spite of this my PAE has been amazingly successful. The size and medium lobe made me a poor candidate for other minimal invasive procedures. 

      For those who Amy have median lobe don't rule out PAE. I am proof that it can be successful.

    • Posted

      How many times per night are you getting up to go to the bathroom??
    • Posted

      ChuckP,

      i have been fortunate. Most nights I do not get up at all. I have sleep apnea and sometimes wake up because the Cpap machine is irritating. If I wake up I may go pee but I don't feel any urgency to go. When I had my Cysto the urologist commented that the area around my urethral was amazingly clear.

      i play 18 holes of golf now without having to pee during the round. I know you have not had as good of luck at night, but the few that I have spoken to in my clinical trial have had good results as well.

  • Posted

    the mid-lobe does decrease the results at times, but certainly doesn't kill the benefits completely or, in some cases, at all.

    there are many things that cause people to get up at night. sometimes drinking water before bed helps because at times the bladder can be irritated and trigger the urinary response but with more water in it, it lessens. Azo Standard might help too.

    We all need to remember that night-time bladder frequency is not completely cured by merely shrinking the prostate. you might have a small bladder neck that keeps you from completely emptying. you might have a diverticulum that keeps you from emptying. you might have a neurogenic bladder, or bladder wall irritation, or long-term prostatitis (bacterial or non-bacterial) which can keep  recurring and triggering things.

    Just fixing the prostate isn't the whole answer always.

    I had to:

    1. shrink prostate thru the PAE

    2. Fix my large diverticulum

    3. treat narrow bladder neck with Cialis/flomax... or bladder neck recision. (I chose medication because of fear of developing irreversible retrograde ejaculation).

    YOU might need anti-inflammatories for the non-bacterial prostatitis.

    You might need to give up coffee because it is a prostate and bladder irritant. I had to give it up because I immediately develop problems that last for 2 days with drinking just 2 cups.

    You might need maintenance antibiotics because of bacterial prostatitis.

    You might need to limit colas and acidic fruits because of bladder irritation.

    You might need treatment for neurogenic bladder.

    LUTS is a complicated problem and has many various factors and treatments.

    btw, I am a pharmacist and, though not an expert by any stretch, I do have a fair understanding of medicinal treatments and learned the surgical treatments when I had to..... I chose PAE and am not sorry I did.

  • Posted

    I have posted my experiences with my PAE here several months ago and have been away from the discussion for awhile. I just read the posts again and think I have some info to share. 

    I had the PAE and no pain, actually a pleasant expreience for me. They sent me home with this orange colored aspirin and it made me pee orange red... I can see how some think they are peeing blood if they don't know it is the pills. The procedure does not enter the urethra nor produce blood or tears of any kind as far as i know. 

    Also, I had been on blood pressure medication a few months before my procedure. It had been making me tired and sometimes a little dizzy during the day after I took my morning pill, so since I was also having trouble sleeping at night, I thought, why not take the blood pressure pills before bedtime each night, get the benefit of the sleepy feeling, and perhaps it would wear off by morning and not make me tired or dizzy during the day.... OK..... 

    I was peeing before the procedure as much as 8 or more (variable) times a night! 

    After the procedure, things were much better, I peed much better than before, even better than when I took my flowmax pills (at $2 or $3 dollars a day!).

    Peeing dropped for awhile to about 5 times a night but went up over severaal months and sometimes I even hit 13 times in a night!! 

    Dr. Bagla told me he thought it was due to HABITS we get into peeing a lot and after the surgery you still ahve the habit that needs to be broken. 

    Well, to make a long story short, two weeks ago I had had enogh of this all night peeing and the insomnia books weren't helping any, so I thought about it a lot, and thought, why not cut my blood pressure medication in half, check my blood pressure to make sure it was within range still so not to damamge my body, and also to take that lower dose in the morning again. I checked with a local doctor who agreed with me completely that it was worth a try. 

    BINGO, my blood pressure was about 120/80, perfect, I was not tired during the day, and I started peeing only 1 to 3 times a night!!! 

    The blood pressure medications make you pee!!! So NEVER take them at night, and always try to minimize the dosage necessary to maintain your ideal pressure. 

    I also found that taking melatonin, valerian, magnesium, and various natural herbs before bed to help me sleep also affected how many times I peed! 

    So guys, it seem there are very possibly other factors you each may have that could be contributing to this peeing marathon we all go through and why some of you think the surgery was for reducing the amount of times you pee at night and it did not seem to help. 

    I sleep much better now because I am not up every 20 minutes to an hour, I am more relaxed all day and when I hit the bed at night so I fall asleep better (less anxiety). 

    I do like taking on melatonin as it has minimal effect on my peeing but it makes me fall asleep sounder faster. 

    I hope this sheds some light on some of this and encourages all of you to look into your own situation in more detail. Experiament like I did by changing things around, stop taking some things for a few days to see the difference (asl long as it is not life threatenting medications!! check with your doctor on those) and see if you don't pee as much. 

    Thanks for all of you for being out there helping each other. 

    Allan in Panama

     

    • Posted

      Hello Alan,

      You are one of the few who has also experienced these marathon peeing jags at night.

      Until last month I was experiencing them all night about twice a week since Sept. 2014. I use a bedside urinal so I can pee in the dark, and also measure the output in the morning. For about a year I was passing 2 to 3 liters, going every 20 to 30 minutes until about 8 AM. (I'm retired, so at least I could then sleep 4 or 5 hours until noon or 1PM.) This was happening on average twice a week, with the other nights being relatively normal, getting up 3 to 4 times a night, but getting right back to sleep after using the urinal in the dark.

      None of my doctors could give any help. Itried various supplements including melotonin, tranquilizers, etc. without success. Crazily I cured myself a month ago and have only had one incident in the past 4 weeks. My routine is as follows. I take a warm shower around 1AM. From 1:30AM to 2:00AM I read a mystery novel while drinking 7 oz. of chianti. I pour a second 7 oz glass od chianti, and take it to bed and listen to old time radio shows on my headset from 2:00Am to 2:30AM and am drowsy enough to take off the headset and fall to sleep. I generally use the urinal 3 to 4 times at night and pass about a liter of urine.

      I'm guessing that the all night peeing and insomnia were a kind of vicious circle caused and fed by the anxiety of being up all night.

      On the topic of PAE, I presently have a 195g. prostate (down from 300g.) after a turp last April. But I also had a Greenlight laser 3 years ago, and a second one 18 months ago to resect the bladder neck and remove stones. Looking at my ultrasounds for the last 4 years, it eems the prostate is growing at a rate of about 60g. per year. I was considering the PAE as a way to get out of this cycle of growth and surgeries. One question I have for you or anyone else reading this post is does the prostate regrow after the PAE, or does it stop it permanently from growing? I've come to realize the turp is just a short term measure with the rate that my prostate grows at (was 110g. 4 years ago, after two greenlight lasers it was 300g, and after my turp 6 months ago it is now still 200g.) My stream is great, and getting up 3 times in a night is OK, but I dred facing a surgery every year or two the rest of my life.

    • Posted

      My understanding is that the prostate can still grow no matter what procedure you decide to go with.
    • Posted

      That seems to be the case. I guess there's not enought long term studies on PAE to determine at what point the prostate grows back. I went to my uro yesterday and he gave me a prescription for avodart (dutasteride). From what I read the results are about the same as PAE, about a 25% reduction in prostate volume with sustaining shrinkage over a two year period. That's about what has been reported for PAE. Of course there can be side effects. Many men report loss of libido and growth of man boobs with dutasteride. Some men report no side effects. To sustain the benefits it would have to be taken for life. My uro was open to PAE but believes it's too early to recommend it. Unfortunately his own altenative was rpeated turps for the rest of my life. Even with a retropubic simple prostatectomey, the prostate grows back. An odd thing is that when I aske d him what happens if my prostate grows to 300g. or 400g., he said that as long as it doesn't interfere with my urination it doesn't matter. After the turp in April I have a great flow and no symptoms of bph except a bit of stinging at times. ANd my prostate just got measured at about 200g. with an ultrasound. I find it hard to believe that it continuing to grow at a fast rate won't have some impact on my symptoms eventually.

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