Has the forum got M.E again ??

Hi Michelle

Phew, so I'm not the only one! That makes me feel a lot better.

Yes, it must be something to do with the concentration - and as you say it completely drains all energy.

It's also one of the main reasons that I have had to have a break from work - as it involved many, long involved phonecalls - often whilst dealing with something else at the same time. Sometimes I just felt as if my head was going to explode. I would rather walk half a mile than talk on the phone for five minutes.

Thanks for your speedy reply.

Take care

Katie x

Hi Michelle again

Gosh, what a bit of luck! That hopefully sounds really positive. Then you can pass on all the info. to us.

Good Luck

Katie x

Hi everyone

Ive just spent about 2 hrs reading through everyones posts on here and come to the conclusion that we are all in the same boat

1. Its still not a reconised illness, perhaps the board of medicaen should read these posts then they might learn something from what the SUFFERERS are experiencing

2. Theres still limited information on diagnosis and not if any help on helping us all to live and come to terms with this illness

3. Theres alot of scared people out there that are having to wait months if not years for a written diagnoses

4. I think i can honestly say that ALL of us just want our lives back so we can get on with our lives again like before, WERE NOT LAZY !! I personally carnt wait to get back to work

5. If the government put some money into researching M.E then they wouldnt have to pay us the pittens they do as we'd all be cured

Are we just ment to sit back and wait for a cure to this illness and carry on being treated like we are having a life imprisonment, if i did id be out by now ??

Although i hate to see third world countrys suffering the way they are, but they need to be looking on there doorstep !!

Jay

Hi Katie

I do have trouble on mbls chatting, but the worst for me was when i was working id have to go to alot of mettings, after about 10 minutes everything would start going black like bad tunnel vision and the chatting would just echo in my ears and i couldnt desiffer what ppl were saying, id come out of the metting completly exhausted, however some ppl on mbls specially if they understand ur illness do help you abit and perk you up,

still a nightmare mare for me on here though cause i start typing then completly forget what i was typing, so id have to delet and start again, but never as good second or third time round ?? :lol: :lol: :lol: :lol:

Take care

Jay xox

Michelle, Pro Plus is atually unaulterated Caffeine and can make you feel like you are on speed, with racing heartbeat, sweating, massive headache - especially if your system is not used to Caffeine.

I am caffeine intolerant but I have used these in the past when I was young and not ill, and my kids have used them in their clubbing days.

Caffeine is actually listed as a class B drug. I would not advise you to try them but I understand your desperation.

Good luck Michelle, a sympathetic Doctor is worth his weight in gold and if he has the knowledge about the condition to correctly guide you then you won't go far wrong.

OMG, I almost cried when I read your post.

You really really do think that you are the only one with these stupid symptoms.

You mean there are other people out there that have to avoid phone calls as much as possible and totally if it is certain people calling? :shock: :shock:

I am not going to post how the phone affects me, it is all in your posts, exactly the same.

This must mean something - we have all got the same thing wrong with us and it follows a pattern :D

I might be brave enough to post about some of my other 'stupid' symptoms, chances are someone else will have them too.

Perhaps I really am ill and should stop fighting it all the time just to make other people feel more comfortable. :roll:

I am a very analytical person and things like your post Katie, make think 'why?'

Where did this normality come from? What happened physiologically in your body that 'normal' day. what changed?

If only we could know it would be halfway to understanding how to cure us. :roll:

I have been seeing a physical health psychologist attached to the ME clinic where I go and she explained how people are predisposed to this illness long befor they actuall collapse with it, and the trigger can often be identified from stressors, either physical or mental in their lives. Then one final stressor - usually a physical illness - tips the balance and the body and mind can take no more, recovery never comes. It makes a lot of sense in my case.

Hi readers

Dont panic but I may be going in hospital today for a short while! :ill:

I will keep you updated

Donna

Take Care everyone

Hi Donna

OMG - are you okay?? :?:shock: :shock: :shock:

Do take care and please let us know how you get on.

Lots and lots of love

Katie xx

thinking of you Donna and hoping you will be allright. Hope to see you soon x

Hi Michelle

I suppose it depends on the tolerance of each individual - but it's probably not advisable to go down this road. I once, in desperation to stay awake during a meeting, tried a colleague's caffeine strip - all it did was to increase my already pounding headache.

My GP mentioned on my last visit (I've put this in a couple of other postings ) that some of her ME patients benefit from a very small dose (75mgs) of Asprin - they find it clears their brain fog a little. I realised that I was in fact already doing that by taking an Alka Seltzer when feeling particularly tired and foggy - it definitely gives me a slight 'lift' for a while. Whether it's the asprin or the caffeine in it, I'm not sure. However, it may not suit everybody so be careful.

Katie

Hi Donna

I do hope you'll let us know ur ok asap as were all gonna worry bout yea, and why are you in hospis

Sending a big hug ur way

Jay xox

I have IBS, and wind, and colic, and other things too horrible to mention.

I have got some magic pills but being unable to forecast said windy weather it is usually too late to take them, unless I take them all the time which is a bore. :roll:

another way is not to eat anything that I like, that helps - not

No, yoga would not be a good idea, trust me, I have tried it :oops:

Hi all,

I have been feeling ill for a whilst and after my GP ask many blood test, urine test and even x rays, and everything came back normal, somebody who knew someone else who suffered from ME mentioned and I was amazed how it all falled into place. That was only last week and when I visited my GP this week, he agreed with me that it made sense that I was suffering from post viral fatigue, as he called it.

So it appears, this is it. I am very confused. Sometimes I even ask myself if I am imagining things. I am trying to find out more about it and will start graded exercise soon.

I am finding difficult to deal with it at home as my husband seems to be also afraid of the future and my family is saying that my problem is jsut because I am overweight.

Please can somebody tell me how was their experience at the beginning... I need help!!!