Has the forum got M.E again ??

Posted , 52 users are following.

I found your article quite helpful.

I just recently had a diagnosis of CFS and did not believe or understand what it was about. It is good to know in your article that may there be some options and support to improve this condition. It is also helpful to know there are books or organisations that may be good for me during this period. I have found that doing a little bit of excercise make me tired but helps me to avoid depression or feeling part of the community.

[i:ff97f93ed2]This message was automatically imported from the original Patient Experience[/i:ff97f93ed2]

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  • Posted

    What's happening things seem to be changing. I have just come downstairs not well at all today. Very breathless and got discomfort around one of my ribs,(It's a one I broke about two year age)It's as if I have a stitch.

    The food was lovely last night, but of course you play the host and make sure everyone is happy and got a drink. I did not realise it would take as much out of me.

  • Posted

    Hi Lou smile

    Sorry you feel lousy after an evenings entertainment ....... it's so unfair isn't it ... this wretched illness always makes us pay for any bit of fun we may have sad

    The forum posts seem to have been merged into one at the moment :? Hopefully they can be sorted out tomorrow, but at least we can still start up new threads.

    Take care and hope you feel better soon.

    Katie xx

  • Posted

    Hello All :D

    Katie - I think the message said something like

    \"Sorry only posts to this forum allowed\" :shock:

    then my post disappeared and so did both the threads I was trying to post on :roll:

    Very odd

    Sorry you're feeling horrible today, Lou - oh it's so annoying when we do \"normal\" things and then pay for it isn't it :steam:

    Right - here goes, let's see if this works :huh:

  • Posted

    PS Well, that worked so I'm chancing my luck now----- :?

    Did you see all those film stars arriving for the BAFTAs ?? :shock:

    Haven't they heard of a nice gaberdine mac (with hood of course) or a nice cardi buttoned up the front :lol:

    They must have been freezing :roll:

  • Posted

    Ha Ha :lol:

    What I find so off putting is the pumped up faces of the older actors :yuk:

    Why do they do it ...... particularly the men ..... it never looks right :weird: :yikes: :yuk:

    And as for Melinda Messenger on the skating, I expected her enhanced boobies to pop out any minute :yikes:

    And then there's Todd :lol:

  • Posted

    We sound like a right mixed up munch when trying to read through the mixed up post, it is as if the forum as me. :lol:
  • Posted

    I find it quite frightening the amount of people who are being diagnosed daily by the NHS with M.E or Chronic Fatigue. I know 5 people quite closely who were all diagnosed with chronic fatigue/M.E and because all of them were under the age of 30 they were basically told it was post viral and to try CBT and exercise to get better!!

    Turned out 4 out of 5 of them all ended up really quite ill and every one of them had been diagnosed with Multiple Sclerosis, Rheumatoid Arthritis, HIV and Diabetes!!!!! This I find very scary, that a lot of GP's these days are getting it wrong.

    I myself am 26 and was given a bundle of documents printed off patient.info from my GP about M.E and chronic fatigue and sent on my merry way. I was given no support or any information on how to gain support and get better. Now I am under investigation for Psoriatic Arthritis!!! I have gone through 2 years of being told it is M.E , my boss told me M.E was a lot of nonsense and was a diagnosis of exclusion and I went through hell at work for this. I was basically being accused of lying and told nothing was wrong with me. Due to the stress of all that I had another relapse of symptoms and ended up in A&E. Turns out I now have severe joint inflammation and raised parathyroid hormone!!! I am only 26 and am now walking with a stick!!!!!

    IF I had kept on believing it was M.E my condition would have just got worse and worse. (Which it did anyway).

    So the point of my babbling is, do not believe straight away that you have M.E unless the doctor has explored ALLLLLL routes!!!! Also do not believe you have it until you have been tested for HH6, and epstein barr virus. Along with vitamin D. IF they aren't testing for these things, they cannot just say you have M.E as it is usually sparked off by one of those viruses.

    I was sent to neurology, psychiatry, vascular etc you name it - constantly told it was post viral!!! Then finally rheumatology and am now finally getting somewhere - and actually am on the way to an arthritic diagnosis.

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