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Have anterior urethral Stricture

Posted , 9 users are following.

jessy03690
jessy03690

Was diagnosed of urethral Stricture and i was told i have 2 options . To either self dilate once  daily or urethrotomy surgery. I choose the self dilation and have been fine for 4 months until recently it appears the stricture got tighter and my bladder have been hurt several occasions after urinating and maybe when i take citric fruits or juice.

Because this is hurting my bladder i might be looking at taking the surgery option to prevent causing further harm to my bladder.Will be meeting my urologist soon but am curious to know how the urethronomy  surgery is and post patient feelings short and long term. Is a difficult situation for anyone to have the penis sliced to perform the surgery . Are there any patient who has done this surgery, how was your urine flow and sex life after surgery.

Also i read there is also a risk of a re-occurrence from 1 year to 10 years . Just curious and hoping to get all the help i can get as i know the urologist don't tell everything and the are always in a hurry to see another patient 

2 likes, 45 replies

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  • kenneth1955
    kenneth1955 jessy03690

    Posted

    Where did you say the stricture was in the penis.  I read up on it and they go through the pee hole a open up the stricture.  I don't think they cut it open with that one.  What about a balloon dilation.   That last about a year but it would be easier that having your penis cut.  How old are you my friend.  I have a stricture just before the prostate it's been ok for the last 4 years.  Good luck Ken

    • jessy03690
      jessy03690 kenneth1955

      Posted

      I am 34 yrs, is actually at the fossa navicularis and i have been dilating for 6+ months, is just causing strains t my bladder . Dis you do a urothroplasty surgery for your stricture 
    • kenneth1955
      kenneth1955 jessy03690

      Posted

      No  So fare it is open.  I do have small steam sometime.  I had some surgery over the last few year and they have all ways been able to open it with catheters while I am out. I was told when they found it that I should not have any thing over a 12 Fr coude.  I had a repair done on my clips ( Urolift ) He was able to get a 18 reg in at that time.  I know in time it is going to close.  I will deal with it at that time.  What about rods different size.  And why is it causing you bladder problems.  It at the opening of the penis right  Ken  
  • ladha99
    ladha99 jessy03690

    Posted

    I am  facing the same problem I left dialationnfor almost 6 years now. My stricture is more tighter my pain in urethra is very very painful and my sexual

    Life is the the same but ejaculation is a pain like a b***h. Pain and pleasure together imagine!

    Anyway I’m thinking of urethrotomy but I’m scared like hell. 

    Let me know how it goes. 

    I have been suffering since very young age like when I was 9

    • jessy03690
      jessy03690 ladha99

      Posted

      It's well.. I started noticing mine and went to hospital where a doctor ruled out a stricture but i developed the stricture in the another hospital when i traveled for work and i needed to check my condition , the doctor advised  the do a bladder test by inserting a catheter . I initially hesitated but reluctantly agreed that's when my real problem started 

      I wish you well but from what i read about the urethrotomy, is not effective if the dilation fails so maybe you should do more research . The say urothroplasty is a gold standard but am worried about the post operation effect on sexual life and long term effects too.

      For the ejaculation .. Maybe try catheterizing before you have sex..maybe it will help 

    • ladha99
      ladha99 jessy03690

      Posted

      Sorry I meant urethroplasty. I have done urethrotomy no good results almost immediately it came back within days.  
    • kenneth1955
      kenneth1955 ladha99

      Posted

      Jessy & Lad  I would thing and hard before I would have my penis cut open.  He may be ending for more problem.  What about dilation rods doing them yourself.  I know they make different sizes maybe that would help.  I know they use them for sex sometime.  Who know.  I would try anything before cutting open my penis Healing is going to be a ?????  Ken.. 

    • jessy03690
      jessy03690 kenneth1955

      Posted

      Thanks Ken.. Other reviews i have read shows no lasting solution other than management of the stricture and for me i dilate once a day and it works well but for the past six months i have received 4 to 5 bladder trauma that makes my bladder so strong, a very painful situation and am worried about damages on my bladder, so am thinking of a lasting solution . Urothroplasty seems to be the only thing that's more like it but am still making research on it.

    • kenneth1955
      kenneth1955 jessy03690

      Posted

      Do has much research as you can.  If you can ask your doctor to tell you everything from step to step before you comment to anything  Take care  Ken
    • b61649
      b61649 ladha99

      Posted

      How are you doing ladha?   Any updates? 
  • glenn77
    glenn77 jessy03690

    Posted

    Strictures at all locations are reported to have an 85% rate of occurrence within 2 years after dilation.   (I wish that my stricture were in such an anterior location where it could be surgically repaired!)  I have had both balloon dilation and urethrotomy procedures for my stricture, and neither lasted more than a few months.  Unfortunately, my stricture is so posterior, and because of my age, reconstruction is not a good option.

    Do a search for [fossa navicularis stricture] and read the NCBI articles for good advice.  I would look for the best reconstructive specialist you can find for an evaluation.  I saw a reconstructive specialist on the west coast and one on the east coast if you would like their names.   I'm sure there are others, so get a good one.

    • jessy03690
      jessy03690 glenn77

      Posted

      Thanks Glenn.. I appreciate the advice, will do a research and read through the NCBI articles. I wish you well and i hope you get the best solution.
    • b61649
      b61649 glenn77

      Posted

      Glenn,  how often do you have to get a dilation?   Do you self cath? 

      Where is your stricture? 

  • glenn77
    glenn77 jessy03690

    Posted

    Jessy,

    As you consider your options, and read from people on this board, keep in mind that we are of different ages.  You said you are 34.  Only 34!   I am 79, and have only had a stricture for two years, thanks to a screw-up by my first urologist.  He also left me highly incontinent, so I was desperately seeking an avenue that didn't require that I be in a heavy wet diaper, or be using a condom catheter and leg bag all day.   My new urologist did a button plasma procedure for the stricture, then inserted a Fr. 22 catheter for a week.  That keep the urethra patent long enough for me to have and artificial urinary sphincter (AUS) implanted this past November.  So far, so good with both the stricture and the AUS.  The AUS was turned on in early January, and I live a pretty normal life without diapers (Depend pull ups, actually) or an external condom catheter and bag.  HOWEVER, I recognize that the stricture could come back, and I'll be faced with another procedure to deal with it.

    If I were your age, and had an anterior stricture, I would consider urethroplasty if I had access to a highly experienced specialist who believes he/she could do surgery with a good chance of a permanent repair.  A few months of recuperation at your age is a bother, but not the rest of your life.  From your description, you are dealing with retention and stress to the bladder.  Don't endanger your bladder and kidneys in order to avoid a surgery if it has a high probability of a good outcome.

    You didn't mention the cause of your stricture.  As long as it's not from having genital lichen sclerosus, a surgical repair should be a possibility.   Also, are you in the UK or the US?   I'm only familiar with doctors here in the US.

    • jessy03690
      jessy03690 glenn77

      Posted

      Thanks Glenn. ..I just noticed one day that it was taken a while for me to pee, went to hospitals and it wasn't quite clear that I had a stricture..infact a doc after a cytoscopy examination said I don't have a structure but maybe a tiny urethra...6 months after I was in my work station and had a lot of cofee which caused heavy bladder pain.went to a different hospital and the inserted a catheter,was the most painful experience. That's when my real structure problem started.Am in the U.S.I agree about not endageering the bladder as the structure has cause neurogenic bladder according to the doctor,I had a trauma last week that still makes my bladder feel so strong.Are urethroplasty a lifetime fix...the usually say a long term fix,10 to 15yrs..am looking for something permanent

    • kenneth1955
      kenneth1955 jessy03690

      Posted

      Jessy  I'm afraid nothing is permanent.  you may have to do it again in your lifetime But do what you can to make your life better   Ken 

    • glenn77
      glenn77 jessy03690

      Posted

      Jessy,

      The question of the life expectancy of a urethroplasty repair is something you need to ask a specialist in that area.   I did find a good report of outcomes of procedures that should be of value.  I will send it to you by IM, as I can't put a link in this post.

      Glenn

    • kenneth1955
      kenneth1955 jessy03690

      Posted

      Hey Jessy.  I just read a story about a a guy 28 went to have a urethroplasty have you talk with the doctor yet.  Are they going to do the graft one with the graft from you mouth.  I have to ask this are you circumcise.  The reason I ask was this guy the doctor was doing the graft surgery and he was taking the skin from his mouth.  Well when he woke up the doctor circumcise him.  He did not give the doctor permission to do that.  He has had more problems.  Sex he said does not feel the same.  This is why I say make sure you talk with the doctor and get copy's of everything in writing Take care  Ken 

    • jessy03690
      jessy03690 glenn77

      Posted

      Thanks Glenn...At this point it seems i don't have a choice and might have to go for a urethroplasty surgery as is seriously impacting on my bladder function, have a cytoscopy test in a week but the doctor said yestereday i have neurological bladder and it appears to have worsened .So i have no choice

    • jessy03690
      jessy03690 kenneth1955

      Posted

      Thanks Ken.. Am circumcised. The issue with urethral stricture is that it can cause more damage and am experiencing it, 6 months ago i was told i have mild neurological bladder and i have been catheterizing everyday but still experienced bladder trauma  due to occasional strains to void. I think my bladder function is deteriorating as it feels so hard when i breath, have an appointment next week . Will hear what the doctor says but with what i feel i already know is not too good but hope for the best. Will proceed with the surgery because the stricture is a serious threat to my bladder and i don't want it to get worse.About the sex part i read and was told by a urologist that it affects sex sensation slightly according to like 5 to 10 percent of his patients review....life is a already a b***h for me at 34 but when i think about the bladder ish i just have to give it a shoot 

    • kenneth1955
      kenneth1955 jessy03690

      Posted

      You have to do what is best for you.  And at your young age you need it taking care of now.  With the sensation maybe you will be ok and your young you may heal better. You orgasm and your ejaculation should be fine.  You need it done so you can enjoy your life.  God bless  Let us know what happen  Ken    
    • b61649
      b61649 jessy03690

      Posted

      How are you doing now Jessy?   Any updates? 
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