Have been experiencing muscle tremor and shaking for 3 years

Do you have any other symptom rather than those? and how did it start?

everything you described is identical to what i experience. So in july 2019, i woke up in the middle of the night, like something woke me up at 3AM. My whole body felt weak and shaky. I drove to ER because my legs felt like floopy noodles. They felt like they wanted to buckle at any moment. Upon getting to ER, they ran bloodwork, urine samples and a CT of my head. Clean, nothing found. Sent me home for anxiety. The same week, my balance felt off, my hands dexterity felt off, my muscles became shaky. I mean literally every muscle in my body. My wife kept telling me my muscles are fatigued. I was describing it as muscle weakness but she says theres no clinical weakness (shes a neuro NP). She says my weakness is perceived. So as all of this is happening, i get a pain in my left leg and dullness in my left arm, i get muscle twitching, stiff hands, and some lower back pain in august. I also developed severe anxiety so i started having chills, sweats, insomnia, and still shaky muscles. Went to PCP, neuro, a neuromuscular specialist (whos still working with me). She gave me a work up of literally everything. I mean everything. So far ive tested negative for everything, CTs, MRIs of head and back, CT spine, tests sent out to mayo clinic, genetic tests, 2 EMGS, 2 Nerve Condutions, only think that ive found thus far is as all of this was happening my PCP said my epstein barr numbers were high suggesting a possible reinfection and maybe i now have chronic fatigue syndrome or that EBV has effected my nerves. My neuro however isnt so sure and has said she doesnt quite know just yet but my wife said maybe Post Viral Syndrome and it cant last for years. So far 9 months later i still have same symptoms including twitching but weird enough i havent gotten worse. So no one truly knows whats wrong with me yet. I have another 3 month follow up with my Neuromuscular doc end of May.

First of all. Thank you for sharing with me those. Speaking of PVS or CFS, i recall having a severe flu before the shaking starts taking over. That flu caused me a crazy headache and cough for more than a week. Then suddenly one day after waking up i realized there was a a slight tremor on my thumb and it has been lasting till now. But since the recovery from that flu, i have not got any of flu, cold, cough, fever, etc. till now which is strange for me as well. Before all of this occurance, i was an extremely active person and very fit as well. But then that shaking took away mostly all of that. i started to gain way a lot. However, i still could maintain 5 miles jogging every if i want to. Doing exercises is definitely help to forget about all of this. Anyways, that's my journey. i m going to have another appointment with a neurologist ( one of the most famous one in the city) to see how would he say again about my condition. If everything returns clean again i will probably have to accept it or else i dont know. Once again, thank for replying. wish you all the best

My tremor is not resting tremor and it also happens on both side of my body. i asked every neurologist that i d seen and none of them suspected that. I dont know much about atypical or multiple a

systems atrophy but i will ask my neurologist for next appointment with him. Thank you

PS: i am male 30 asian

You need to see a neurologist that specializes in muscular disorders like ALS and or Mulitple Systems Atrophy. Since it is very rare and doesnt present itsself the same in everyone. it doesnt have resting tremors as does regular parkinsons diease.

All get very extenstive autoimmune blood work testing, and blood toxin screening.

Neurologist are too quick to say its anxiety and stress but they really dont know sometimes but wont tell you that!

Just because a diease or disorder is rare, doesnt mean youre not the rare exception!

thank you. Yes, i believe i have been there . i also just passed by your post. How are you now ? you sound full of depression and anxiety. i bet you know those significantly make the everything worse. Wish you all the best !

luther MSA has some type of autoomic function issues though right? His case doesnt really sound like that. MSA also may show something on the MRIs from what ive read.

im fine Im not full of anxiety or depression. I have a diagnosis

Its terminal

Im going to die from it, there's no treatment or cure,

So im good with it,

and I wasnt crazy from Anixety. I knew my body and pushed until I got answers.

And thats all Im suggesting. If you know something is wrong and you know your body, dont settle!

Sorry but Im not full of depression. Im looking ahead not behind! Theres glorious days ahead for me sir!

what diagnosis did you get ?

thank for replying. May i know your story if you dont mind ! Take care