Have i finally lost the plot.

I'm having a lot of trouble with my legs going numb &my feet are freezing cold all the time. I can only stand up for a short time before the pain is too much to bare. I do have arthritis as well,  don't help fibro is so wide spread   . Depression is hard to deal with. Anyone else out suffer with crocky voice & feel they have to clear your throat all the time?

Hi Jeanette I lose my voice completely for months on end every now and again. It is very croaky constantly, but I have learned not to clear my throat as having had speech therapy to try and bring my voice back in the months that it goes, I was warned not to constantly clear my throat, as it can harm the vocal chords! This may not be the case for you however, I don't want to worry you. 

Hi Jeannette, and others;  (I couldn't decide where to add my input...so when the voice came up..thought here is the spot...as I havn't heard anyone else ask this question)...but the answer is Yes...there are many times that my family and friends have commented on my Voice Going....As for the Pain  while in shower, are you gals/guys using the water too hot, as well as having too much pressure....this will set off the nerves.  I find that heat is a very good Antagonist to Fibro...and the pressure of a shower is enough for the Nerves to say "hold on, you're upsetting us".....sending wrong signals to the brain.  As for the Cold Feet, me too, in that one....always like to wear socks in Winter...(and my Winters arn't as bad as other countries, I don't think???).....hoping this is useful, and not too much of a mouthful......   Bron

Hi Jeanette, me again;   am also wondering what meds you take for your Fibro....you have also mentioned "the depression is hard to deal with"....and yes, we all have to deal with this too....it's, I feel, a lot to do with changes we have to make/decreased social life/decreased ability to contribute to our familys', both financially and emotionally.....do you/have you tried Amitriptylline (I take 35mgms at night/ sometimes take 10 during the day, and then25 at night)?  I have noted that many on this forum have also benefitted from using Amitrptylline, for our pain and our emotions.....let me know the answer to this...otherwise it should be brought up with your treating GP, and if you are already using same, try Fluoxitine...a light ant-depressant....other docs also provide Cymbalta...something a little stronger....it really depends on how depressed you feel, but please don't ever feel ashamed re same, as it is something that is "Normal" for a lot of people (not only people with medical conditions), but as our lives have become sooooo stressful, that it is becoming more and more common, and does need to be treated.  When my emotional rollercoaster gets out of hand, I go and speak to my Psychologist, and she gets me back on track....hoping you find this helpful, and doesn't make your personal issues worse?     Bron

Well now, this clears up yet another issue for me - my partner commented that he was worried about me as I'm continuously clearing a sticky throat, not actually a cough just a little noise to clear a tickle at the back of my throat.  Never thought that it might be the fibro - one more horrible symptom along with the millions of others! the disease that keeps on giving.  

Hello Bronwyn  It's so good to be able to talk to other people who know how you are really feeling. But wouldn't wish it on anyone though. Also I returned from Australia two years ago. So was not allowed to apply for DLA even though I was on full disability over there. I have advanced arthritis in my knees so not able to walk very far but have to walk 20 min to sign on job seekers it is so painful. I worked as a carer for children with disability not had any other skills. I'm going on a bit sorry.

No please, Jeannette, please finish your story?  It is why I come on this site, to hear of other's issues, and sometimes find answers to my own....if you were working with disadvantaged children, you have a Lot to offer, as that is a Very hard job to do, and as you say "you didn't have any other skills"...that is a very important skill...it's something that not many can do...it is Very demanding work, both Selfless and forever Giving...and I bet you those children Really miss you, as there arn't many of us willing to take on that role....even send me your story privately, if you feel you will be taking up too much space here....looking forward to hearing from you.....Bron

Soon agree with Bronwyn..please please keep on sharing..we really do care about what you have to say...your words are really important to us on here especially.  Hope you have a really lovely day Jeanette..be blessed..:-) xxx

Oh Jeannette; How Horrible....once again we are back to having to Validate ourselves....there are times that I wish Fibro, ME, PMR were all contagious....even for just a month or so....transmit it by a mosquito bite, or similar !!!!  I think there wouldn't even be a necessity for formus like this, if others knew how we feel....and as for the clothes irritating, this I also understand, as I had always relied on "leggings" for warmth, but now can only wear them for very short time....I put it down to being/having synthetic in them,  and now only wear cotton/linen/jeans...but I havn't got to the point that I have to wear nothing....but have said I wish I were of the Male species in Summer, and could wear only the briefiet of undies......  Please know, Jeanette, that not people are as horrible as your neighbours (yep, I know there are two kinds...maybe more...in this world of people)...but we all understand and feel for you....I know when you heard that, you would have liked a shoulder to cry on/get a hug...so am sending both...Bron

Hi Jeannette;  my last reply was that I thought this remark "was Horrible" for your neighbours to say such a thing....There are times that I wish that these illnesses, such as Fibro/ME/PMR etc were contagious, if even for a month or so....perhaps a transmission by an infected mosquito or such, just so they could get "an idea" of what it's like.......(what I am thinking that our Moderator didn't like is that I added that if this were the case, then we would not need these forums...sorry moderator,  it was not put properly into context....we do need this forum for knowledge....however, should have wrote that Jeannette wouldn't have had to hear such horrible words)....and yes, there are many different types of people in this world....and I am so sorry that you had to hear such hurtful words.....I am sending you a shoulder and a hug for that time..............Bron