having problems walking

Hi James what meds if any do you take now , did they give you an alternative , thanks 

thanks james-wil contact my doc and ask if i can come off them

Hi Bernadette saw my new Consultant today he was lovely so caring sat and listened to what I had to say without rushing me.  Well bad news is my af has reverted back but they are not worried about it, I told him all my side effects on Bisropolol so he said to stop them and stop taking my Amodarone  as well. He has given me Dixogin instead which I have been on before the funny thing is with hurrying this morning I forgot to take my tablets and I don't know if it's mind over matter but I didn't have heavy arms or legs and walked up a hill without getting breathless yippee mind you I don't know how long it will last lol. I have to see my Consultant in 3 months time to see how I'm getting on but he sort of assured me that this is not life threatening and you would be surprised of how many people have this condition. Oh my are we the lucky ones. 

Be interesting to see how you feel on the new meds I assume it's a beta blocker to , I haven't seen a consultant yet , I keep telling myself I need to get up and run to shake it off lol, I hsve had a horrible couple if days broke my back crown and the dentist didn't want to do root treatment so she built it up and dug v v deep result an abssecc on Tuesday my god the pain much better today , but I'm like a junkie with all the meds , 

back to what you were saying ,,, I think your right lots of people have this , I'm just dreading them putting up the dose , x

Sorry I just retread what you said that your AF is back , dud you not notice , mine us like a out of tune big band all the time ,have you ever had the shock treatment to your heart , x

Hi Bernadette sorry to hear you've not been well with your tooth there's nothing worse are you on blood thinners as well because sometimes you have to stop them if you have dentist treatment. I'm on Dabigtran. In answer to your question no I don't feel any different with the AF back I never feel like my heart is pounding. I've had to Cardio Versions both only lasted a couple of weeks then reverted back which they said is quite common they were going to consider Abalation but my new Consultant on Friday didn't think this was necessary because I never feel like a new woman once I've had the electric shocks lol. He said everything should be ok with the meds I'm on for now and will review me in 3 months time.  Well had another brilliant day today went for another long walk with the dog didn't get out of breath or heavy legs and my whole general feeling  is good. We walked around the shops yesterday up stairs and all over felt great my feeling of anxiety has lifted too I hope this lasts. Bisropolol has certainly got a lot to answer for xx

That sounds fantastic , so pleased your getting about better , better than me I think I'm a wimp lol, I feel better on the lower dose but I'm still not able to go long walks , yesterday I was shopping for hours for clothes as it's getting a tight squeeze at the moment lol I was exhausted when I came back , your right it does have a lot to answer , my tooth is not that much better yet , who knows what my bloods will be like on Monday at the warafrin clinic , I am going to go a walk with my wee dig later tell you now I won't be doing 2.5 miles haha have a good weekend  , and well done you x

Hi I was just wondering when did you first have your AF , x

I had a difficult root extracted last year after losing a crown while on Warfarin. She plugged the cavity and bleeding was minimal. 

How long have you been on Dabigtran and have you had any side effects from it?

I had been told that the newer antigoagulants were contra indicated after having had AF (now twice cardioverted) after a tissue aortic valve replacement. When I told Fridays registrar cardiologist that I had stopped Warfarin due to joint pains he said that he would tell myGP to switch me to one of the new ones.

Hi Derek , I didn't bleed at all , just had so much pain in the last 6 days , but silly me I have been taking ibrufen for the pain , I had no idea it thins the blood , no dout I will get a telling off at the warafrin clinic tomorrow 

Hi Derek I've been on Dabigatran since March this year I don't think I have much side effects apart from feeling of coldness in my legs and hands sometimes. I think they are better than Warfarin you don't have to go for check ups on your bloods every month like Warfarin.  Like you I have had 2 Cardioversion and is quite common to revert back which mind did as long as I'm off the Bisropolol I'm happy for now. fingers crossed.

My AF did not occur out of the blue it was caused by my heart valve replacement procedure. After the first cardioversion I was OK for fourteen months until my vagal nerve was stimulated by a colonoscopy. I feel perhaps wrongly that it should not happen again without outside interference. Of course cardiologists tend not to take that view.

I was to a degree afraid of bleeding that warfarin could cause. At least there is an antidote to it whereas the newer drugs have not. We don't know if we have any weakened  arteries in our brains. I tend to feel that a blood clot induced stroke is preferable to a major bleed.

It is strange that the most recent cardiologist told me that the newer drugs are all right to take after having had a tissue valve replacement and two have said they are contraindicated. Two others and my GP evidently did not know but accepted the statement of the 'Contras'

My local pharmacist did not know if a  prosthetic valve was tissue or mechanical!

I E-Mailed my question to NICE who referred me to the manufacturers leaflet and said: " As you will see, this lists Prosthetic heart valves requiring anticoagulant treatment as a Contraindication for Pradaxa"

The leaflet also warns of Dabigatran/Pradaxa being prescribed to over 75's in most circumstances.   

 Hi Derek  I wonder if we will be on these drugs for life probably. If it has to be then it has to be.  My AF was brought on by a virus used to be healthy before that .

Today I E-Mailed the three companies who make the new anticoagulants.

The Dabigatran/Pradaxa maker replied that it is contraindicated in patients like myself with tissue valves.

This is not the first time that I have been mislead by cardiology at my local hospital. On Friday the registrar actually consulted his Chief to confitrm that it was OK to prescribe. What hope do we have?