having reaction to steroid cream

Posted , 8 users are following.

So it seems I might be allergic to the steroid cream I have stoped eating gluten and am just using evening primrose oil and coconut oil it seems to be helping I hope it works I don't know what ells to do I never had any itching until after my biopsy and started using the steroid cream I think I may have been using it wrong it was just an over the counter one my doctor told me to try it and if i needed he would prescribe the other one well I needed it now it itched and started turning white everywhere the better steroid ointment helped but created pain and I felt sick and dizzy with migraine and blurred vision the doctor told me to stop for a week and try again but I slowly over two days if not using it my symptoms went away I don't really want to try it again so I'm hoping this new diet and oil work for me

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11 Replies

  • Posted

    Athena, if you're turning white everywhere you need to try something stronger than diet and oil, both of which may help. One thing is that some patients are allergic to the non-medicinal ingredients in the white clobetasol cream, but they're fine with the clobetasol ointment. My pharmacist was willing to sell me a repeat of my cream prescription substituting ointment for cream and Dermovate brand for generic clobetasol. Failing that, if you go back to your dermatologist or gynaecologist they may prescribe tacrolimus, which they save for patients who can't use Clobetasol.

    Just to be sure, I think you should watch DR. Goldstein's presentation. You may have been using far too much of the cream. It's hard to imagine such tiny amounts could cause such extreme side effects.

    You've cut out gluten. Have you tried keeping sugar to a minimum? That change worked quickly for me. I wish I'd tried it sooner.

    Keep us posted.

    • Posted

      Thank you so much for the info but yes I have searched all that I can I did see Dr Goldstein video that's why I was excited to get the stronger steroid it is an ointment and I want using much at all but I'm only doing it fir a week then trying it again all though I don't want to like I said I'm convinced the issues I had were do to the ointment I won't really know till I try again but I'm trying everything I can because what if I am allergic what then the specialist I went to didn't seem to be much help or care for that matter he didn't even tell me how to use the ointment I learned from Goldstein video he didn't set up a follow up appointment all he told me is they know nothing about it and to try steroids he was puzzled that I even had it he said I shouldn't have it at my age but most of what I find are woman around my age so I don't understand I'm 28 by the way but it's expensive$50 each time I go to the specialist so I'm going to try to get a new doctor as soon as I get the money 
    • Posted

      You need to go to another doctor who understands your condition, get a referral to a Gyno/demeratologist who also understand condition, or at the very least wants to help!
    • Posted

      OK, I see now that you're right on top of this and have good reason to fear you may be allergic. This probably means tacrolimus. You might have to feed the info about it to your doctor. On the doctor page for LS on this site it says:

      "Between 4% and 10% of women with anogenital LS will have steroid-resistant disease. The recommended second-line treatment is topical tacrolimus or pimecrolimus under the supervision of a specialist clinic."

  • Posted

    Morrell is right you need to go back to your GP and ask for another treatment and either to be referred to a dermatologist or gynae, you really should be treating this and quickly.  Do not let it get much worse.  The dermovate ointment is definately better than the cream as many will tell you on this site.  Lots of white means the Ls is active and needs to be stopped.  The coconut oil etc. will help but not cure.  Good luck and I hope you are having a good Christmas despite this problem.
  • Posted

    Sorry to hear you are having such trouble with your ointment. Have you been diagnosed with LS? What was the steroid ointment called? Great the itching stopped but if you have LS it is for life and you will a management plan to make sure you know how to cope through flare ups and to keep it under control. A pinch of bi carb, or salt and water in spray bottle after you go to loo or in in a bath will help. If it's red and inflamed maybe a barrier cream like Sudacrem.  Good luck!
  • Posted

    Can't see who commented right now but rhubarb is high is oxalic acid I think. Found several sties that say so but not sure.
  • Posted

    Sorry your going through a difficult time. Initially, when I had my big flare up. I was prescribed a steroid cream. I immediately had an allergic reaction to the cream. It caused buring and irritation. I went back to the doctor who was not very supportive, understanding or insightful. I immediately went to another doctor urogyn and dermatologist  they prescribed halobetasol ointment which does not have the same extra additives that clobetasol has. I believe but not sure halobetasol has the same strong steroid ingredient but the base ingredient is beeswax which does not cause an allergic reaction. What  I noticed was that the cream caused such irritation that it took the halobetasol a while to work, in fact I would say I wasn't pain free for about a month. I'm now able to tolerate both the clobetasol and halobetasol but the creams are really harsh on LS skin. Gluten free, low sugar, low diary and  diet  helps. Definitely little to no alcohol has helped with healing. I also take a loads of supplements. The coconut oil, alibis oil, evening primrose are great but my experience the strong ointment steriods seem to be the only way for me. Find ways to minimize your stress since it can lead to flare ups and eating the wrong things to deal with the stress.  
    • Posted

      Thank you so much for writing me I actually think I'm ok with the ointment I went off it for a week I have started again for three days now and no side effects I think it was due to stress I'm still having head aches and vision problems that didn't go away I'm going to go to an eye doctor just to double check but I think it is all to much stress I'm trying new vitamins as well love to hear everyone's info and what is working for them though so I have new things to try thanks again
    • Posted

      I find just the tiniest emotional upset makes me flare up and that's exactly the time I'll shove a couple of cookies in my face. But after a year and a half using clobetasol (ointment for the past six months), the flare-ups are shallow and short-lived. Very interesting that Halobetasol ointment is beeswax-based.

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