Head pressure, Brain fog, odd head sensation, feeling detached
Posted , 724 users are following.
Hi all,
I decided to become a member and make a post here after reading the forums for quite a while, great site by the way.
I am currently suffering with various symptoms and am in a bad way and just don't know where to turn any more so thought I would post here and see if anyone has any similar experiences or advice.
So first of I am male and 26 years old. I have been suffering with the symptoms in the title pretty consistently for about 2 and a half years now. I used to have some relief from the symptoms for a day or 2 here and there or maybe a bit of relief for a few hours in the day but recently the symptoms are pretty much constant and I cannot shake them.
I have an overall mild pressure feeling in the head, its not painful but is just very aggravating and feels really strange. I also have extreme brain fog with this and like a fuzzy head, there is a constant cloud over my brain and I never have any mental clarity or a clear head. My cognitive function is extremely poor now, my short term memory is non existent, its scarily bad. I often feel, detached from reality when the symptoms are bad and suffer from de-realisation, although I think this may be down to some anxiety and depression I experience when the symptoms run me down. I also get random sharp cramping pains in the head, they are quite painful but do not bother me so much as they only usually last a second or 2, it varies on how many I get of these each day but its usually less than 5. It often feels as though my brain is malfunctioning somehow and my cognitive function and senses are all out of whack, its hard to explain. There can sometimes be a build up of these symptoms throughout the day and by the night I can feel like I somehow how the flu without a fever? Like I have the head pressure, completely foggy headed, I feel super unwell, weak, sometimes even start feeling cold. Also have night sweats usually for about 4 or 5 days each month, there doesnt seem to be any sort of pattern to them that I can notice, so not sure if they are relevant. Another thing I have is ringing in ears which is mild but seems to have gotten worse recently if that sounds relevant at all. The main thing that gets me is the odd head pressure/sensation and the utterly life hindering brain fog, my brain feels like it is coated in a dark blanket constantly.
I do suffer from anxiety, I know many of these symptoms can be caused or made worse by these symptoms. I dont doubt that anxiety is a contributing factor and the way I think about they symptoms probably makes them worse but I have come a long long way with my anxiety, I have good control over it, I haven't had a panic attack in a couple of years, I manage to control most of my concious anxiety and stay in a positive mindset. No doubt I still have some subconscious anxiety underlying and I am working on that but I am not convinced this is the route cause of my symptoms. I am in therapy for my anxiety. I do not feel I will ever fully recover while I have these symptoms hanging over me though.
I have been to the doctor about these symptoms, although I do think I struggle to explain them or put them across very well in the doctors office. I have have blood tests which are all normal. I saw a neurologist couple of years back when this started, had a CT scan which was normal, they put the stabbing pains down to icepick headaches and thought the other symptoms were probably made worse by my anx/depression. Since then I went away and have been on anti depressants etc with no improvement of symptoms. I have also had a few ECGs and a 24hr ECG as I have slow heart rate and low bp so thought maybe the symptoms could be down to low bp and lack of blood to the brain, doctors do not think think this is the case and all my results came back normal. I have recently been back to the neurologist who is referring me for an MRI although he said he is sure there is nothing sinister and thinks the symptoms are probably tension type headaches and made worse by and previous drug use, he only put it down to the drug use when i told him about it though so it seemed like a convenient diagnosis. I forgot to mention I used to take drugs on the weekends socially, cocaine, ketamine and ecstasy on different occasions for a couple of years, I have had periods where I have felt ok since taking these drugs and do not really think they are the cause, I was not an addict this was just one or 2 nights a month at the weekends. So I have an MRI coming up but the neuro thinks it will be clear and obviously I hope it is and I am looking for other answers.
What could be causing these symptoms? Other than anxiety which i no can be a factor, but I have periods where my anxiety is pretty much non existent but these symptoms still build up out of nowhere and persist. I was thinking maybe some sort of allergy could be a possibility, I have tried cutting out gluten and lactose, this didn't seem to make much difference although I didn't stick to this for very long. I actually did a juice fast for 2 weeks with eating nothing other than fruit and veg juice put through a juicer to see if that would help but it didn't really give me any relief. Are there any other stomach issues that could cause this? I never have diarrhoea or constipation, my stools always float recently though, to the point of not being able to flush them, also whenever I have seen chance medicine doctors they check me out and say they think i have issues with digestion, i don't feel i have these issues but do wonder if there might be something in it.
Could there be something going on with the blood vessels in my head? Could it be a spine/posture issue? Some sort of epilepsy or electrical activity in my brain? I just have no idea now and am desperate for some relief. If anyone has any ideas or advice I would really appreciate it.
Oh just to add I am reasonably fit, I try go to the gym a few times a week and I do some weight lifting. I am a normal weight. I have been losing some weight recently which is a concern but I am still in a normal weight range for height and age.
Thanks for reading
56 likes, 1496 replies
joshua60012 Recoverandheal
Edited
ive been dealing with this for a little over 2 years. does anyone else tend to notice theirs being seasonal, as in during the summer you feel good, but when fall hits and through the winter, is when it really sets in?
brenda06226 joshua60012
Posted
mine is not seasonal, it is daily
thierry40000 Recoverandheal
Posted
I have had those symptoms for 18 years 24/7 and nothing has helped yet! Life acceptance is the key for me
brenda06226 Recoverandheal
Posted
its sad that we all seem to be our own doctors! does anyone also have like bruises under eyes? mine are like a purple, black, sometimes looks red under my eyes. i am just trying to cope and keep myself comfortable. hugs to everyone dealing with this.
Tonia93 brenda06226
Posted
I do as well. its so very hard to deal with to say the least !
brenda06226 Tonia93
Posted
i agree, it gets very frustrating !!! i spent so much money going to docs n doing test that i just stopped going. I'm not paying for getting no answers anymore!
Tonia93 brenda06226
Posted
my friend has lymes disease and she swears this is what i have , she had all the symptoms i do . Head pressure , eye pressure , eye pain , blurred vision , spaciness, anxiety...... might get tested for it .
brandon68612 Tonia93
Posted
hey I thought it may be lyme at one point also but I was tested for an entire tick panel and they never called me which means it was all negative but now I may double check. it's so frustrating
kate92707 brandon68612
Posted
I have been tested for lyme as well, twice. Results are negative. My symptoms could be associated with toxic mold exposure couple years ago. Working on detoxing and restoring good bacteria in my body. I have done couple independent lab tests: saliva and hair tests which have been pointing to malabsorption of minerals and other nutrients. However, standard blood test done by regular doctor show normal ranges. Evidently by body has nutrients but these are not being absorbed as they should. Again could be related to mold toxicity that can through ones body into havoc and mimic all kinds of other serious illnesses.
Tonia93 brandon68612
Posted
my friend had the regular test done and it kept showing negative. she went to a specialist and they done sometging diffrent and then that showed positive. I will have to see what it was . Im really leaning towards binocukar vision dsyfuntion. I took the quiz and that also has all our symptoms . Its a imblknce with the eyes .
shaun1000 Tonia93
Posted
Lymes disease can cause raised intracranial pressure, to much fluid on the brain. That condition is what many have on here and they dont know it. I have it and have all the same symptoms that people talk about on here. Its hard to diagnose and often missed by doctors which is why there are lots of people on here not knowing whats wrong. Look up the symptoms of Idiopathic Intracranial Hypertension and you will see. Also, dont listen to the info that will say its a condition that mainly overweight women get as recent research has disproved that.
Tonia93 shaun1000
Posted
what did you do to fix it or help with it ?
brenda06226 Tonia93
Posted
yeah, they tested me for it and it came back negative...
shaun1000 Tonia93
Posted
Im on a drug called Diamox that lowers the pressure. Im also looking into brain surgery, either stent or shunt. Either one should help reduce or end my symptoms
thierry40000 brenda06226
Posted
I understand after 18 years of waking up and going to sleep with foggy head and neck muscle tension you just get use to it and leave a different life until one day I hope some doctors post a real cure I will still read all messages with hope.
Unsure312 shaun1000
Posted
how high was your presssure?
Tonia93 shaun1000
Posted
this is from the lymes disease right? My son just got diagnosed with both lymes disease as well as alpha gal! He can no longer eat red meat and its killing him. Hes 26 drives, for ups and these diseases have really taken a toll on him
shaun1000 Unsure312
Posted
in terms of intracranial, it was 24 on the lumbar puncture test. 25+ is the usual measure to be deemed extremely high but with my symptoms and a neurologist that new what he was talking about i got diagnosed. I see so many on here with intracranial hypertension and they dont know it. They also rarely take my advice.
shaun1000 thierry40000
Posted
you have intracranial hypertension
kate92707 shaun1000
Posted
what causes intracranial hypertension?
brenda06226 shaun1000
Posted
I believe that is what's going on with me but at this point I can't afford more testing. my neurologist just looks at me like i'm crazy or making it up. I def. need a new one.
Tonia93 brenda06226
Posted
Brenda , what have been your symptoms and what all.have you had done ?
shaun1000 kate92707
Posted
either your body over produces CSF (cerebal spinal fluid) or more usually a vein within your brain narrows which impeeds the drainage of CSF. It can be through head trauma, whip lash or it can just happen. Its hard to diagnose and I dismissed it as a cause before ruling everything else out.
Tonia93 shaun1000
Posted
who ended up scheduling your spinal tap? neuro? noone has yet to even mention to me about it. My ct scan showed some abnormal kinds of veins but according to neurologist no big deal. I have. appt with a new neurologist that has taken almost a year to get next month at University of Va . Supposly this where the best neurologist are. who knows! Im at my max for out of pocket so im gonna ride everything and every test i can at this point. I really have tried to just deal with this and accept it but thats just not a option for me right now. I am 45 , active and I WANT MY LIFE BACK AND I WILL FIND OUT WHAtS WRONG with us .
brenda06226 Tonia93
Posted
it all started with head pressure, sometimes blurry vision, feel weak, sometimes nausea. i have had mri of head and neck and lots of blood testing for lyme disease etc, they found i was a bit b12 deficient and say degenerative disc disease in neck. i also hear clicking i guess in neck and sometimes like bubbles
shaun1000 brenda06226
Posted
Yes get a new one, I saw 3 before seeing a one that believed me. Im now diagnosed and doing tests to see the best way forward. Looks like surgery to insert a shunt into my cranium so the excess fluid gets taken away. Where are you from? Country