Head pressure, Brain fog, odd head sensation, feeling detached
Posted , 724 users are following.
Hi all,
I decided to become a member and make a post here after reading the forums for quite a while, great site by the way.
I am currently suffering with various symptoms and am in a bad way and just don't know where to turn any more so thought I would post here and see if anyone has any similar experiences or advice.
So first of I am male and 26 years old. I have been suffering with the symptoms in the title pretty consistently for about 2 and a half years now. I used to have some relief from the symptoms for a day or 2 here and there or maybe a bit of relief for a few hours in the day but recently the symptoms are pretty much constant and I cannot shake them.
I have an overall mild pressure feeling in the head, its not painful but is just very aggravating and feels really strange. I also have extreme brain fog with this and like a fuzzy head, there is a constant cloud over my brain and I never have any mental clarity or a clear head. My cognitive function is extremely poor now, my short term memory is non existent, its scarily bad. I often feel, detached from reality when the symptoms are bad and suffer from de-realisation, although I think this may be down to some anxiety and depression I experience when the symptoms run me down. I also get random sharp cramping pains in the head, they are quite painful but do not bother me so much as they only usually last a second or 2, it varies on how many I get of these each day but its usually less than 5. It often feels as though my brain is malfunctioning somehow and my cognitive function and senses are all out of whack, its hard to explain. There can sometimes be a build up of these symptoms throughout the day and by the night I can feel like I somehow how the flu without a fever? Like I have the head pressure, completely foggy headed, I feel super unwell, weak, sometimes even start feeling cold. Also have night sweats usually for about 4 or 5 days each month, there doesnt seem to be any sort of pattern to them that I can notice, so not sure if they are relevant. Another thing I have is ringing in ears which is mild but seems to have gotten worse recently if that sounds relevant at all. The main thing that gets me is the odd head pressure/sensation and the utterly life hindering brain fog, my brain feels like it is coated in a dark blanket constantly.
I do suffer from anxiety, I know many of these symptoms can be caused or made worse by these symptoms. I dont doubt that anxiety is a contributing factor and the way I think about they symptoms probably makes them worse but I have come a long long way with my anxiety, I have good control over it, I haven't had a panic attack in a couple of years, I manage to control most of my concious anxiety and stay in a positive mindset. No doubt I still have some subconscious anxiety underlying and I am working on that but I am not convinced this is the route cause of my symptoms. I am in therapy for my anxiety. I do not feel I will ever fully recover while I have these symptoms hanging over me though.
I have been to the doctor about these symptoms, although I do think I struggle to explain them or put them across very well in the doctors office. I have have blood tests which are all normal. I saw a neurologist couple of years back when this started, had a CT scan which was normal, they put the stabbing pains down to icepick headaches and thought the other symptoms were probably made worse by my anx/depression. Since then I went away and have been on anti depressants etc with no improvement of symptoms. I have also had a few ECGs and a 24hr ECG as I have slow heart rate and low bp so thought maybe the symptoms could be down to low bp and lack of blood to the brain, doctors do not think think this is the case and all my results came back normal. I have recently been back to the neurologist who is referring me for an MRI although he said he is sure there is nothing sinister and thinks the symptoms are probably tension type headaches and made worse by and previous drug use, he only put it down to the drug use when i told him about it though so it seemed like a convenient diagnosis. I forgot to mention I used to take drugs on the weekends socially, cocaine, ketamine and ecstasy on different occasions for a couple of years, I have had periods where I have felt ok since taking these drugs and do not really think they are the cause, I was not an addict this was just one or 2 nights a month at the weekends. So I have an MRI coming up but the neuro thinks it will be clear and obviously I hope it is and I am looking for other answers.
What could be causing these symptoms? Other than anxiety which i no can be a factor, but I have periods where my anxiety is pretty much non existent but these symptoms still build up out of nowhere and persist. I was thinking maybe some sort of allergy could be a possibility, I have tried cutting out gluten and lactose, this didn't seem to make much difference although I didn't stick to this for very long. I actually did a juice fast for 2 weeks with eating nothing other than fruit and veg juice put through a juicer to see if that would help but it didn't really give me any relief. Are there any other stomach issues that could cause this? I never have diarrhoea or constipation, my stools always float recently though, to the point of not being able to flush them, also whenever I have seen chance medicine doctors they check me out and say they think i have issues with digestion, i don't feel i have these issues but do wonder if there might be something in it.
Could there be something going on with the blood vessels in my head? Could it be a spine/posture issue? Some sort of epilepsy or electrical activity in my brain? I just have no idea now and am desperate for some relief. If anyone has any ideas or advice I would really appreciate it.
Oh just to add I am reasonably fit, I try go to the gym a few times a week and I do some weight lifting. I am a normal weight. I have been losing some weight recently which is a concern but I am still in a normal weight range for height and age.
Thanks for reading
56 likes, 1496 replies
vbm003 Recoverandheal
Posted
I read your post and it describes exactly what I've been dealing with for almost 2 years. I noticed you posted this 4 years ago. Did you ever figure out what was causing this and/or get any relief? I've been to numerous doctors and all of them say it's this or that and put me on different meds but nothing helps. All my blood tests and scans have come back normal. I felt like no one understood what I was going through, until I read your post, and other people's post regarding this. Hope to hear from you soon. Thanks.
brandon68612 vbm003
Posted
hello, the person that originally posted this did respond recently that he is feeling much better now. I forget what worked for him but I've tried most things I've read on here and nothing's worked for me yet. im going on 2 years with this in February. and just like you I've had everything come back normal. there's a guy on here that said his is intercranial pressure and the only real way to diagnose is a spinal tap! but he's pretty sure it's what most of us have because it's very hard to diagnose. do u have periods where it gets better? I do. it is very up and down for me but I haven't felt 100 percent since it started.
nadia0311 brandon68612
Posted
same for me it is going to
be 3 years in february, I have search about IIH( intracranial idiopatic hipertension) and join a group about it, but they talk about a lot of pain in their head all the time, for me thanks GOD there is not pain only the pressure or fullness feeling inside my head but very rarely I get pain... so yesterday I visit a second neurologist since the first one didn't convince me by saying I HAVE migraines... I ASK THIS new doctor if I COULD HAVE IIh, but he say I DONT, he say nothing wrong imside my brain .. my problem is outside my brain...where nerves are, so he end up
saying my problem is OCCIPITAL NEURALGIA,migraine with aura (this I still dont believe since I dont get pain) and also he say I have sleep apnea ... so today I started a prescription and hopefully iy will work finally.
b659540 brandon68612
Posted
I had all the symptoms too. All test came back normal for the most part except my vitamin b6 I had toxic levels in my blood. Normal b6 value is 2-21 mine was 300 It's taken almost 2 years for me to get better from the damage the b6 did to me. I feel a lot better, but i'm still not 100% but I feel pretty good compared to the hell I was going through. Just ask your doctor for a vitamin b6 blood test. If your doctor wont do it, go online to walkinlabs and order it yourself like I did. I had to find out myself what was going on with my health because none of the doctors believed me. Also check out the facebook group: healing b6 toxicity with western research. I hope I can help some one from the suffering.
brandon68612 nadia0311
Posted
hey, well I've had a dr say the same thing about migraines and when I was a child I got very serious migraines and this does feel ALOT like the aura symptoms except they don't go away! thr dr told me there is a such thing as migraines with np pain and I looked this up, it's true and in rare cases it could last for years. so I guess it could be that but I still don't really know. keep in touch on here, it helps to have people to talk to
vbm003 brandon68612
Posted
Thanks Brandon! Yeah exactly, there's days where it's tolerable, but still there, and days where I just wanna cry cause it's so bad. I'm considering a spinal tap. Have you had one?
vbm003 brandon68612
Posted
Oh I meant to ask, have you noticed a difference in your vision? I used to have perfect vision but since this all started, it seems foggy.
brandon68612 vbm003
Posted
no I have not had a spinal tap I'm also considering it but my health insurance won't pay for a neurologist without a reference and my primary care doctor will not give me a reference so I'm stuck between a rock and a hard place because I just had a baby and can't really afford to go pay out of pocket for a spinal tap and a neurologist so I don't really know what to do anymore
vbm003 brandon68612
Posted
Yeah I totally understand that, congrats on the baby! I've had so many scans done and they all appear normal, idk what to do anymore either. I feel like most doctors now just care about money and don't even bother to try to solve our medical issues, it's ridiculous.
brandon68612 vbm003
Posted
I agree it is ridiculous. I'll figure it out eventually im sure
The3Goodies Recoverandheal
Posted
I suffered from severe anxiety disorder between March 2002 to late May 2002. Worse was to come on June 1st 2002, at about 11.20pm - distorted thinking took over me which lasted for about two weeks. Then, on June 15 2002, at about midday, a psychopathic obsession with urges came over me - thoughts to become an evil super foe of the universe and to ally myself with the devil! I was absolutely terrified! My local psychiatrist, Doctor Drake, kept on saying to me: "I don't understand you, I have got other patients to see. You're not the only one to have evil thoughts towards God." SO I WAS LEFT TO SUFFER ON MY OWN WITHOUT ANY MEDICAL HELP! During July 2002, a toxic form of irritable tiredness took over me, which never left me and I am still suffering at this present day! No medication helps me at all! My best friend Pauline, has been suffering from the very same affliction for twelve years now! What on earth has happened to us?
TropicC Recoverandheal
Posted
Hi, I haven't seen anyone mention PoTs 'postural orthostatic tachacardia' syndrome which matches some of the symptoms people are describing here and is often misdiagnosed as a mental health issue. I hope that by mentioning it I can help someone be diagnosed quicker.
brandon68612 TropicC
Posted
what exactly is POT's?
Zays.Mommy7 Recoverandheal
Posted
y'all should look up depersonalization derealization disorder
Bamson2324 Recoverandheal
Posted
Hi,
I used to have problems with m head for years, I tried every pain killer, Chiropractic , My GP, nothing seemed to work and when it did, it was always a matter of time before the feeling came back. My doctor could not find anything wrong during every check up and after every blood test.
Its been almost 3 months now since I found the solution and the reason why I joined this site is to spread the message to everyone out there suffering.
First of all get your vitamin levels checked, before then I'd recommend some vitamin B12 and B1 they are the cheapest thing in the market and you'd be surprise how much these would help, for me its been a life saver and I couldn't be happier.
I hope this helps you.