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HEADACHE; ALL DAY, EVERYDAY, Help Appreciated

Posted , 7 users are following.

matthew_99397
matthew_99397

Hello all, i have come to this site in search of an answer to a seemingly impossible question. After seeing multiple doctors, a ENT, a nuerologist and now doing the rounds of physio and chiropracture i still have no clue on what i seem to be suffering with. Three months ago, after a day or two of feeling like i have had a cold, i woke up with intense pressure in the head. At first the thought of meningitis or a tumor/aneurysm came to mind due to the 24/7 intense pain. But after a MRI, CT and CTA scan it was ruled out. The nuerologist just did a reflex test and looked at the MRI which was already confirmed normal and told me to just see how it goes. The goes with the doctors, because all my tests have come back normal they classify me as a worry wart or i have anxiety but i am just a realist. I have constant pain in my head and face, tightness in the neck, ears need to pop all the time and body aches especially with the legs and lower back pain although i am not sure if my lower pack pain is a seperate issue or not as a i am a nurse and my job applies alot of pressure to that region. I am not letting the doctors fob me off to walk away with a "mystery illness" as i have told them im just gonna keep coming back till they find out whats wrong. Ive also had a chest x ray, blood work done, a urea breathing test, an ultrasound of my heart and lungs, a test for STDs and all have come back normal. I just have no idea where to go from here? if anybody has a clue on where to go, i would appreciate more than ever some input. Thank you smile

1 like, 53 replies

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  • matthew_99397
    matthew_99397

    Posted

    Hello everyone i hope that you are all going good. My headaches still continue to be constant, the feeling of fullness or pressure although the pizotfen and magnesium seem to be bringing things in terms of pain to a manageable level. Just wondering if anyone has made progress or found relief in this frustratong problem ?

  • matthew_99397
    matthew_99397

    Posted

    Hello everyone how are you all i hope there has been relief and better days amongst you all. Im still experiencing this chronic pressure through my head. Since then i have had a xray of my upper neck, some more blood work and had a abdomen xray today, nothing has been found yet. I want a full spinal mri including my sacrum to try and rule out Talvor cysts which cause chronic headache,bladder pain and lumber pain all of which i am experiencing.
    • Guest
      Guest matthew_99397

      Posted

      Good luck, I have been experiencing some lows and school has been on my back. I have been through a threatening psychologist but I am finally sleeping a little better. All the best smile
  • matthew_99397
    matthew_99397

    Posted

    hello everyone hope all is well, just thought id share an update on my findings. Still nothing conclusive has been found, i have had a whole spinal mri, two more wisdom teeth pulled and my eyes checked over once more. One thing that caught my attention was the pressure in my eyes are higher than normal, 28, coupled with the feeling of ache around my eyes i think this is definetly one peice of the puzzle. I also have ringing in my ears and ofcourse the head pressure, the mind is going in the direction of intercranial hypertension. I want to explore that avenue more so as i believe that my symptoms really do attune to that diagnosis so im still looking for answers? How is everyone going
    • Guest
      Guest matthew_99397

      Posted

      Hey well my GP suspects possible fibromyalgia as the pain has spread and I have an appointment Thursday, You know anything about fibromyalgia?
  • Guest
    Guest matthew_99397

    Posted

    Today is the day. Exactly a year today. I feel hopeless some days. Where have we got? One diagnosis; some medication. All for this: this body: this useless cage I'm trapped in. Watching everyone else have a good life and watching myself break into pieces. Wrecked, this year has wrecked me. It's wrecked friendships; people who lied to me; people who were selfish. This year has helped me make friends and stand up for myself more. I don't want to lift that chair, I have pain. And guess what, I'll ask for help. Sometimes, I wonder why me? I think, I don't know, I may never know. But sometimes you have to cling to the light; even when your body seems to be a train wreck. You may notice I use only negative words. This is because the only good thing that happened this year, is that I got a hamster. Shout out to Bilbo! Without him I'm not even sure if I would be sat here typing. My pain is worsening, and if it is fibromyalgia, it will continue to worsen. Things will get worse, so right now  is important. Seize the day. Sometimes you feel no one loves you and keep the insides of your mind close to your chest. When we loose those around us; we have only our thoughts. But sometimes we have to let go; we have to reach out. Who know's? One day I could better- one day I could be normal again. But who wants to be normal? I hope this post reaches you and your heart. I hope things get better. But it's OK if I don't.

    ?Because I am a better person now.

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