Health anxiety - fear of MND and MS

Posted , 13 users are following.

Hi all,

Just wondering if anyone has had similar symptoms to mine. Last year I had an episode of vertigo and thankfully haven't had any since. I stupidly googled causes of vertigo which led to a self diagnosis of MS. Since then, I've developed health anxiety of MS and Motor Neurone Disease so bad that even seeing the word "multiple" makes me feel anxious. I have had everything from body tingles, body twitches, pins and needles, the feeling of a "heartbeat" in my stomach, feelings of being half present, fatigue, loss of appetite. My current battle is sore arms and neck and the feeling of weakness. I've had blood tests and everything returned normal and a recent lumbar spine MRI was also normal. I have been trying meditation, exercise and positive affirmations. I'm just so fearlful of getting a non-curable disease and dying. Feeling so sad and helpless!!!!!

0 likes, 25 replies

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  • Posted

    I have always suffered with health anxiety but recently it has become crippling. I can't function and get completely nauseous. Have had to have my husband come home from work to be able to take care of our daughter because I couldn't function from anxiety. About a week ago I woke up with twitching in my calf, it has now spread to my other leg and I am having the pins and needles sensation and legs feel week. Had an ultrasound to rule out blood clot, but am still dealing with it. My family tells me I am fine but of course google tells me the first sign of ALS is muscle twitching. I have literally been losing my mind. It consumes my thoughts every second of the day. Have a cat scan tomorrow, and an ortho appt to have my lower back checked. I feel so alone.

    • Posted

      Hi Tiffany, how did your appointments go?

      best wishes

      Jack

  • Posted

    I have been there and it is a nightmare. Trouble is the more you read about it all your symptoms match. I have health anxiety so that doesn't help either. Try not to google or look for reassurance. Good luck

  • Posted

    hello!

    I'm new here. I get this fear and I currently have it. I'm paranoid that I will get mnd and that I don't have long left even though I haven't been told so. My mind is convinced. My mother and grandfather (as in my mother's father) both had mnd. I went on a journey to understand mnd better as I was 10 years old when my mother passed. I'm aware that it is not 100% guaranteed that I will get mnd. I thought knowing more about mnd would help me and it did for a time but my anxiety has gotten worse. I'm convinced I'm either going to get mnd soon or I'm going to die soon. I only get small periods of peace but I have this overwhelming sense of dread. I hate it. I turned 29 this year and my mother was in her mid 40s when she passed. This fear is holding me back. I do take medication; I take one Venlafaxine pill a day (225mg) and I also have Propranolol (80mg) which I take. I have a doctor's appointment next Friday but I fear they will just dismiss me saying there's not much they can do. I feel so alone and I want peace.

    Stephanie

  • Posted

    hi

    how did everyone get along with all their tests? im in the same situation fearing ms and mnd crippled with anxiety. it is so hard to live with x

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