heart probs

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HI everyone i'm 44 years old and had my first mi at age 37 i'm I have now had my 7th .I had a bypass in 2008 but that blocked, so I now have no blood getting to the right side of my heart and the two left conary arteries are 80% occluded. I struggle most days and am still going through depression as I feel like a failure to my children who are all still young at 17 14 and 5 and society as I'm on benefits and being called a social scrounger makes me feel exactly that .I would love to be allowed back to work.please help

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    Hi Richard, as i am being laid off due to il health i do understand your feelings, we have no children but my feelings about letting my wife down etc match yours, however... I have been seeing outlook sw and one of the things that came up there was a "programme called mindfullness, read about it... also M for Dummies is useful... Accept who you are and what you achieve each day, dont look at what you used to or could have achieve but look at what you achieve each day. I take Q10 each day, Tumeric and have taken an amino acid associated with declogging Taurine, along with the usual vit c etc, talk with your doctor about them no the ymay not cure you but they may help. Be positive, people often say to me - your looking well ... when actually my heart is very sore and i am thinking where did i put the gtn... people dont know, so believe in yourself look at your achievements and be proud of who you are. I may not be able to actually help you but i hope the above may have given you a thought or two to try. Accept this bit and move with this new time of your life, yes its raining but rainbows can be found. and sometimes when the sun comes out... wow!!!!
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    • Posted

      hi andrew 

      I do take your point on some things but with heart trouble its not a case of supplyments you have to be very carefull on taking home remides as it can do more damage than good i no im on warfin there are so many things you can't take but don't get me wrong some times i feel like ditching the lot and trying the these remides. I wish they could roll one tablet into one like most of some remidies and work better than the dr's perscribe they worked in the odlen days for my grand- partents and lived longer to the rif raf we take now.

      i was only on about this the other day.

      When there is nothing wrong when people go to the dr's they can perscibe smarty's they would say yes they are working fine when some one gose with genuine problem the dr's are stumpped .excuse my spelling we have better vets than dr's they wouldn't let animal's suffer like human's as to dr's they are not dr's these days they don't come out to see you like i can rememba you always rememba the old saying.

       We have two of everthing but only one heart if that pack's up we numbered there is no light at the end of the tunnel for heart suffer's im not getting at you but not every one is the same when you are poorly day in and day out you feel like giving in some days its gets you down especially when you are still young i do see were your coming from but not every one can take it.

       There isen't enough research done for heart like cancer but there is plenty of money put into it.

      christine. 

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    • Posted

      Hi Christine, indeed so but i did say talk to your doctor about... and i only talk about the suppliments that havea very good amount of research done for them. For example the recent notes about Tumeric and they are not home remedies as i said i find they help. I come from a background of Biochemistry and science, i do my research and rarely make any comments on what i do. Those that i have emntioned are well recorded as making adifference but as i said discuss with the doctor. So yes i agree with you and would suggets something that has a home remedy appeal but do recomend discussion on research results. I agree there is not enough heart medical research esp on Prinzmetal I have heard doctors in A&E here arguing about it in front of me while treating me... very frightening at the time... i think something about information sharing for a start would help the professionals understand the illness i dont undersant it and depend on them for my life (indeed one heart...) but thank you for your thoughts again debate can only help others at least even if we dont agree they can go and do the research or ask others and get more opinion, i didnt check up on the cardioligist statements until reading on here and saw what others had done, i went with he is right...now my doctor being willing also to listen and review i had a second opinion and we have made progress. Sadly however being retired from work due to ill healt hat 52 does not appeal to me but... Question everything and get people to think.. Chrisitne, i hope we will continue ot debate and i hope also you as i do can look forward o the rainbow days to help the rainy days go by     
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  • Posted

    hi richard

    have you not been offered another bypass or a stent put in i have had 2 failed bypasses but im still on lots of meds i would get a second opinion im non benifits through this so i no what your going through only thing im in the uk we have to be assed to get long term benifit i can still get about but i always carry my spray with me as ive angina but there should be some thing that can be done for you even if the first faied they tryed taking a vein out of my leg but it just disintergrated then the second did another were they take onother from your arm and put it across that faied on on me again but i had 3 heart attachks in my eary 30's you are not a failure and get this out of your head i just take it easy some days i do feel really down but you have to think well im still here so you go ask to see another surgion it as to be one that takes on complicated heart trouble on like i did and hope you get a better life than ived gone through.

    take care

    christine

     

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    • Posted

      Hi christine

      yes I've had 8 stents and still on loads of meds.still under the best heart hospital in the UK. But i just want to know when they plan to do something.i know I'm rare as my body rejects my own parts as it did with the artery from my leg.they keep saying my age is a factor they want me to be 10 years older.but with this dla change coming up to pip if i loose that i loose my only way of getting around.as i have osteoarthritis down the spine and disc degeneration. The only reason i have not ended it is my children .I'm just fed up of meds and scans and needles and ecgs and generally being poked and prodded.as you probably understand yourself.i get seen every 6 weeks and even that puts costs up travelling back and forth

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  • Posted

    hi richard

    thank you for getting back i was 46 when i had my first failed bypass that was way back in 1988 my second was 2003 the only reaason i had that done i had a 5cm anurysum on the tip of my heart and it was on the verdge of busting so i was rushed to leeds teaching hospital under a surgon called mr Nair he only dose complicated case's i no you say they want you to wait 10 yrs but no way can you go through your life like that its a pity you couldn't get your dr to refer you he also scrapped so much of my heart i think if the bypass have worked i no i would have felt better so like you ive gone through angiograms, angyoplasts none worked you name it ive had it except for the stents

    i really feel sorry for you my next op i was offered was heart transplant i got all hyped up for this then told me i wasen't strong enough to pull through and was told i was 2 old at 56 so i understand your frustration im now getting worse i have more bad days than good.

    im just like you with other illness people ask you how you are they can see your not well they just not intresed but what hurts me and probbly you too when other people can claim everything going and there's nothing wrong with them plus they never out of the pub recon to ride round on mobility sctoor's and we have all on to walk .

    don't take any notice of what any one thinks you are a scrounger its not what you look like its what you feel i no just what you are going through.

    every operation i seem to have goses wrong ive had 2 hip operation since last october only through a small fall they have been unsussesful the surgon on the first one made a right mess both surgons are from different hospitals and the last one as caused more nerve damage than enough i can't walk my knee as totally locked up 3 in short in op leg and foot drop ive been bed bound since the first one and this is the last straw now i just feel like endind it all too im sick of taking pain killers and all heart tables on top.

    if it wasen't for my kids i would do it ive got osteoprosis now a rare disease in my spine that can paralys me so i think we are both in the same boat they didn't expect me pulling through the last op in may this yr through my heart i wished i haden't if this is the quilty of life im having but im sueing them both for what they have done to me. 

    i no you say you are under the best hospital but are you under the best surgon you shouldn't have to suffer at your age like this you can't afford to go private then get your dr to refer you to some one else i would even shefield is a really good hospital they have the top surgon's there you could try it i would 10 yrs anything can happen from no to then not that i want it to you only can try i couldn't take another heart op i was told next heart attack will be my last thats enough to want you to top yerself so i no what you must must be going through i wouldn't let this ride you get a second opinion never mind them telling you to wait .which hospital are you under??? please try it they can only say the same but it might put your mind a bit at rest if you don't push any one they will just keep you going there under the same cardio you don't even have to let them no you are doing this and still keep your own cardio you need to seriously need to think about it at least. if you need some one to talk to i will listen any time i no what im going through now with this hip job.

    let me no keep posting.

    take care

    christine

    christine

     

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    • Posted

      Hi Both Outlook SW is a mental health group and their work here has been great. I self referred for support as i wasnt coping and was heading out the door... The work thay have done with me have been very helpful and supportive whilst not being interventionist so i highly recomend them. Mindfullness is  a way of life i guess not one i will follow as such but it has been a good crutch to help me over this bit.

      Christine dont worry about your spelling half the time i reread my sentences and make several corrections and you and Richard both need to know you are good brave people who are brave enough to communicate and help in public, that is to be admired. being brave enough to ask a question in public is tough answering as well ...

      all i can so both is keep going you are doing well and should think well of yourselves believe in yourself and... try... good luck with all, and yes i will aslo always respond with my thoughts and if i can help...Andrew 

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    • Posted

      Hi Christine 

      my heart goes out to you its horrible being in this heart club . I'm under Harefield hospital which is apparently the best in the world .I've seen about 8 different consultants but only 1 surgeon .It is a nightmare knowing the next could be my last .I fainted yesterday as my blood pressure plummeted but apparently it's this new tablet ivabradine .and my gp has said i will get used to them in time .It's a joke 

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    • Posted

      Hi Andrew

      i agree Christine and myself should not worry about spellings who cares anyway.i will definitely try this mindfulness as anything that helps the way I'm thinking is a good thing .Thank you so much for the information 

      Richard ♡strong

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    • Posted

      I agree ..., strewth and good but... My overnight drug causes headaches!! and the next day i feel washed and wrung out so which is better good heart or able ot deal with the day? hmmm but i go with treating the heart and hopoing i will get used to it eventually (weeks and weeks so far) I hope it helps it certainly helps to accepts where you are and who you now are but as with suppliments and drugs and replacement blood vessels, it is only one of the tools we have to dig the garden of life (yup i am in the garden today and also dealing with the bees) and actually i like that metaphor... hmmm... you can see where that thought is going... i have all my tasks lined up, a small bit of this, switch tasks a bit of that switch task ... never do one thing for long means each bit of me gets worn out equally , er i mean i get to rest bits that need resting inbetween doing what i feel i want to achieve. i set a target write it down and after put tomorows date what doesnt get done today goes on tomorrows list and i try and learn therefroe what i can do. If i can keep my lists at what i can do then each day i get a pat on the back from myself for a clear list if i dont i just go ho hum more to learn and try it tomorrow, mostly works well... soemdays though i move it all to toe hnext day and say today is a me day bed book or tv... and am pleased with myself for making that distinction and learnign that my rest day is as good for me asa work day and being equally proud of what i achieve in a rest day good book reada bit more good film watched or an hours good sleep..., i do i have to admit often go hey i've woken up thats a good start so what can i see and do today...     
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    • Posted

      Hi Andrew

      strange my sleep is horrendous to and when I tell my heart specialist this he replies a lot of heart patients say this but we haven't made a connection with the heart illness surely if thousands of patients say the the same there's your connection. I don't do much at all as my head goes and I faint or pass out .I'm sick of doctors playing god I'm evening thinking of stopping all med and putting my faith in god as I believe we are born with a date to die.and if I stop med I might actually feel better than I do now.as I believe you can't take this amount of tablets without them doing something bad to the rest of your body.i know they help the heart but what damage do they do to your other organs.but if you ask as I did all they say is the good of the tablet out weighs the bad .hhhhm

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    • Posted

      Hi Richard talk with your doctor bewfore doing anyhting like that, I know the additions i take may not help but again talk with your doc, discus with him and also read about them. Dont give up when you have so much to give... if the pills help then work around them but again see the doc and ask what alternative drugs are there i could use? many docs are time pressured and only give first line medication its easier to remember but get him sat down and go through it all. as to hear tand sleep i would guess if your brain notices the heart playing up it says wake up you need to do something... you wake up without knowing why as such heart starts behaving cos its getting a positive message and so you drift bake to doze again till the next panic moment.... I have intermittant arrhythmia it seem likely brought on by being an elite athlete or training to that level for many years (look up prof pearce and arrythmia) so there is a demand aspect and frequently i can walk off the arrythmia sometimes pill and walk and sometimes A&E but having the Prinzmetal and Syndrome x vasospams too, my nights sometimes can be very restless - as can my sitting nicely and reading... i needto have the exercise and the rest (ME) so ho hum. I see it as a challeneg and i am darned if the book is going to get me i am going to fight every step of the way, just to be annoying if nothing else anyway my wife, beasties and home and garden and hobbies... mean too much to give up, each day is a challenge and i am darn well going to rise to it and stuff em all!!!! always ask questions... I coach at elite elevels and expect my athletes to challenge me and the coaching i deliver if they dont ask questions how cna they understand what i am trying to get them to do and how can i get better as a coach... so equally your proffessionals should be equally challengable.. go for it!! hey thinderstorm predicted for monday night tuesday morning must see and hear... also have a look on internet have a look at the volcano stuff in Iceland... wow, Yosemite park USA and Yellowstone, give up? nah too much to see, to find out about and try... comeon Richard keep going tiz a great journey we are on and so what if its full of thorns and bumpy  makes the views even better... 
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    • Posted

      I know life is a great journey.i also take mass dosages of vitc and others as apparently they unblock your arterires. It's just 56 tablets a day I feel like a smartie box lol
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    • Posted

      dont shake you will rattle... look em up on the internet, and do comparison searches, also check for overlaps or indeed contradicting drugs, on one of mine my docs gave me vaso dilators and vaso constrictors to take together - doing different things of course both medications correct for their purpose but obviously yer cant take them both which one is the priority and why... as it turned out good job i checked as vaso constrictor + Prinzmetal = not a happy heart at all... but i could have been an ex andrew if i hadnt done my own review. with 56 pills i guess a bit tedious but hey you might get it down to 40...? again go in then with your notes and say - i have been looking and found this what do you think....  

        

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    • Posted

      Thanks for that I will research my med now as I seem to be taking 3 for blood pressure and 2 to keep my heart rate below 60 bpm but my heart rate now never exceeds 60 bpm but at rest drops to 37 bpm this is why I faint when I stand up .so yes I will check them out 
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    • Posted

      hi richard

      If he told me that i would tell him to take it himself  any one should change your tablets its the Consultant that put you on them not your DR this tablet to me is no good for you dosen't he realise  what dose for one dosen't do for another your body is rejecting it that should tell him.

      I was put on all mine by my specialist the last time i had them reveiwd 2003 my own DR won't touch them he told me not to let any one else either you no your own body you have enough problems taking what you take without adding to one thats not suitable for you and tell you that.

      Also you say your blood pressure keeps dropping then this is definatly not right this mean's its not pumping the blood round fast enough dose he realise this or is he totally boody stupid it needs to be no less than 80 for your age

      Im older than you and mine is between 65 to 70 or you will keep passing out low blood pressure is just as bad as high if this was me i would go back tell him you want your tablets reviewing by some one that nows heart trouble obiously he dosen't.

       I was once put on simverstatin the first i took i felt so bad i threw it straight on the fire i new srtaight away it wasent right now im on averstatin been on them yrs no side effects but thats another thing my colostrol level is what it should be i no i shouldn't be on the 40 mg a night they can do more harm than good

      so i miss 2 or 3 days out i no i can i shouldn't be on a high dose like that i bet if i never took another more i might feel better they all interact with each other.I also have ischemic heart disease and its enlarged but when i had the last bypass done i got irregular heart beatings don't no if you get this and also lots of palpitaions even at rest if feels like its going to jump out of my chest that can last for hrs.

      sorry but you tell him you want some quality of life not been made worse than you are with a drug you shouldn't have to wait for the side effects to go 

       What happen's if they don't subside he talks wet. Ive been on all different ones by my DR till he tryed to get to the right ones he never did so on the second heart attache i did have the consultant wrote to him telling him he would be the one to review them as and when.

       I proved him they were the wrong one's but im very sensetive to any tablets what i take if they give me two days of any tablet  start showing any sign im of them i stop it myself ring the dr hetry's another as i don't belive in making myself dizziy or sick  whats the point of making yourself more ill tell him to try them see if he gets the same lol i do .this is what they should do before dishing them out willy and hilly.

      They would no there are so many people get more side effect's especialy when you are on a load like us.

       This as really supprised me with your blood pressure tablet hes gave you and it been so low i had to have a blood transfusion with my last op through it it went down to 53 but i was aneamic after the op whats he trying to do put you in an early grave.

      I bet if you asked your consultant he would go mad that your own dr is  messing with your tablets.

      I no every tablet as a short side effect but not till it run's into trouble with the rest but this is bloody stupid to tell you this excuse my french  lol.i want to no if it dosen't get sorted what dose he intened doing about it as he thought if ever your alone you can die if its up or too low.  and how long he thinks you have to take it making you worse.

      He wants to give them to the con's thats never away from DR'S the wouldn't be back for a second dose its them that wants to be guinie pigs for dr's to try them out on..

       It really annoys me when you get people that's never away from DR'S when there's nothing but invented illnesses i have one that's like this in my family she looks on computor for illnesses then toddles of to them comes home throws the tablets on fire .

      She as been to every hospital for over 60 miles away till now she's been barred from most of them they just send her home when there's us fighting for our live's getting no were they have no shame but get the appointments when you can't.....

      i will also tell you something else that happened 2yrs ago i kept going to the hospital looseing blood clots couldnt pass urine kept me in over night kept sending me home with anyibiotic's this was happening every month till last june so i let rip at the consultant to do some test's he argued it was the warfin.

      so i told him i was not leaving the hospital till he did run tests within 30 mins of doing them was told i had cancer of the bladder this was on the thursday he asked me to come on the monday to have it took out i got there they had lost my notes.

      i had to wait to the following monday to have the op i ened up in the HDU was i in a right state they just caught it in time it had grown another 2 cm in a week this is how stupid the hospital's are i suffered for near on 2yrs back wards and fowards and getting no were.

      till i lost my temper now i have to go every 3 months for 5yrs that really took the biscuit now everything as gone wrong i weighed 9 stone now i weigh 6 its still worrying me that it could travelled else were. 

      chistine.

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    • Posted

      Hi Andrew

      He will say keep of the internet lol i Always look myself if im given any tablet to see what its reaction's are to the other drugs i take but they don't like you going above them that's supposed to no best what a load of rubbish they are

      im so vigilant of what i take same as the chemist i check mine every month and many time's ive had other people's then they come up with any excuse to get out of it i have had some gose with them then they have tried to blame me for been too viglant how the hech can they say that,

      christine. 

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    • Posted

      hi again Andrew

      i was glad there is some else that as the same problem's as myself like richard it really dose take guts to pour out what you have never had any one to talk to and let everything out in public.

      ive had no help from any one and this is the first time iv'e ever let my feelings out it dose take a lot to come on a forum to let other people no they not alone i was a bit reluctant at first to answer richard but i new what he is going throught as i am.

       when he wanted help i thought this can go two ways he can answer me or not so he answered and im glad he did we both share our illness rather than suffer in silence.

      look how its learnt you we can help each other  even if we have to disagree on things sometimes but we havern't  but not to fall out i am so proud of you for recogonising this that you have involved yourself too in the converserstion

      .im impressed with some of your concern's too even if you not as bad as us its nice to no we not on our own three heads is better than two as they say.

      you are welcome to help us with something we are not sure of  any time im sure richard his too.

      Bless you for your kind thoughts towards us bouth you are welcome to join us when ever you like.

      christine.x

       

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    • Posted

      Thats where i am lucky i guess my doc is always interested, so long as i bring in the evidence so he can check, then instead of him researching he just checks, He is very constructive and firm but listens and will review. reading all on here i have been lucky with my doc, lucky to get infor from Prof Kaski on London but not lucky with my Cardiologist... ah well two out of three aint bad...  
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