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Heavy bleeding and absolute agony!

Posted , 6 users are following.

carly_03797
carly_03797

Hi ladies,

Since a very young age of 15 I'm now (20)I've had horrendous periods resulting in me having one continuously for around 2/3 years with blood clots and loads of pain. Doctors have always fobbed me off saying it will calm down or its ibs pain. I've tried all contraceptive options to try and help and the mirena coil is like my only option but that has failed and I'm still in the same position, having heavy constant periods and excruciating pain! It's affecting every aspect of my life, I was just wondering if anyone is around the same age and has been through anything similar. In the time that this has been going on I've only seen a gynaecologist once I'm due to see one again on the 22nd March and I only see a hysterectomy as my only option for this night mare to stop.

0 likes, 34 replies

34 Replies

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  • nicola34310
    nicola34310 carly_03797

    Posted

    Hi Carly

    I am so sorry you are going through this at such a young age x I also had bad periods and pain from a young age but I'm now old ha 44 x I can't understand how they are fobbing you off saying it's IBS??? This has nothing to do with your horrendous periods xx I myself had to nag to get help but you are so young and a hysterectomy is final if you want children, when you go in the 22nd make sure you tell them everything and tell them you can't go on like this any longer!! Have you had any scans etc? I had a hysterectomy last July that was me asking for it but I've had my children, please let me know what they say wen you go xxxx

    Take care hon 😘 Nicola

    • carly_03797
      carly_03797 nicola34310

      Posted

      Hi Nicola, Thankyou. I don't know either!! Me and my fiancé aren't bothered if we have children or not so I'll see what my options are when I see my gynaecologist. I'll let you know 😊Xx
    • carly_03797
      carly_03797 nicola34310

      Posted

      I have had numerous scans and a laparoscopy nothing had show on any of them xx
  • froggy28
    froggy28 carly_03797

    Posted

    Has endometriosis ever been mentioned. If lap not done by specialist it can be missed!! Have you tried cutting out all wheat and soya as I've heard this can help too. It seems so drastic having a hysterectomy at your age. I felt young having mine at 39!! Good luck
    • carly_03797
      carly_03797 froggy28

      Posted

      It was mentioned as from 15-19 I had over 20 ultrasounds and scans but nothing was found.
    • froggy28
      froggy28 carly_03797

      Posted

      My whole pelvis was fused and nothing showed on a scan. I was having an op for something else by a surgeon who happened to be endo specialist who diagnosed it!!
    • sarah92c
      sarah92c froggy28

      Posted

      Mine got diagnosed my contraception doctor

      O.0

      Xx

  • sarah92c
    sarah92c carly_03797

    Posted

    Im in the exact same boat flower im 24 it started when I was 22 and ive been on a period for just over 2 years ive tried the following

    Norethistorne

    Postan forte

    Transamatic acid

    Coil

    Depo

    Mini pill

    Combo pill

    4 ultrasounds

    4 internal scans

    5 gynaecology appointments

    8 a.e trips (serve blood loss)

    And I have my pre op assessment for a hysterectomy in a month I got to the point you have and I have been told my best option (and what I want) is the hysterectomy

    Xxxx

    • melissa21100
      melissa21100 sarah92c

      Posted

      Hi sarah had my opp now if there anything worried about for pre opp or going in message me as will try help
    • carly_03797
      carly_03797 sarah92c

      Posted

      Hi Sarah, I've basically tried and gone through everything you have. I think I'm just in a horrible situation due to my age most surgeons won't perform a hysterectomy on someone my age! 😏 I get married in August so I'm feeling very very anxious. Xxx
    • sarah92c
      sarah92c carly_03797

      Posted

      They weren't going to let me have a hysterectomy but I went in on last geneacology appointment and I was very stern and said enough is enough its ruining my life I dont go out im constantly having to come out of work to change clothes beacuse of how heavy it is I dont have the life of a 24 year old I spend over £50 a month on underwear cos all of it gets ruined and they said well why dont we try and I interrupted and said no whatever your going to surgest the annswer is no I want it out I want my life back I want my sex life back aand I want to live me life without being in constant fear of bleeding im a very bubbly person and this thing is ruining me get it out of me .

      And finaly he agreed that enough is enough and as I say I havee my pre op assessment in a month . If you want the hysterectomy and I know they tell you well whaat about having kids (I dont havee any) your very young you could change your mind

      My reply was simple if I change my mind on wanting kids I can adopt just because people want kids doesn't mean they personally have to give birth to them .

      If you want the hysterectomy you have tp be like this with them its the only way to get through to them turn on the water works and be as dramatic as possible its sounds weird but trust me its the only way I know exactly what your going through and the day I get my hysterectomy will be the start of me having my life back its horrrible I hate where I am at the moment and my family annd boyfriend have seen me become a angry crying mess because of it its vile .

      Xxxx

    • carly_03797
      carly_03797 sarah92c

      Posted

      Yea I cry on a daily basis it's horrible!! I feel for you xxx
    • sarah92c
      sarah92c melissa21100

      Posted

      Thank you very much flower smile

      Im just trying to work out what form of hrt to go on now

      As in patchs ,tablets,gel ect

      Xxx

    • sarah92c
      sarah92c carly_03797

      Posted

      I know alot of people are saying get a second opinion but you know how you feel about it you know how much it effects you

      They may offer you something called ablation have you heard of it before ?

      Xxxx

    • carly_03797
      carly_03797 sarah92c

      Posted

      I have a lady I used to work with had it last year, do you know if it works?

      Xxx

    • sarah92c
      sarah92c carly_03797

      Posted

      Yes basically the novasure ablation works by a rod being inserted into the uterus at the end of that rod is a umbrella like thing which once inserted into the womb its opens up and it (to cut a long story short) electrocues the walls of the uterus to stop them from bleeding this is always given as a option before a hysterectomy sort of o last hope thing

      But this does leave 99% of women infertile but if you do get accidentally pregnant which can happen it will most likely end in a miscarriage or will be ectopic .

      Xxxx

    • sarah92c
      sarah92c

      Posted

      And I turned it down as they told me theres possibility it wont work for me as my problem seems to be hormonal and nothing looks abnormal on my scans for the womb wall xxx
    • carly_03797
      carly_03797 sarah92c

      Posted

      Thanks Sarah. Seems like a wasted procedure to me 😏 Xxx
    • sarah92c
      sarah92c carly_03797

      Posted

      Thats why I turned it down just wanted you to know what they will ask you to think about before the hysterectomy the more you know the more chance you have of getting it gone for good smile

      Xxx

    • froggy28
      froggy28 sarah92c

      Posted

      I've tried some following having ovaries removed and gel worked best for me. Good luck it takes a while to find one and for hormones to level but you will get there 😊
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