1. Community
  2. Operations and surgical procedures
  3. Hysterectomy

Heavy bleeding and absolute agony!

Posted , 6 users are following.

carly_03797
carly_03797

Hi ladies,

Since a very young age of 15 I'm now (20)I've had horrendous periods resulting in me having one continuously for around 2/3 years with blood clots and loads of pain. Doctors have always fobbed me off saying it will calm down or its ibs pain. I've tried all contraceptive options to try and help and the mirena coil is like my only option but that has failed and I'm still in the same position, having heavy constant periods and excruciating pain! It's affecting every aspect of my life, I was just wondering if anyone is around the same age and has been through anything similar. In the time that this has been going on I've only seen a gynaecologist once I'm due to see one again on the 22nd March and I only see a hysterectomy as my only option for this night mare to stop.

0 likes, 34 replies

34 Replies

Prev
  • melissa21100
    melissa21100 carly_03797

    Posted

    Hi carly my name is melissa i am 36

    i have had simler problem since starting mine but got worse the last 2 years tryed everything drs said including trying all forms of pill 3 different implants coil and at one point pill and implants together even went to point of starting a tablet called provera witch started my menopause but that stopped working i begged for a hysterectomy off 3 doctors and got the paperwork signed to have it done just befor Christmas and 4 weeks ago got total hysterectomy what totally suprised me my last appointment with hospital gynecologist consultant was a student gynecologist consultant and he looked into everything from start of my problem and sent me letter saying what was wrong all this time i had a problem with top part of uterus cause mine to split in 2 and almost look like devil shape with horns and no pill or anything woud of worked because of shape of uterus had hysterectomy done in recovery week 4 now

    • carly_03797
      carly_03797 melissa21100

      Posted

      Hi Mellissa, Thankyou. I've just had povera for about a month and it's made me feel horrendous! As I said above I think my problem is my age as I'm only 21 next month and not many hysterectomy safe performed on women below the age of 25 but I have had this 6 years and I'm so done with the pain and bleeding I am ready for a hysterectomy. Xxxx
    • melissa21100
      melissa21100 carly_03797

      Posted

      I scared my doctor for life as i took pictures of how bad mine was i got coil fitted twice and both times came out filling my toilet bowl with blood clots twice at my bed picture looked better than pic on csi thats when he listend
    • carly_03797
      carly_03797 melissa21100

      Posted

      Oh bless you. It's nice to know I'm not alone! I have no family so I've felt very alone. How long have you had the problem before your hysterectomy?
    • melissa21100
      melissa21100 carly_03797

      Posted

      At its very worst last 11 year lost count how meany trips to hospital to see if was miscarriage but it was never that i was pregnant 5 year ago had miscarriage but that could of been caused by not picking up shape of uterus then and i dont have any kids now
  • sue08648
    sue08648 carly_03797

    Posted

    Hi Carly,

    Pls pls get a second opinion from another gynae onco. I had the same problem like you and my ignorance causes me to become "cancer patient" at young age of 38! Sign of uterus cancer is heavy bleeding and spotting in between periods.

    Get Doctor to do a d&c and biopsy. Indication such as protopic ployps, ayptical hyperplasia are something you should pay attention to..

    Take care!

    • carly_03797
      carly_03797 sue08648

      Posted

      Hi sue, I think the hospital have realised now that it can't go on they've changed my gynaecologist and I'm also under a specialist unit at hospital now so hopefully I get some answers! Thanks. Xx
    • melissa21100
      melissa21100 carly_03797

      Posted

      You would laugh how i got my first one changed and still recorded on hospital computer system

      I got rushed to a&e after waiting 5 hours for ambalance gets there full examination seen gynecologist she refured me to specilist as she could not realy help me gos to specilist appointment and its same girl behind the desk and she tells me then what can help i sufferd 4 months by this time i kicked off with her so bad i had to be removed from room and put in seprate room to calm down and stop crying befor let me out of hospital building then got new gynecologist provera started then stoped working then he retired got another gynecologist consultant 3rd time lucky got opp and if i could see original one i seen at start she would have to run fastnto get away from me lol

    • carly_03797
      carly_03797 melissa21100

      Posted

      Haha oh dear bless you. I was quite lucky I had my cool fitted when I had my laparoscopy xx
    • sue08648
      sue08648 carly_03797

      Posted

      Great at least now they referred you to a specialist. Do insist of getting a hysteroscopy done. During this procedure, Doctor will be able to view your uterus lining as well as removing any abnormalities tissues and ployps. Insist as well for a biopsy report. If nothing major, go ahead with hormonal treatment or whatever procedure doctor recommended with hysterectomy as your last option.

      Trust me, recovery from hysterectomy is a long process and you will somehow suffer emotionally. I have no other option due to cancer and I am on my 3rd week recovery - post op TAH. Pain is my best buddy now. Swelling here and there, suffering from hormone imbalance symptoms, feeling dependant on others to help you moving around, watching your diet (to avoid constipation or further harm to already swelling abdominal after pre op), n the list go on and on.....

  • carly_03797
    carly_03797

    Posted

    Pain is so bad today, ladies how long did it take you to recover to go back to work? I'm a carer in a small care home and I'd want to be back at work ASAP as I'm getting married in 4 and a half months.

    Thanks xxx

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.