Hello :( I hope someone can help me x

Posted , 4 users are following.

I have been in and out of the doctors since Last monday the 15th feeling incredibly ill and it's still ongoing. I'll try and narrow this story as short as i can because it's a continuous thing and i'm so fed up with it all.

A few years ago i was diagnosed with Polycystic Ovaries, my left ovary was larger than the right, and both had multiple cysts....nothing was alarming at the time of the scan so i've been back every year for a check up. I have pain in the pelvis anyway, and if i cough or sneeze the pain is so sharp i curl up into a ball and cry. As the years have gone on i've been at my worst episode with this since last monday, My complaints where of things that aren't the usual for me, Vaginal discharge occasionally smelly, ranging from bright yellow/brown/bloodish tinting and white, pain when having intercourse with my 6 year partner, and bleeding that can be so bad it goes down my legs and others it's just brownish, frequent urination and difficulty going to the toilet, nausea and feeling very weak unless i lie down...the doctor suspected a water infection, so i was given antibiotics for 3 days, had blood tests done and a follow up appointment. Nothing changed, so i was given further antibiotics as they then suspected Pelvic inflammatory disease....nothing changed and it's been a few days now...my stomach has been more windy and having sharp pains since i started all this medication...i went into work thinking i was fine, i wasn't the pain was so bad i was in tears, i was immediately sent home and got an emergency appointment with the doctor (AGAIN)...it wasn't until then they decided to send me for a scan (now i have a copper coil in and they were suspicious of it not being around anymore and that i could have a reaction in the body to this)...The big  boss at the hospital asked why i hadn't had a scan done sooner...and asked me to come down asap....i had an outside one done and an internal scan done, the coil was in place and where it should be and it was so painful when they examined me, the left ovary was the most painful....i cried they looked at me with a speculem (the third one in a week) and said i'd need to stay in hospital overnight and they will be taking me to theatre...

I was so happy that FINALLY i was  going to get something done about this, i've suffered for so long with the pain and the sickness etc i tohught i'd be able to carry on as a mother as normal and as a work colleague and be me again....they got me all pysched up for it and told me my operation would be in the morning......morning came i hadn't eaten or drank and a doctor came in (a different one to the one who told me to go forward with the operation) decided not to bother with the operation due to my age, and that there would be complications involved and a desire for more children would be affected by this as the whole ovary may need to be removed. I was so upset i probably shouldn't have told them we wanted another child...:'(

A third doctor came along, and wanted to check me for coeliac disease as i was rushed into hospital on sunday with a black bowel movement, which i only had one occasion of....they already knew i suffered with IBS but wanted to treat me for this with painkillers...yet my main area that was bothering me (and i was STILL weeing alot) was my left side of my pelvis...the demon ovary. So ANOTHER doctor came along and said he didn't think it was IBS so let's stick a camera up both ends and make sure there isn't any internal bleeding....nothing was found and they still continued with the ibs diagnosis...another doctor came back to see how my ovaries where doing and i told them i still feel the same as i did when i came in......IBS was there main concern...and no more things where being done with my ovaries and i got so fed up i discharged myself...i know that sounds so stupid but i couldn't take it anymore and i just wanted to come home and have a cuddle and cry...which i haven't stopped doing. sad

I have my scan which was booked ages ago on the 30th of this month, so only a few days to go....if nothing has changed then i may be back in hospital again...but what's the point when nothing will be done? I'm sick and tired of being sick and tired.....i'm so ill and it hurts so much that i just want it all to end....

I'm struggling to make much sense on here as i'm feeling very lightheaded and have major cramping in my left side...so if i've not been very clear please let me know, i just wanted some support and some advice as i feel so low atm. I'm still not at work because of how weak i feel and i fear this will cause me to lose my job. sad Apologies for taking up most of the page...hopefully i'll hear back from someone and get some help x

Nooski x

 

0 likes, 26 replies

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  • Posted

    yes get gp to phone them its what i had to do to get things done be safe ,im going in hospital next thurs for another biopsy be in touch tc magssmile
    • Posted

      Hope it goes well margaret105

      Big hugs and thinking off you

      Taz xxx

  • Posted

    Well had my scan, asked them to help me..infact no begged them to help me and got nothing back. So i have to wait 6 weeks and if nothing has changed then i will be considered for surgery....NICE ONE.

    sad

     

    • Posted

      Were they Gynaecologists you saw? If not get a urgent refferal to one.

      Leaving it for 6 weeks as if cystas certain types can be cyclical and resolve themselves, did you scan find one and if so what sort? However if it is symptomatic or of a certain size the guidelines are to remove it.

      Your next stop would have to be PALS  (Patient Advice and Liason Service), every hospital has one and they are there to help you if you are disatissfied with the hospitals treatment so far, tell them all that can happen and to intervene as made it clear what wat but being ignored and no proper explanation as to why. If say can't intervene ask who can and what you should now do. Tell them how desperate you are to get this sorted.

    • Posted

      They said that it doesn't seem sinister or anything that is jumping out at them to be removed. I have my doctor ringing me back on monday and i've just had a Smear test letter posted through the door today....sad

      Back to worrying again i think :' (

    • Posted

      If symptomatic cysts or ones that are larger than a certain size the Royal College of Obstetricians and Gynaecologists (RCOG) guidelines recommend probable removal.

      Certain types have to be surgically removed as there is no other effective treatment at the moment.

      Frankly sinister or not this is causing alot of pain and should be removed, but Drs are so afraid of being sued these days, partically with regards to infertility or lessened fertility that they are cautious to the point of stupidity. Is there another hospital tou could be referred to for another opinio?

    • Posted

      NHS CHoices website states "Large ovarian cysts or cysts that are causing symptoms will usually need to be removed." so throw this at them

       

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