Help Me Please

Pleased that everything went ok at the hospital to you. Hopefully finally get you sorted out. Not very sexy like you say you have to wear but as long as it going to make things better. I can't wear high heel shoes anymore and tend to wear casual trousers a lot as I can then wear my trainers for support. Been to four evening wedding receptions in last two months and that was difficult trying to find something to wear with my posh black dress trainers wouldn't have worked lol. :roll:

Managed to hobble about in a lower heal shoe until my toe started playing up then had to go to a flat but dressy sandal. Looked ok but didn't really work that well with my dress. We do have to put up with things don't we.

Ok talk later.

Love Jane x x :o

i have got a app for rhumatoligist for sept at last.... waited 25 weeks for that does anyone on here suffer from severe nausea along with everything else.

my anniversary is on sunday ses.. dont know what we doing yet im to scared to invite people up incase im so ill... my family dont take changes very well so kinda feeling sad that i cant be like a lot of people and do things in advance.. when i was on the cruise i was sitting one day watching people going about there buisness at breakfast time.. i was sitting there in agony could hardly lift my t cup up and feeling so sick.. i was envious to say the least..im gettin really frustrated as im feeling ill everyday with something and no one seems to care out there ( except the sufferers there self) im sitting here sipping some milk as family all eating dinner and i cant face it.. though i dont eat much i still dont loose weight strange eh x

take care

luv di x

So pleased you got your appointment with the Rheumatologist at last. You must be so pleased. Hope you have a good anniversary. How many years is it. I just had my 29th on 28th July.

I sometimes feel sickly in the morning (no I am not pregnant lol to old) :cry: I suffer from acid reflux but put it down to that.

Hope you do get to see your family on your special day.

Love Jane x x :lol:

its my 25th wedding anniversary..... i should be getting a medal eh lol

what a night i had last night.... could not sleep because of pain and restless legs, and i was up at 8am.. not like me at all... i will prob fall asleep writing this forum lol

hope u are feeling ok and have a better day today,

speak soon

di x

I have had restless legs before it is not very nice at all. You just can't get comfortable and have to get up and move around.

We have are one year off thirty years and my husband Stewart says you would get less for murder than that lol. :o

I think we should both have a medal for all those years anyway! :roll:

Hope you are not in too much pain today.

Love Jane x x

384 months

11688 days

280,320 hours

16,819,200 minutes

and an awful lot of seconds. :lol:

I don't think he can have had anything to do at the time :roll:

Congratulations on your 32nd Anniversary today. How on earth did your husband work all that out lol. I couldn't but think he needs to find something else to do with his time :o

Anyway best wishes to you both for many more.

Love Jane x x

Congratulations Di, on your Rheumatologist appointment about time xx and when you celebrate your wedding anniversary how about everyone chipping into a take away, less washing up to do :lol: :bubbly: :rose: Hi Helen A Us fibroites get a lot of sinus type headaches too I had this for months and it was so distressing I was told to put my head over a hot bowl of water to clear the sinuses and it did help but I remember being frequently on sudafed type meds, I hope your pain goes quickly x :cheerup: heheheheh and it is me that calls Squires Tess xxxxxx I will call you Jane if you prefer hun xxx :oops: HI there Alicia your hubby must of counted those minutes secretly as he loves every minute with you xx

I had found that the gabapentine help you gain weight as I found out from my Pain Specialist report so it is not good for us suffers as it's a med that is given to us fibroites not very good for less mobile individuals :oops: luckily I have taken Orilstat too so I have lost about a stone, I had put a pile of weight on since giving up smoking in 2005 and then having my third child and then it went from bad to worse as the fibro took hold!!!!!

Anyway I havent had a good day today as the weather has been terrible the dampness seems to penetrate into your skin some how and although I woke up at 11.45 am I still have felt like I didn't sleep, still recovering from the shock of not winning my appeal.......... sitting there in front of three people that I feel do not understand \"Fibromyagia\"........ it didn't surprise me as I hadn't heard of it until I started reading threads on here I feel that many people just think that we look ok so there is nothing wrong with us, but as we all know this is not the case.......... a nightmare :evil:

Anyway everyone do take care and take it easy xxxxx Gentle hugs xx

I don't mind being called Tess or Jane as you please. Theresa and Jane are both my names also got another middle name to confuse everyone Amy.

You have cleared up a problem for me as I kept getting sinus type headaches and still do on waking up in the morning. Kept going to the doctor checked my sinuses and said they were ok.

Not very nice headaches like migraines make you feel sickly. :o

You do suffer with your pain. Hope today is a better one for you.

Off to doctors today to find out about my toe hopefully as going away possibly end of the month in our van. Going to Preston take my sons

things to his shared house for starting back at Uni for his second year.

Maybe after that go to derbyshire so need those feet for walking lol. :o

Let you know later what he says.

Sorry Helen or anyone else if I have confused you with both my names.

You can use Theresa, Jane or Tess I don't mind. :roll:

Love Tess x x :o

Bye for now

How are you today. Haven't seen you on here for a while. Are you still getting lots of pain from your toe :cry:

I went to see gp today and he thinks the trouble with my big toe is something to do with the tendon. He is going to refer me to the podiatry

department. Think I spelt that right. Don't no when it will be and not sure what they will do lol :roll:

Hope you have been able to get some decent rest.

Love Jane x x

* Non refreshing sleep

* waking up tired and stiff

* headaches ranging from ordinary types to migraine

* irritable bowel

* frequent diarrhoea or constipation, sometimes accompanied by gas in the abdomen or nausea

* cognitive disturbances including lack of concentration and word mix up

* clumsiness and dizziness

* sensitivity to changes in the weather and to noise, bright lights, smoke and other environmental factors

* allergies

So basically this is why probably no two days are the same due to all the symptoms related to our condition!!!! :oops:

The pain in my hips are still so severe and are driving me crazy, I cannot lean forward due to a sharp stabbing pain as though something is being torn :roll: :sad: so tired of feeling like this and my arms ache so much :cry: I just hope the doc listens on Monday :oops: fingers crossed!!!!!

I do hope you all are having a relaxing night xx take care everyone :rose:

I hope you can get your doctor to listen to you. That makes you feel better sometimes more than the tablets. It gives you a boost knowing someone cares to do something to help.

That list of things you put about fibro I can relate to all of those. When the rheumatologist went through them with me I was saying yes I get that.

He said the booklet could have been written for me as I had all the ones in the booklet.

Really ache today knees are playing up. Think it is because of doing extra walking yesterday and the weather changing. Not looking forward to the winter. :cry:

Hope everyone else isn't suffering too much.

Love Tess x x

Woke up this morning and my hips are hurting so much, I am definitely asking for x-rays tomorrow as they are so painful :oops: I am sure the OA has got worse as the last time I had an x-ray was in may 2007. I cannot get up from the chair without ease, I am having help from my husband when I need to turn over and yet again the DLA board did not listen!!!! Probably they think as we look ok on the outside there is nothing wrong with us!!!!!

I get pain in my knees too Tess had an x-ray on one of them but was ok so told it was down to the fibro!!!! Yeah winter does not look good we should all emigrate for the winter months and then come back in march 09 lol :snowball: :bus: :run:8) the weather definitely effects us, as I kind of know when it is going to rain as I feel it through the pain :cry: I do hope your toe is sorted out too soon Tess as I can understand how hard it is getting about, even around the house :puff: I do hope your GP pushes your appointment and there isn't too much of a waiting time like poor Di had waiting for her Rhumo appointment, unfortunatly joys of the NHS I waited 4 and a half months when I was waiting for a physio appointment!!!! so fingers crossed you won't need to wait too long x Tess x :fairy:

I do hope you all are resting, easier said than done eh? take care everyone and I hope you all have a good day :cheerup: :cheers:

I got my xrays for the OA in my knees from gp and told it was not any worse for my age. He did put in in a nice way when he said about my age! :o The Rheum told me that it would eventually need knee replacement in right knee. That was before he saw xray and just moving it around.

That was a long time for Di to wait to see Rheumatologist. I was lucky only had to wait about 8 weeks and for physio only six weeks. Go to see him on 12th September. Whether it makes a difference as I can go to my own surgery to see him and takes longer going through the hospital. :cry:

We I were you I would ask for xrays on your hips. I get pain in my right hip but like you say don't know whether OA or Fibro. I think my Amptipline could be helping as feel better than I did a week ago. I had bad migraine and then every so often would come over unberably too hot.

At the moment it is really confusing as going through menopause as well so another thing to consider.

Just what you want on top of everything else. Not easy being a woman :cry: :cry:

My children always laugh at me when I tell them its going to rain when my aches and pains are bad. :lol:

Keep positive everyone.

Love Tess x x

Just read your first entry my opologies....... It took me 18 months before my diagnosis and like Tess said the Doctor normally give you blood tests to rule out other rhumatic conditions, Fibromyalgia is diagnosed normally if you have been suffering longer than three months...... Pain [b:92d56ce9e2]IS[/b:92d56ce9e2] the main symptom however, specifically, pain and tenderness in certain areas of the body when pressure is applied to them. These are what are termed 'tender points'.

Areas where pain my be present include:

* Back of the head

* Elbows

* Hips

* Knees

* Neck

* Upper Back

* Upper Chest

To be diagnosed with Fibro you have to normally have 11 out 18 tender points, I am one of the unlucky ones as I have 18/18 maybe thats why I moan so much lol goes with being a woman too with three kids :oops: II would write a diary too as this may help your diagnosis x.

I do hope your rhumo treats you ok Tess as the one I saw was more concerned that I hadn't seen a physio before her, she said I had mechanical back strain..... physio said the osteo in my hips was causing my discomfort along with fibro, the rhumo just said I needed to loose weight :evil: good luck hun, I do hope you have more support than I had had in the past!!!!! and yet my physio was so caring and made me feel like I existed!

Take care everyone and if so called professionals do not listen ...... get a second opinion like I did !!!!!

Gentle hugs xxxx