Help me with my **possible** perioral dermatitis

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Hi Everyone.

I am at my wits end with my skin and wondered if anyone could suggest anything.

About eight months ago I went on a course of antibiotics for a wound that wouldn't heal. It did the trick, but a couple of days after I finished the course I began to get huge flakes of skin coming off each side of my nose and just under it. There was no real redness at first, just extremely flaky skin, which Ive never had before.

This then turned red on one side and was quite sore. This cleared up, but switched to the OTHER side of my nose and this is what I have had ever since.

It has come and gone in various degrees of severity, but generally, it is red and mildly flaky/dry with lots of little bumps which look like acne but never come to a head. Having said that, I have been getting cystic type acne right in the fold of the nose recently.

TREATMENT: I initially googled the problem and concluded it was perorial dermatitis. I didn't want steroids as I know that makes it worse, so I went to the doctor (who didn't know what it was and had to GOOGLE perioral derm!?)who gave me DUAC cream. That helped a bit but it just came back.

I have since been to numerous doctors who have given me everything which I have eventually tried.

I was advised to use an anti fungal cream,so used canesten (without steroid in it). This gave me some kind of allergic reaction and i got eczema all around the area where I used it. To treat this separate condition -ergh) i was prescribed a steroid cream, daktacort, which made the eczema go away but then the PD came back worse and now I'm back to square one.

I'm almost positive its a classic case of PD, and since I tried everything the only option is antibiotics. However, I am EXTREMELY reluctant to take any seeing as it would seem that anti biotics gave me it in the first place! It all started as soon as I finished a course of them, having never had it in my life before.

I have no idea what to do, and would appreciate ANY advice. Apologies for the huge post!

Note: I should also add that I have tried lots of home remedies like coconut oil, lemon juice, apple cider vinegar which have helped mildly but not gotten rid of it. In the past three months I've also cut out wheat, sugar, dairy and yeast (considering it may be candida overgrowth). I even switched to fluoride free toothpaste. Nothing has gotten rid of it! (except the steroid/anti-fungal, and only temporarily!)

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  • Posted

    Promila,

    I don't know how your health care system works in the U.K. but I can't see one reason why your GP wouldn't refer you to a dermatologist.  For you, it is a chronic skin disorder that you have been dealing with for way too long.  It isn't your GP's area of expertise and he/she should't deny you.  Sounds like a controlling egomaniac.

    Hang in there Sweetie

    Fiona

    • Posted

      Thank you Fiona and Sharon! Well my GP said that regular treatment for PD include oral antibiotics, so I will hear the same from dermatologist. But I don't mind, I am not British, so porbably I should appreciate that I have any medical care. smile And I got kind of frustrated and at the same time I got some strength (also thanks to you all!), that I decided to wait another week and give my body the last chance. I have also purchased lactoferrin. Has any of you heared about it? It is apparently used in treatment of acne, and is supposed to help your immune system to get rid of this sort of stuff. I was advised by a dietican to try this (though he didn't see me - it was also only phone advice). But I will try it. + Sharon I would really like to try avene - so many people are using it! But now I have spent all of my "student money" on supplements and creams, that I have to wait and save some money. smile

      Fiona, I am also taking tumeric (tumeric+olive oil + peper), but it seems to enhance the effect of all the supplements that I am taking, so I have to be careful.

      The funny thing is - I got my blood test results. Thyroid hormones are fine, the majority of hormones are fine, apart from one. Estrogen! I am really low in estrogen. (which would explain why I sometimes have sometimes do not have periods - huge irregularity) I don't know whether there is a correlation (since I had usually some problems with menstruation, and not with my face) but I honestly hope so, because than I would know where to "attack". Still, I have to wait to go back to Poland to go to my doctor, since I had my blood test taken there. 

      I have hope. I know that it has to be only better. And worst case scenario - next week I am starting antibiotics.

      Congrats Jennifer! :D It is soo good to hear that you managed to clear it almost  completely. smile 

      Take care! 

      Alex.

       

  • Posted

    Hey Jennifer,

    Quite agree re: epsom salt baths.  I do detox bath of 1 cup epsom, 1 cup baking soda, 1 cup sea salt and tablespoon of ginger in bath.  You should stay in it for at least 40 minutes in very hot water with the shower curtain closed for the full benefit of the steam but I rarely make it that long with these bloody hot-flashes.  I'm like a wet noodle when it's done....really relaxed.

     

  • Posted

    Hey Alex,

     When I started taking turmeric, I mixed it with oil at first too and am wondering which is best...oil or milk.  I know that it should be taken with a pepper and a fat....ANYWAY...I have to run right now but want to ask a question about your post that I didn't quite understand.  Can you take a look here later on today or tomorrow?  Will post later

    Thanks

  • Posted

    Ive been dealing w this PD crap for months!!

    i realize that Ive had it for quit a while.😡

    on

    doxcy but even on antibiotics Ive found that I HAVE to avoid certain Triggers

    starbucks was an everyday treat until I figured out espresso in milk are 2 No-Nos.

    no

    coffee,

    NONE!!

    No cinnamon, chocolate, fermented foods

    any thing with sugar, no dairy,

    has to be gluten and wheat free!!

    no Alcohol !!!!

    omg the list goes on and onnnnnn!

    so Im trying paleo for now.

    only veggies , fruits and lean meats.

    only drinking water

     my violet extract came in

    And seems to be doing wonders!!

    also

    MAKE SURE to check anything that you come in contact with

    is SLS FREE!!

    its in everything!!!

    toothpaste mouthwash laundry detergent shampoo lotions

    and on and on!!

    organic coconut oil  is the only thing I put on

    but only after the extract had dried!

    wash face with only water and your fingertips!!

    this is an aweful rash that feels like fire at times

    but between the meds

    the diet 

    Avoiding ALL SLS and sulfates 

    and stress 

    and mostly the violet extract

    this is finally going away

    and on a good note

    because I don't

    stray from eating healthy

    Weight is coming off also!!!!

    👏👏👏👏👏👏👏

     

  • Posted

    Several months ago when I stopped taking oral contraceptives for the first time in over 10 years, I had the copper IUD placed, which apparently contains traces of nickel that I am allergic to because I am allergic to just about everything. Because this is a sterile procedure, I needed to take oral antibiotics afterward to prevent an infection. At the time of placement, I had a skin fungal infection on my inner thighs that I had gotten from gym equipment, and had been prescribed a topical antifungal mixed with a steroid ointment. So needless to say, when a rash popped up around my mouth and nose that was both itchy bumpy and very red, numerous things were pointing to perioral dermatitis. In fact, I had all of the potential causes lined up:

    1) yeast infection

    2) change in hormones

    3) topical steroid use

    4) antibiotic use

    5) numerous skin allergies

    So, I did everything. Changed my toothpaste, Changed my face wash, body wash, laundry detergent. Rewashed every piece of clothing, all the sheets towels and blankets. I used yogurt and apple cider vinegar and clay soap. I bought $300 worth of Mama Nature, oregano oil, lilac extract, coconut oil, and emu oil. I washed my face with cetaphil, then didnt wash it at all and instead just massaged it with oil. I told two dermstologists what I thought it was (perioral dermatitis), and they agreed with me.

    and then one day I decided to get a third opinion. And i opted to keep my mouth shut, play dumb, and just see what this dermatologist came up with without me suggesting anything.

    and she diagnosed me with poly cystic ovarian syndrome. And said this rash and acne pattern on the chin is classic. She said perioral dermatitis is often "in cahoots" with something else that is going on. In my case, hormonal. She gave me Avar cleansing cream, and a topical prescription strength retinoid cream. The red scaly itchy patches peeled and stung for about a week, and it has forced more and bigger pimples to come out, and the itchy bumps got worse for a week or so. But then one day I woke up and... The redness was gone. The itchy bumps were gone, and other than the small few pimples that come and go in a matter of a day, this regimen has completely worked for me. I can tell that the pimples now are just because my skin is purging them out from below the surface since that is what a retinoid does. 

    Nourish your skin now + retinoid speeding skin cell turnover + sulfur soap like Avar = healthy skin in a few weeks.

    it took months of desperation, everything under the sun, and 3 dermatologists to find the right answer. And i didn't have to use antibiotics. Retinoids are basically pure vitamin A, so really the answer was sulfure and vitamin A for those who are worried about medicinal approaches vs natural cures. What is most unnatural is causing yourself this much stress just to avoid taking medicine. This stress is causing you more damage than this topical retinoid ever will. 

    Go get another opinion. And another one. And keep going until you find a regimen that works for you. 

     

  • Posted

    i wanted to post pictures, the first was before any intervention. The second was after mama nature pro skin eczema which honestly did help a lot. The third was after starting the Avar wash and retinoid cream, and the last picture was this past weekend where you can't even see any redness or bumps at all. I am telling you, there is a regimen out there for you. Stop driving yourself insane with research. Get more opinions. There is an answer dor you. Mine was hormonal. You justnhave to find someone who is willing to do what it takes to narrow down all your causes. Mine could have been any one of those listed. And i tried solutions for all of them. I even took really strong oral antifungal medication!! 
  • Posted

    My pictures loaded in reverse and sideways for some reason, so start with the one all the way to the right and mpve toward the left 
  • Posted

    Promila, thought that I would have this morning but I'm on the run again!  I will post this afternoon.

    This new forum is driving me NUTS.  EVerything shows up out of order at times and it's very confusing.  I'm trying to find Lisa's post.....shows up in my e-mail but I cannot find it in the forum.  Why can't they give you just one option to post right after that last entry?  It all over the place.  Urghhhh

  • Posted

    An Promilla's last ones aren't in the right place either.  This is silly.  Is this happening to anyone else?
  • Posted

    Fiona I have the same. I hate it as well. I cannot get this system, I don't know where the posts are and it is just really poorly designed.

    Hi Lisa! Thanks for the answer! So basically after starting Elidel around 3 months ago, you have cleared PD completely, and for now you have not had any reoccurance? That sounds amazing. I am thinking whether Elidel or Zineryt would be better, but I think I will go with Elidel. 

    Congratulations, and hope everything will be better with hormones and stuff. wink 

  • Posted

    Promilla...Thanks for input re: silly set up of this forum after the changes were made.  If you have a minute, could you please make a report to the EMS guy (ALAN)  Have questions to ask you and I still want to read what Lisa posted.

    Talk to you soon (or post, rather)  Don't want to take the time to post long question only to have it end up in "No Man's Land".  WHY FIX SOMETHING THAT IS NOT BROKEN????!!

  • Posted

    I finally found Lisa'a post that she wrote today yet because of the poor new design of this forum, it is dated 19 days ago. Should have shown up as something that she posted today.  Something has to be done about this because it throws the whole continuity off.  I would like to contribute to it but cannot referance it to add to it because it is out of sinc. 
    • Posted

      Fiona,I compfacebookletely agree about the new forum design. Horrible-don'tknow where I am regarding posts.

      I feel faceboook calling.............

    • Posted

      Yes Lisa,,,whatever you think regarding facebook...I'm in. It's a shame because I get such good information from this forum but it's gone to the dogs since this change.  Always enjoy hearing from you

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